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The conceptualization and measurement of quality of life: Implications for program planning and evaluation in the field of intellectual disabilities

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  • Schalock, Robert L.
  • Bonham, Gordon S.
  • Verdugo, Miguel A.

Abstract

The concept of quality of life (QOL) is increasingly being used in the field of intellectual disabilities as a conceptual and measurement framework for program planning and evaluation. This article describes the development of a QOL conceptual and measurement framework, and summarizes how this framework is currently being used both nationally and internationally to assess and report personal QOL-related outcomes, to guide quality improvement strategies, and to evaluate the effectiveness of those strategies. Implications of such use are discussed, including those related to understanding mental models, developing internal data systems, supporting organization change, and building on current public policies. The article concludes with reference to the evolving nature of the QOL concept and the impact of this on model development and transdisciplinary research.

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  • Schalock, Robert L. & Bonham, Gordon S. & Verdugo, Miguel A., 2008. "The conceptualization and measurement of quality of life: Implications for program planning and evaluation in the field of intellectual disabilities," Evaluation and Program Planning, Elsevier, vol. 31(2), pages 181-190, May.
    • Handle: RePEc:eee:epplan:v:31:y:2008:i:2:p:181-190
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    References listed on IDEAS

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    Cited by:

    1. Pedro Gerber Machado & Arnaldo Walter & Michelle Cristina Picoli & Cristina Gerber João, 2017. "Potential impacts on local quality of life due to sugarcane expansion: a case study based on panel data analysis," Environment, Development and Sustainability: A Multidisciplinary Approach to the Theory and Practice of Sustainable Development, Springer, vol. 19(5), pages 2069-2092, October.
    2. Schalock, Robert L. & Verdugo, Miguel Angel & Gomez, Laura E., 2011. "Evidence-based practices in the field of intellectual and developmental disabilities: An international consensus approach," Evaluation and Program Planning, Elsevier, vol. 34(3), pages 273-282, August.
    3. Cristina Simões & Sofia Santos, 2017. "The Impact of Personal and Environmental Characteristics on Quality of Life of People with Intellectual Disability," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 12(2), pages 389-408, June.
    4. Gómez, Laura E. & Verdugo, Miguel Ángel & Arias, Benito & Navas, Patricia & Schalock, Robert L., 2013. "The development and use of Provider Profiles at the organizational and systems level," Evaluation and Program Planning, Elsevier, vol. 40(C), pages 17-26.
    5. Nele Van Hecke & Claudia Claes & Wouter Vanderplasschen & Jessica De Maeyer & Nico De Witte & Stijn Vandevelde, 2018. "Conceptualisation and Measurement of Quality of Life Based on Schalock and Verdugo’s Model: A Cross-Disciplinary Review of the Literature," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 137(1), pages 335-351, May.
    6. Lore Van Damme & Wouter Vanderplasschen & Clare-Ann Fortune & Stijn Vandevelde & Olivier F. Colins, 2021. "Determinants of Female Adolescents’ Quality of Life Before, during and after Detention: a Four-Wave Follow-Up Study Examining a Theory of Individual Quality of Life," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 16(1), pages 401-434, February.
    7. Julie Poláčková & Andrea Jindrová, 2011. "Assessment of subjective aspects of the quality of life in the various regions of the Czech Republic," Acta Universitatis Agriculturae et Silviculturae Mendelianae Brunensis, Mendel University Press, vol. 59(7), pages 267-274.
    8. Schalock, Robert L. & Verdugo, Miguel Angel & van Loon, Jos, 2018. "Understanding organization transformation in evaluation and program planning," Evaluation and Program Planning, Elsevier, vol. 67(C), pages 53-60.
    9. María Fernández & Miguel Ángel Verdugo & Laura E. Gómez & Virginia Aguayo & Benito Arias, 2018. "Core Indicators to Assess Quality of Life in Population with Brain Injury," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 137(2), pages 813-828, June.

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