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Italian Consensus Statement on Patient Engagement in Chronic Care: Process and Outcomes

Author

Listed:
  • Guendalina Graffigna

    (EngageMinds Hub – Consumer, Food and Health Engagement Research Center, Department of Psychology, Università Cattolica del Sacro Cuore, 20123 Milan, Italy
    Department of Psychology, Catholic University of Milan, 20123 Milan, Italy)

  • Serena Barello

    (EngageMinds Hub – Consumer, Food and Health Engagement Research Center, Department of Psychology, Università Cattolica del Sacro Cuore, 20123 Milan, Italy
    Department of Psychology, Catholic University of Milan, 20123 Milan, Italy)

  • Giuseppe Riva

    (EngageMinds Hub – Consumer, Food and Health Engagement Research Center, Department of Psychology, Università Cattolica del Sacro Cuore, 20123 Milan, Italy)

  • Massimo Corbo

    (Casa di Cura Privata del Policlinico, 20100 Milan, Italy)

  • Gianfranco Damiani

    (Fondazione Policlinico Universitario A., Gemelli IRCCS, 00168 Roma, Italy
    Faculty of Medicine and Surgery, Università Cattolica del Sacro Cuore, 00168 Roma, Italy)

  • Primiano Iannone

    (Higher Institute of Health, 00168 Rome, Italy)

  • Albino Claudio Bosio

    (EngageMinds Hub – Consumer, Food and Health Engagement Research Center, Department of Psychology, Università Cattolica del Sacro Cuore, 20123 Milan, Italy
    Department of Psychology, Catholic University of Milan, 20123 Milan, Italy)

  • Walter Ricciardi

    (Fondazione Policlinico Universitario A., Gemelli IRCCS, 00168 Roma, Italy
    Faculty of Medicine and Surgery, Università Cattolica del Sacro Cuore, 00168 Roma, Italy)

Abstract

Patient engagement has been recognized as a key priority in chronic care. However, scholars agree that guidelines are needed to ensure effective patient engagement strategies. To this end, a Consensus Conference process was promoted with the following methodological steps: (1) extensive literature review about patient engagement initiatives in chronic care; (2) a stakeholders survey to collect best practices and (3) workshops with experts. On the basis of the information collected, a consensus statement was drafted, revised, and finalized by a panel of select renowned experts. These experts agreed in defining engagement as an eco-systemic concept involving multiple actors all of which contribute to influence patients’ willingness and ability to engage in chronic care. Moreover, experts recommended, whenever possible, to adopt standardized instruments to assess engagement levels and related unmet needs. Then, experts strongly advised appropriate trainings for healthcare professionals about patient engagement strategies. Furthermore, the importance of promoting healthcare professionals’ wellbeing has been advocated. Family caregivers, as well as patients’ organizations - should be trained and engaged to increase the effectiveness of interventions dedicated to patients. Finally, experts agreed that digital technologies should be considered as a crucial enhancer for patient engagement in chronic care.

Suggested Citation

  • Guendalina Graffigna & Serena Barello & Giuseppe Riva & Massimo Corbo & Gianfranco Damiani & Primiano Iannone & Albino Claudio Bosio & Walter Ricciardi, 2020. "Italian Consensus Statement on Patient Engagement in Chronic Care: Process and Outcomes," IJERPH, MDPI, vol. 17(11), pages 1-27, June.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:11:p:4167-:d:370183
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    References listed on IDEAS

    as
    1. Christopher Duke & Wendy Lynch & Brad Smith & Julie Winstanley, 2015. "Validity of a New Patient Engagement Measure: The Altarum Consumer Engagement (ACE) Measure™," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 8(6), pages 559-568, December.
    2. Wendy Hardyman & Kate L. Daunt & Martin Kitchener, 2015. "Value Co-Creation through Patient Engagement in Health Care: A micro-level approach and research agenda," Public Management Review, Taylor & Francis Journals, vol. 17(1), pages 90-107, January.
    3. Christopher Duke & Wendy Lynch & Brad Smith & Julie Winstanley, 2015. "Erratum to: Validity of a New Patient Engagement Measure: The Altarum Consumer Engagement (ACE) Measure™," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 8(6), pages 569-569, December.
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    Cited by:

    1. Vincenza Capone & Roberta Borrelli & Leda Marino & Giovanni Schettino, 2022. "Mental Well-Being and Job Satisfaction of Hospital Physicians during COVID-19: Relationships with Efficacy Beliefs, Organizational Support, and Organizational Non-Technical Skills," IJERPH, MDPI, vol. 19(6), pages 1-18, March.
    2. Angela Tolotti & Serena Barello & Camilla Vignaduzzo & Sarah Jayne Liptrott & Dario Valcarenghi & Tiziana Nania & Davide Sari & Loris Bonetti, 2022. "Patient Engagement in Oncology Practice: A Qualitative Study on Patients’ and Nurses’ Perspectives," IJERPH, MDPI, vol. 19(18), pages 1-17, September.
    3. Federico Pennestrì & Giuseppe Banfi, 2022. "The Experience of Patients in Chronic Care Management: Applications in Health Technology Assessment (HTA) and Value for Public Health," IJERPH, MDPI, vol. 19(16), pages 1-8, August.

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