IDEAS home Printed from https://ideas.repec.org/a/eee/cysrev/v112y2020ics0190740919313064.html
   My bibliography  Save this article

Community-engaged process to adapt evidence-based programs for parents of children with autism spectrum disorder

Author

Listed:
  • Yingling, Marissa E.
  • Hock, Robert M.
  • Feinberg, Mark E.
  • Holbert, Amy A.

Abstract

The purpose of this paper is to describe a community-engaged evidence-based program (EBP) adaptation process informed by existing frameworks that incorporates program theory and recommendations from professionals and members of the target population, or parents of children with autism spectrum disorder (ASD). To inform adaptation, we conducted qualitative interviews, recorded detailed process notes, convened an implementation team, and completed a pilot study of the adapted program. We present a five-phase, systematic adaptation process that resulted in Autism Parent Navigators, a 6-week in-home coparenting program delivered by peer support parents to parents of young children recently diagnosed with ASD. The adaptation process highlighted could be used to adapt other EBPs for ASD. Future research on adaptation processes used in community contexts is imperative to maximize the potential for EBPs to improve well-being for children with ASD and their parents.

Suggested Citation

  • Yingling, Marissa E. & Hock, Robert M. & Feinberg, Mark E. & Holbert, Amy A., 2020. "Community-engaged process to adapt evidence-based programs for parents of children with autism spectrum disorder," Children and Youth Services Review, Elsevier, vol. 112(C).
    • Handle: RePEc:eee:cysrev:v:112:y:2020:i:c:s0190740919313064
    DOI: 10.1016/j.childyouth.2020.104876
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0190740919313064
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.childyouth.2020.104876?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Wallerstein, N. & Duran, B., 2010. "Community-based participatory research contributions to intervention research: The intersection of science and practice to improve health equity," American Journal of Public Health, American Public Health Association, vol. 100(S1), pages 40-46.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Held, Suzanne & Hallett, John & Schure, Mark & Knows His Gun McCormick, Alma & Allen, Sarah & Milne-Price, Shauna & Trottier, Coleen & Bull Shows, Brianna & Other Medicine, Lucille & Inouye, Jillian, 2019. "Improving chronic illness self-management with the Apsáalooke Nation: Development of the Báa nnilah program," Social Science & Medicine, Elsevier, vol. 242(C).
    2. Katrina G. Claw & Casey R. Dorr & Erica L. Woodahl, 2024. "Implementing community-engaged pharmacogenomics in Indigenous communities," Nature Communications, Nature, vol. 15(1), pages 1-5, December.
    3. Heather Lochotzki & Karen Patricia Williams & Cynthia G. Colen & Olorunfemi Adetona & Charleta B. Tavares & Georgina M. Ginn & Rejeana Haynes & Wansoo Im & Tanya Bils & Darryl B. Hood, 2022. "A Framework for Interfacing and Partnering with Environmental Justice Communities as a Prelude to Human Health and Hazard Identification in the Vulnerable Census Tracts of Columbus, Ohio," IJERPH, MDPI, vol. 19(21), pages 1-18, October.
    4. Tabia Henry Akintobi & Payam Sheikhattari & Emma Shaffer & Christina L. Evans & Kathryn L. Braun & Angela U. Sy & Bibiana Mancera & Adriana Campa & Stephania T. Miller & Daniel Sarpong & Rhonda Hollid, 2021. "Community Engagement Practices at Research Centers in U.S. Minority Institutions: Priority Populations and Innovative Approaches to Advancing Health Disparities Research," IJERPH, MDPI, vol. 18(12), pages 1-14, June.
    5. Scholz, Roland W. & Czichos, Reiner & Parycek, Peter & Lampoltshammer, Thomas J., 2020. "Organizational vulnerability of digital threats: A first validation of an assessment method," European Journal of Operational Research, Elsevier, vol. 282(2), pages 627-643.
    6. Shelley Gower & Zakia Jeemi & David Forbes & Paul Kebble & Jaya A. R. Dantas, 2022. "Peer Mentoring Programs for Culturally and Linguistically Diverse Refugee and Migrant Women: An Integrative Review," IJERPH, MDPI, vol. 19(19), pages 1-18, October.
    7. Kristine Wray & Akarath Soukhaphon & Brenda Parlee & Amabel D’Souza & Carolina Freitas & Iria Heredia & Chelsea Martin & Carrie Oloriz & Tracey Proverbs & Neal Spicer, 2020. "Aligning Intentions with Community: Graduate Students Reflect on Collaborative Methodologies with Indigenous Research Partners," Sustainability, MDPI, vol. 12(18), pages 1-19, September.
    8. Adams, Wallis E., 2020. "Unintended consequences of institutionalizing peer support work in mental healthcare," Social Science & Medicine, Elsevier, vol. 262(C).
    9. Lotte Prevo & Stef Kremers & Maria Jansen, 2020. "The Power of Trading: Exploring the Value of a Trading Shop as a Health-Promoting Community Engagement Approach," IJERPH, MDPI, vol. 17(13), pages 1-15, June.
    10. Jessica A. Thomas & Emma R. Miller & Paul R. Ward, 2022. "Lifestyle Interventions through Participatory Research: A Mixed-Methods Systematic Review of Alcohol and Other Breast Cancer Behavioural Risk Factors," IJERPH, MDPI, vol. 19(2), pages 1-14, January.
    11. Leonor Mercedes Ward & Mary Janet Hill & Nikashant Antane & Samia Chreim & Anita Olsen Harper & Samantha Wells, 2021. "“The Land Nurtures Our Spirit”: Understanding the Role of the Land in Labrador Innu Wellbeing," IJERPH, MDPI, vol. 18(10), pages 1-13, May.
    12. Danielle Whicher & Julia Alamillo & Lexi Ouellette & Breyon Williams, "undated". "Engaging Community Members in Evaluations of Healthy Marriage and Responsible Fatherhood Programs," Mathematica Policy Research Reports 9ec8c65652bb470c897399292, Mathematica Policy Research.
    13. Kaplan, Deanna M. & deBlois, Madeleine & Dominguez, Violeta & Walsh, Michele E., 2016. "Studying the teaching of kindness: A conceptual model for evaluating kindness education programs in schools," Evaluation and Program Planning, Elsevier, vol. 58(C), pages 160-170.
    14. Anthony L. Burrow, 2023. "Beyond Finding Purpose: Motivating a Translational Science of Purpose Acquisition," IJERPH, MDPI, vol. 20(12), pages 1-11, June.
    15. Rebecca L. Vidra & Deborah R. Gallagher & Victoria Wilson, 2019. "Acknowledging the challenges of pedagogical innovation: the case of integrating research, teaching, and the practice of environmental leadership," Journal of Environmental Studies and Sciences, Springer;Association of Environmental Studies and Sciences, vol. 9(3), pages 270-275, September.
    16. Chia-Hui Hou, 2024. "Sustainable and Collaborative Health Promotion in Urban Communities: Practical Implementation and Outcomes Based on Community Capital," Sustainability, MDPI, vol. 16(20), pages 1-15, October.
    17. Neha Hippalgaonkar & Ryan Huu-Tuan Nguyen & Eliza Brumer Cohn & Joseph Horowitz & Ana Williams Waite & Tigist Mersha & Christen Sandoval & Sarah Khan & Kauthar Salum & Paris Thomas & Anne Marie Murphy, 2024. "Are We the Problem? A Call to Action for Addressing Institutional Challenges to Engaging Community Partners in Research," IJERPH, MDPI, vol. 21(2), pages 1-6, February.
    18. Switzer, S. & Guta, A. & de Prinse, K. & Chan Carusone, S. & Strike, C., 2015. "Visualizing harm reduction: Methodological and ethical considerations," Social Science & Medicine, Elsevier, vol. 133(C), pages 77-84.
    19. Dave, Gaurav & Frerichs, Leah & Jones, Jennifer & Kim, Mimi & Schaal, Jennifer & Vassar, Stefanie & Varma, Deepthi & Striley, Catherine & Ruktanonchai, Corrine & Black, Adina & Hankins, Jennifer & Lov, 2018. "Conceptualizing trust in community-academic research partnerships using concept mapping approach: A multi-CTSA study," Evaluation and Program Planning, Elsevier, vol. 66(C), pages 70-78.
    20. Daniela E. Miranda & Manuel Garcia-Ramirez & Fabricio E. Balcazar & Yolanda Suarez-Balcazar, 2019. "A Community-Based Participatory Action Research for Roma Health Justice in a Deprived District in Spain," IJERPH, MDPI, vol. 16(19), pages 1-22, October.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:cysrev:v:112:y:2020:i:c:s0190740919313064. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/locate/childyouth .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.