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“I don't feel shy because I will be among others who are just like me…”: The role of support groups for children perinatally infected with HIV in Zimbabwe

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  • Mupambireyi, Zivai
  • Bernays, Sarah
  • Bwakura-Dangarembizi, Mutsa
  • Cowan, Frances M.

Abstract

As access to paediatric antiretroviral therapy (ART) continues to improve in sub-Saharan Africa, a new historically specific cohort of HIV-perinatally infected children surviving into adolescent has emerged. Although remarkable successes have been made clinically in keeping this cohort alive and in reasonable health, their social support experiences are still unknown. The research being reported here sought to explore peer social support experiences of HIV-perinatally infected children in Harare, Zimbabwe. In this article, we draw on 56 repeat in-depth interviews (IDIs) conducted in three phases and two focus group discussions (FGDs) with HIV-infected children (11–13years). Additional interviews were held with 10 carers. Study findings suggested that both children and carers perceive support groups as a safe social space for learning and acquiring HIV information as well as gaining confidence. Additionally, findings highlighted the importance of consistency of participation. Structural and personal barriers to access and participation in support group were also identified. We conclude that support groups are a useful resource for HIV-infected children and therefore should be supported by stable funding.

Suggested Citation

  • Mupambireyi, Zivai & Bernays, Sarah & Bwakura-Dangarembizi, Mutsa & Cowan, Frances M., 2014. "“I don't feel shy because I will be among others who are just like me…”: The role of support groups for children perinatally infected with HIV in Zimbabwe," Children and Youth Services Review, Elsevier, vol. 45(C), pages 106-113.
    • Handle: RePEc:eee:cysrev:v:45:y:2014:i:c:p:106-113
    DOI: 10.1016/j.childyouth.2014.03.026
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    References listed on IDEAS

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    1. Campbell, Catherine & Skovdal, Morten & Mupambireyi, Zivai & Gregson, Simon, 2010. "Exploring children's stigmatisation of AIDS-affected children in Zimbabwe through drawings and stories," Social Science & Medicine, Elsevier, vol. 71(5), pages 975-985, September.
    2. Scambler, Graham & Paoli, Frederique, 2008. "Health work, female sex workers and HIV/AIDS: Global and local dimensions of stigma and deviance as barriers to effective interventions," Social Science & Medicine, Elsevier, vol. 66(8), pages 1848-1862, April.
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    Cited by:

    1. Lut, Irina & Evangeli, Michael & Ely, Amanda, 2017. "“When I went to camp, it made me free”: A longitudinal qualitative study of a residential intervention for adolescents living with HIV in the UK," Children and Youth Services Review, Elsevier, vol. 79(C), pages 426-431.
    2. Woollett, Nataly & Cluver, Lucie & Hatcher, Abigail M. & Brahmbhatt, Heena, 2016. "“To be HIV positive is not the end of the world”: Resilience among perinatally infected HIV positive adolescents in Johannesburg," Children and Youth Services Review, Elsevier, vol. 70(C), pages 269-275.

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