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Community-engaged process to adapt evidence-based programs for parents of children with autism spectrum disorder

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  • Yingling, Marissa E.
  • Hock, Robert M.
  • Feinberg, Mark E.
  • Holbert, Amy A.

Abstract

The purpose of this paper is to describe a community-engaged evidence-based program (EBP) adaptation process informed by existing frameworks that incorporates program theory and recommendations from professionals and members of the target population, or parents of children with autism spectrum disorder (ASD). To inform adaptation, we conducted qualitative interviews, recorded detailed process notes, convened an implementation team, and completed a pilot study of the adapted program. We present a five-phase, systematic adaptation process that resulted in Autism Parent Navigators, a 6-week in-home coparenting program delivered by peer support parents to parents of young children recently diagnosed with ASD. The adaptation process highlighted could be used to adapt other EBPs for ASD. Future research on adaptation processes used in community contexts is imperative to maximize the potential for EBPs to improve well-being for children with ASD and their parents.

Suggested Citation

  • Yingling, Marissa E. & Hock, Robert M. & Feinberg, Mark E. & Holbert, Amy A., 2020. "Community-engaged process to adapt evidence-based programs for parents of children with autism spectrum disorder," Children and Youth Services Review, Elsevier, vol. 112(C).
    • Handle: RePEc:eee:cysrev:v:112:y:2020:i:c:s0190740919313064
    DOI: 10.1016/j.childyouth.2020.104876
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    References listed on IDEAS

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    1. Wallerstein, N. & Duran, B., 2010. "Community-based participatory research contributions to intervention research: The intersection of science and practice to improve health equity," American Journal of Public Health, American Public Health Association, vol. 100(S1), pages 40-46.
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