IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v17y2020i16p5901-d398971.html
   My bibliography  Save this article

Caring for Family Caregivers of Geriatric Patients: Results of a Participatory Health Research Project on Actual State and Needs of Hospital-Based Care Professionals

Author

Listed:
  • Theresia Krieger

    (Department of Social Medicine, Faculty of Health Medicine and Life Sciences, Maastricht University, PO Box 616, 6200 MD Maastricht, The Netherlands)

  • Regina Specht

    (Helios Klinikum, An der Gontardslust 7, 57319 Bad Berleburg, Germany)

  • Babette Errens

    (Rhein-Maas Klinikum, Mauerfeldchen 25, 52146 Würselen, Germany)

  • Ulrike Hagen

    (Rhein-Maas Klinikum, Mauerfeldchen 25, 52146 Würselen, Germany)

  • Elisabeth Dorant

    (Department of Social Medicine, Faculty of Health Medicine and Life Sciences, Maastricht University, PO Box 616, 6200 MD Maastricht, The Netherlands)

Abstract

Because of societal changes, family caregivers are becoming vital in long-term care provision for geriatric patients after discharge from hospital. Hospital-based geriatric care teams need tools to prepare and support family caregivers for their future caregiving role in the home environment. To explore the actual state and needs for implementing a suitable family caregiver support concept in a large geriatric hospital in Germany, a Participatory Health Research methodology was chosen. An academic investigator, assisted by a critical friend, facilitated all research steps. Geriatric care professionals joined as co-researchers and performed qualitative data collection using semi-structured interviews and focus group discussions. The entire co-research team took part in the thematic analyses. The existing family caregiver support was perceived as uncoordinated and incomplete, and a lack of knowledge about support programmes in the community was apparent. The needs regarding a comprehensive family caregiver support concept that acts on both individual caregiver as well as on system level, but also connects the two levels, were formulated. High grades of participation of hospital-based co-researchers could be achieved. A critical reflection on the research strategy revealed that the participatory methodology, although time-consuming, was perceived as a useful strategy within the hierarchically organized hospital.

Suggested Citation

  • Theresia Krieger & Regina Specht & Babette Errens & Ulrike Hagen & Elisabeth Dorant, 2020. "Caring for Family Caregivers of Geriatric Patients: Results of a Participatory Health Research Project on Actual State and Needs of Hospital-Based Care Professionals," IJERPH, MDPI, vol. 17(16), pages 1-17, August.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:16:p:5901-:d:398971
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/17/16/5901/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/1660-4601/17/16/5901/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Schulz, Amy J. & Israel, Barbara A. & Lantz, Paula, 2003. "Instrument for evaluating dimensions of group dynamics within community-based participatory research partnerships," Evaluation and Program Planning, Elsevier, vol. 26(3), pages 249-262, August.
    2. Martin Pinquart & Silvia Sörensen, 2007. "Correlates of Physical Health of Informal Caregivers: A Meta-Analysis," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 62(2), pages 126-137.
    3. Elisabeth Dorant & Theresia Krieger, 2017. "Contextual Exploration of a New Family Caregiver Support Concept for Geriatric Settings Using a Participatory Health Research Strategy," IJERPH, MDPI, vol. 14(12), pages 1-16, November.
    4. Cornwall, Andrea & Jewkes, Rachel, 1995. "What is participatory research?," Social Science & Medicine, Elsevier, vol. 41(12), pages 1667-1676, December.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Sandra Salm & Judith Mollenhauer & Carolin Hornbach & Natalia Cecon & Antje Dresen & Stefanie Houwaart & Anna Arning & Andrea Göttel & Kathrin Schwickerath & Holger Pfaff & Nadine Scholten & Theresia , 2021. "Participatory Development and Preliminary Psychometric Properties of the User-Friendly Patient Information Material Checklist (UPIM-Check)," IJERPH, MDPI, vol. 18(16), pages 1-16, August.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Theresia Krieger & Sandra Salm & Antje Dresen & Anna Arning & Kathrin Schwickerath & Andrea Göttel & Stefanie Houwaart & Holger Pfaff & Natalia Cecon, 2022. "Optimizing Patient Information Material for a New Psycho-Oncological Care Program Using a Participatory Health Research Approach in Germany," IJERPH, MDPI, vol. 19(3), pages 1-17, January.
    2. Elisabeth Dorant & Theresia Krieger, 2017. "Contextual Exploration of a New Family Caregiver Support Concept for Geriatric Settings Using a Participatory Health Research Strategy," IJERPH, MDPI, vol. 14(12), pages 1-16, November.
    3. Caroline Patsias & Anne Latendresse & Laurence Bherer, 2013. "Participatory Democracy, Decentralization and Local Governance: the Montreal Participatory Budget in the light of ‘Empowered Participatory Governance’," International Journal of Urban and Regional Research, Wiley Blackwell, vol. 37(6), pages 2214-2230, November.
    4. Ines Testoni & Irene Nencioni & Maibrit Arbien & Erika Iacona & Francesca Marrella & Vittoria Gorzegno & Cristina Selmi & Francesca Vianello & Alfonso Nava & Adriano Zamperini & Michael Alexander Wies, 2021. "Mental Health in Prison: Integrating the Perspectives of Prison Staff," IJERPH, MDPI, vol. 18(21), pages 1-14, October.
    5. Borja Rivero Jiménez & David Conde-Caballero & Lorenzo Mariano Juárez, 2022. "Technological Utopias: Loneliness and Rural Contexts in Western Iberia," Social Sciences, MDPI, vol. 11(5), pages 1-15, April.
    6. Eve Wittenberg & Adrianna Saada & Lisa Prosser, 2013. "How Illness Affects Family Members: A Qualitative Interview Survey," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 6(4), pages 257-268, December.
    7. Zemadim, B. & McCartney, Matthew & Langan, Simon & Sharma, Bharat, 2013. "A participatory approach for hydrometeorological monitoring in the Blue Nile River Basin of Ethiopia," IWMI Reports 201009, International Water Management Institute.
    8. Blackstock, K.L. & Kelly, G.J. & Horsey, B.L., 2007. "Developing and applying a framework to evaluate participatory research for sustainability," Ecological Economics, Elsevier, vol. 60(4), pages 726-742, February.
    9. Lisa M. Vaughn & MaryAnn Lohmueller, 2014. "Calling All Stakeholders," Evaluation Review, , vol. 38(4), pages 336-355, August.
    10. Ana Luiza Fontenelle & Erik Nilsson & Ieda Geriberto Hidalgo & Cintia B. Uvo & Drielli Peyerl, 2022. "Temporal Understanding of the Water–Energy Nexus: A Literature Review," Energies, MDPI, vol. 15(8), pages 1-21, April.
    11. Lara Lopez & Fernando L. Vázquez & Ángela J. Torres & Patricia Otero & Vanessa Blanco & Olga Díaz & Mario Páramo, 2020. "Long-Term Effects of a Cognitive Behavioral Conference Call Intervention on Depression in Non-Professional Caregivers," IJERPH, MDPI, vol. 17(22), pages 1-24, November.
    12. So Pyay Thar & Thiagarajah Ramilan & Robert J. Farquharson & Deli Chen, 2021. "Identifying Potential for Decision Support Tools through Farm Systems Typology Analysis Coupled with Participatory Research: A Case for Smallholder Farmers in Myanmar," Agriculture, MDPI, vol. 11(6), pages 1-20, June.
    13. Carmen K.M. Ng & Dara K.Y. Leung & Xinxin Cai & Gloria H.Y. Wong, 2021. "Perceived Help-Seeking Difficulty, Barriers, Delay, and Burden in Carers of People with Suspected Dementia," IJERPH, MDPI, vol. 18(6), pages 1-11, March.
    14. Young Kyung Do & Edward C. Norton & Sally C. Stearns & Courtney Harold Van Houtven, 2015. "Informal Care and Caregiver's Health," Health Economics, John Wiley & Sons, Ltd., vol. 24(2), pages 224-237, February.
    15. Ignacio Gimeno & Sonia Val & María Jesús Cardoso Moreno, 2021. "Relation among Caregivers’ Burden, Abuse and Behavioural Disorder in People with Dementia," IJERPH, MDPI, vol. 18(3), pages 1-16, January.
    16. Sollis, Kate & Yap, Mandy & Campbell, Paul & Biddle, Nicholas, 2022. "Conceptualisations of wellbeing and quality of life: A systematic review of participatory studies," World Development, Elsevier, vol. 160(C).
    17. Costa-Font, Joan & Vilaplana-Prieto, Cristina, 2023. "Caregiving subsidies and spousal early retirement intentions," Journal of Pension Economics and Finance, Cambridge University Press, vol. 22(4), pages 550-589, October.
    18. Bernard Amadei, 2020. "A Systems Approach to Building Community Capacity and Resilience," Challenges, MDPI, vol. 11(2), pages 1-23, October.
    19. Afeez Abiola Hazzan & Pamela Beach & Lauren J. Lieberman & Cassidy Regan, 2023. "Home-Based Pilot Intervention to Improve Quality of Life and Related Outcomes among Unpaid Caregivers and Their Care-Recipients with Visual Impairments," IJERPH, MDPI, vol. 20(5), pages 1-12, February.
    20. José M. Díaz-Puente & José L. Yagüe & Ana Afonso, 2008. "Building Evaluation Capacity in Spain," Evaluation Review, , vol. 32(5), pages 478-506, October.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:17:y:2020:i:16:p:5901-:d:398971. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.