IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v16y2019i19p3722-d273071.html
   My bibliography  Save this article

A Community-Based Participatory Action Research for Roma Health Justice in a Deprived District in Spain

Author

Listed:
  • Daniela E. Miranda

    (CESPYD, Coalition for the Study of Health, Power and Diversity, Department of Social Psychology, Universidad de Sevilla, Seville 41018, Spain)

  • Manuel Garcia-Ramirez

    (CESPYD, Coalition for the Study of Health, Power and Diversity, Department of Social Psychology, Universidad de Sevilla, Seville 41018, Spain)

  • Fabricio E. Balcazar

    (Department of Disability and Human Development, University of Illinois at Chicago, Chicago, IL 60608, USA)

  • Yolanda Suarez-Balcazar

    (Department of Occupational Therapy, University of Illinois at Chicago, Chicago, Il 60612, USA)

Abstract

Addressing health disparities and promoting health equity for Roma has been a challenge. The Roma are the largest disadvantaged ethnic minority population in Europe and have been the victims of deep social and economic injustices, institutional discrimination, and structural antigypsyism over many centuries. This has resulted in a much worse health status than their non-Roma counterparts. Current strategies based on ameliorative and top-down approaches to service delivery have resulted in paradoxical effects that solidify health disparities, since they do not effectively address the problems of vulnerable Roma groups. Following a health justice approach, we present a community-based participatory action research case study generated by a community and university partnership intended to address power imbalances and build collaboration among local stakeholders. This case study involved a group of health providers, Roma residents, researchers, Roma community organizations, and other stakeholders in the Poligono Sur, a neighborhood of Seville, Spain. The case study comprises four phases: (1) identifying Roma health assets, (2) empowering Roma community through sociopolitical awareness, (3) promoting alliances between Roma and community resources/institutions, and (4) building a common agenda for promoting Roma health justice. We highlighted best practices for developing processes to influence Roma health equity in local health policy agendas.

Suggested Citation

  • Daniela E. Miranda & Manuel Garcia-Ramirez & Fabricio E. Balcazar & Yolanda Suarez-Balcazar, 2019. "A Community-Based Participatory Action Research for Roma Health Justice in a Deprived District in Spain," IJERPH, MDPI, vol. 16(19), pages 1-22, October.
    • Handle: RePEc:gam:jijerp:v:16:y:2019:i:19:p:3722-:d:273071
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/16/19/3722/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/1660-4601/16/19/3722/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. de Freitas, Cláudia & Martin, Graham, 2015. "Inclusive public participation in health: Policy, practice and theoretical contributions to promote the involvement of marginalised groups in healthcare," Social Science & Medicine, Elsevier, vol. 135(C), pages 31-39.
    2. Escobar-Ballesta, M. & García-Ramírez, M. & De Freitas, C., 2018. "Taking stock of Roma health policies in Spain: Lessons for health governance," Health Policy, Elsevier, vol. 122(4), pages 444-451.
    3. Benjamin Cook & Geoffrey Wayne & Anne Valentine & Anna Lessios & Ethan Yeh, 2013. "Revisiting the evidence on health and health care disparities among the Roma: a systematic review 2003–2012," International Journal of Public Health, Springer;Swiss School of Public Health (SSPH+), vol. 58(6), pages 885-911, December.
    4. János Sándor & Zsigmond Kósa & Klára Boruzs & Julianna Boros & Ildikó Tokaji & Martin McKee & Róza Ádány, 2017. "Erratum to: The decade of Roma Inclusion: did it make a difference to health and use of health care services?," International Journal of Public Health, Springer;Swiss School of Public Health (SSPH+), vol. 62(7), pages 817-817, September.
    5. Wallerstein, N. & Duran, B., 2010. "Community-based participatory research contributions to intervention research: The intersection of science and practice to improve health equity," American Journal of Public Health, American Public Health Association, vol. 100(S1), pages 40-46.
    6. Joshi, Anuradha, 2017. "Legal Empowerment and Social Accountability: Complementary Strategies Toward Rights-based Development in Health?," World Development, Elsevier, vol. 99(C), pages 160-172.
    7. Dimova, Antoniya & Rohova, Maria & Hasardzhiev, Stanimir & Spranger, Anne, 2018. "An innovative approach to participatory health policy development in Bulgaria: The conception and first achievements of the Partnership for Health," Health Policy, Elsevier, vol. 122(2), pages 81-86.
    8. János Sándor & Zsigmond Kósa & Klára Boruzs & Julianna Boros & Ildikó Tokaji & Martin McKee & Róza Ádány, 2017. "The decade of Roma Inclusion: did it make a difference to health and use of health care services?," International Journal of Public Health, Springer;Swiss School of Public Health (SSPH+), vol. 62(7), pages 803-815, September.
    9. Emilia Aiello & Ainhoa Flecha & Olga Serradell, 2018. "Exploring the Barriers: A Qualitative Study about the Experiences of Mid-SES Roma Navigating the Spanish Healthcare System," IJERPH, MDPI, vol. 15(2), pages 1-19, February.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. María Sanz-Remacha & Alberto Aibar & Ángel Abós & Eduardo Generelo-Lanaspa & Luis García-González, 2022. "A Community-Based Participatory Action Research with Women from Disadvantaged Populations: Strengths and Weaknesses of a Multiple Health Behaviour Change Intervention," IJERPH, MDPI, vol. 19(11), pages 1-20, June.
    2. Riikka Lämsä & Anu E. Castaneda & Anneli Weiste & Marianne Laalo & Päivikki Koponen & Hannamaria Kuusio, 2020. "The Role of Perceived Unjust Treatment in Unmet Needs for Primary Care Among Finnish Roma Adults," IJERPH, MDPI, vol. 17(16), pages 1-15, August.
    3. Barbara Pavlikova & Lenka Freel & Jitse P. van Dijk, 2020. "To Comply or Not to Comply: Roma Approach to Health Laws," IJERPH, MDPI, vol. 17(9), pages 1-13, April.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Escobar-Ballesta, M. & García-Ramírez, M. & De Freitas, C., 2018. "Taking stock of Roma health policies in Spain: Lessons for health governance," Health Policy, Elsevier, vol. 122(4), pages 444-451.
    2. Benjamin Lê Cook & Ana Progovac & Nathaniel Tran, 2019. "Improving the mental health of Roma through research and policies that cross multiple social sectors," International Journal of Public Health, Springer;Swiss School of Public Health (SSPH+), vol. 64(7), pages 979-980, September.
    3. Viola Sallay & Tamás Martos & Lilla Lucza & Orsolya Papp-Zipernovszky & Márta Csabai, 2023. "Health Psychology Services for People in Disadvantaged Regions of Hungary: Experiences from the Primary Health Care Development Model Program," IJERPH, MDPI, vol. 20(5), pages 1-15, February.
    4. János Sándor & Anita Pálinkás & Ferenc Vincze & Nóra Kovács & Valéria Sipos & László Kőrösi & Zsófia Falusi & László Pál & Gergely Fürjes & Magor Papp & Róza Ádány, 2018. "Healthcare Utilization and All-Cause Premature Mortality in Hungarian Segregated Roma Settlements: Evaluation of Specific Indicators in a Cross-Sectional Study," IJERPH, MDPI, vol. 15(9), pages 1-13, August.
    5. Róza Ádány & Péter Pikó & Szilvia Fiatal & Zsigmond Kósa & János Sándor & Éva Bíró & Karolina Kósa & György Paragh & Éva Bácsné Bába & Ilona Veres-Balajti & Klára Bíró & Orsolya Varga & Margit Balázs, 2020. "Prevalence of Insulin Resistance in the Hungarian General and Roma Populations as Defined by Using Data Generated in a Complex Health (Interview and Examination) Survey," IJERPH, MDPI, vol. 17(13), pages 1-22, July.
    6. Éva Bácsné Bába & Péter Pikó & Anetta Müller & Gergely Ráthonyi & Péter Balogh & Zsigmond Kósa & Nóra Kovács & János Sándor & Róza Ádány & Zoltán Bács, 2022. "Physical Activity Pattern Characterized by Domains and Dimensions of the Roma Population in Comparison with That of the General Population in Northeast Hungary," IJERPH, MDPI, vol. 19(6), pages 1-14, March.
    7. María Sanz-Remacha & Alberto Aibar & Ángel Abós & Eduardo Generelo-Lanaspa & Luis García-González, 2022. "A Community-Based Participatory Action Research with Women from Disadvantaged Populations: Strengths and Weaknesses of a Multiple Health Behaviour Change Intervention," IJERPH, MDPI, vol. 19(11), pages 1-20, June.
    8. Mohammed Merzah & Zsigmond Kósa & János Sándor & Shewaye Natae & Péter Pikó & Róza Ádány & Szilvia Fiatal, 2021. "Roma Socioeconomic Status Has a Higher Impact on Smoking Behaviour than Genetic Susceptibility," IJERPH, MDPI, vol. 18(6), pages 1-12, March.
    9. Lotte Prevo & Stef Kremers & Maria Jansen, 2020. "Small Successes Make Big Wins: A Retrospective Case Study towards Community Engagement of Low-SES Families," IJERPH, MDPI, vol. 17(2), pages 1-13, January.
    10. Held, Suzanne & Hallett, John & Schure, Mark & Knows His Gun McCormick, Alma & Allen, Sarah & Milne-Price, Shauna & Trottier, Coleen & Bull Shows, Brianna & Other Medicine, Lucille & Inouye, Jillian, 2019. "Improving chronic illness self-management with the Apsáalooke Nation: Development of the Báa nnilah program," Social Science & Medicine, Elsevier, vol. 242(C).
    11. Mayer, Yael & Ilan, Rotem & Slone, Michelle & Lurie, Ido, 2020. "Relations between traumatic life events and mental health of Eritrean asylum-seeking mothers and their children's mental health," Children and Youth Services Review, Elsevier, vol. 116(C).
    12. Katrina G. Claw & Casey R. Dorr & Erica L. Woodahl, 2024. "Implementing community-engaged pharmacogenomics in Indigenous communities," Nature Communications, Nature, vol. 15(1), pages 1-5, December.
    13. Barbara Pavlikova & Lenka Freel & Jitse P. van Dijk, 2020. "To Comply or Not to Comply: Roma Approach to Health Laws," IJERPH, MDPI, vol. 17(9), pages 1-13, April.
    14. Rachel M. Gisselquist, 2018. "Legal empowerment and group-based inequality," WIDER Working Paper Series 039, World Institute for Development Economic Research (UNU-WIDER).
    15. Dana H. Z. Williamson & Sheryl Good & Daphne Wilson & Na’Taki Osborne Jelks & Dayna A. Johnson & Kelli A. Komro & Michelle C. Kegler, 2023. "Using the Collaborative Problem-Solving Model: Findings from an Evaluation of U.S. EPA’s Environmental Justice Academy," Sustainability, MDPI, vol. 15(20), pages 1-24, October.
    16. Meena Daivadanam & Maia Ingram & Kristi Sidney Annerstedt & Gary Parker & Kirsty Bobrow & Lisa Dolovich & Gillian Gould & Michaela Riddell & Rajesh Vedanthan & Jacqui Webster & Pilvikki Absetz & Helle, 2019. "The role of context in implementation research for non-communicable diseases: Answering the ‘how-to’ dilemma," PLOS ONE, Public Library of Science, vol. 14(4), pages 1-22, April.
    17. Ullrich-French, Sarah & Cole, Amy N. & Montgomery, Anna K., 2016. "Evaluation development for a physical activity positive youth development program for girls," Evaluation and Program Planning, Elsevier, vol. 55(C), pages 67-76.
    18. Adrian Mallory & Anna Mdee & Dorice Agol & Leonie Hyde‐Smith & Domenic Kiogora & Joy Riungu & Alison Parker, 2022. "The potential for scaling up container‐based sanitation in informal settlements in Kenya," Journal of International Development, John Wiley & Sons, Ltd., vol. 34(7), pages 1347-1361, October.
    19. Jelena Čvorović & Kathryn Coe, 2017. "Reproductive Investment and Health Costs in Roma Women," IJERPH, MDPI, vol. 14(11), pages 1-12, November.
    20. Ebitu, Larmbert & Avery, Helen & Mourad, Khaldoon A. & Enyetu, Joshua, 2021. "Citizen science for sustainable agriculture – A systematic literature review," Land Use Policy, Elsevier, vol. 103(C).

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:16:y:2019:i:19:p:3722-:d:273071. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.