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Getting the Most out of PROMs: Putting Health Outcomes at the Heart of NHS Decision-Making

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  • Nancy Devlin;John Appleby

Abstract

In 2009, the English NHS began collecting patient-reported outcome measures (PROMs) for four elective procedures. Using a series of structured questions that ask patients about their health from their point of view, PROMs are intended to enable the patient perspective to inform decision-making at all levels of the NHS. This publication is a clearly written, comprehensive review of the practical issues involved in creating reliable PROMs, in presenting results both accurately and in usable formats, and in applying them in making choices. The review includes a primer on PROMs and a summary of insights from the private sector’s (Bupa) experience with using PROMs under a program initiated in 1998.

Suggested Citation

  • Nancy Devlin;John Appleby, 2010. "Getting the Most out of PROMs: Putting Health Outcomes at the Heart of NHS Decision-Making," Monograph 000220, Office of Health Economics.
    • Handle: RePEc:ohe:monogr:000220
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    File URL: https://www.ohe.org/publications/getting-most-out-proms-putting-health-outcomes-heart-nhs-decision-making/attachment-328-getting_the_most_3-2009/
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    Cited by:

    1. Bischof, Anja & Salvi, Irene & Kuklinski, David & Vogel, Justus & Geissler, Alexander, 2023. "Design Principles of Clinical Dashboards Incorporating PROMs: Crafting and Elaborating the Potential of Clinical Dashboards Incorporating PROMs," Working Paper Series in Health Economics, Management and Policy 2023-05, University of St.Gallen, School of Medicine, Chair of Health Economics, Policy and Management.
    2. Stirling Bryan & Craig Mitton & Cam Donaldson, 2014. "Breaking The Addiction To Technology Adoption," Health Economics, John Wiley & Sons, Ltd., vol. 23(4), pages 379-383, April.
    3. Moula, Zoe & Aithal, Supritha & Karkou, Vicky & Powell, Joanne, 2020. "A systematic review of child-focused outcomes and assessments of arts therapies delivered in primary mainstream schools," Children and Youth Services Review, Elsevier, vol. 112(C).
    4. Ole Marten & Wolfgang Greiner, 2022. "Feasibility properties of the EQ-5D-3L and 5L in the general population: evidence from the GP Patient Survey on the impact of age," Health Economics Review, Springer, vol. 12(1), pages 1-10, December.
    5. Sarah Derrett & Mike Herdman & Lucky G. Ngwira & Elizabeth Yohe Moore & Jennifer Jelsma, 2021. "A New Approach to Assessing Children’s Interpretation of Severity Qualifiers in a Multi-Attribute Utility Instrument–The EQ-5D-Y-5L: Development and Testing," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 14(5), pages 591-600, September.
    6. Nancy J. Devlin & Koonal K. Shah & Yan Feng & Brendan Mulhern & Ben van Hout, 2018. "Valuing health‐related quality of life: An EQ‐5D‐5L value set for England," Health Economics, John Wiley & Sons, Ltd., vol. 27(1), pages 7-22, January.
    7. Minvielle, E. & Fierobe, A. & Fourcade, A. & Ferrua, M. & di Palma, M. & Scotté, F. & Mir, O., 2023. "The use of patient-reported outcome and experience measures for health policy purposes: A scoping review in oncology," Health Policy, Elsevier, vol. 129(C).
    8. Milena Vainieri & Guido Noto & Francesca Ferre & Laura C. Rosella, 2020. "A Performance Management System in Healthcare for All Seasons?," IJERPH, MDPI, vol. 17(15), pages 1-10, August.
    9. K. Klose & S. Kreimeier & U. Tangermann & I. Aumann & K. Damm, 2016. "Patient- and person-reports on healthcare: preferences, outcomes, experiences, and satisfaction – an essay," Health Economics Review, Springer, vol. 6(1), pages 1-11, December.
    10. Laika Köse Tamer & Gülten Sucu Dağ, 2020. "The Assessment of Pain and the Quality of Postoperative Pain Management in Surgical Patients," SAGE Open, , vol. 10(2), pages 21582440209, May.
    11. Kirstie L. Haywood & Roger Wilson & Sophie Staniszewska & Sam Salek, 2016. "Using PROMs in Healthcare: Who Should Be in the Driving Seat—Policy Makers, Health Professionals, Methodologists or Patients?," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 9(6), pages 495-498, December.
    12. Nancy J. Devlin & David Parkin & John Browne, 2010. "Patient‐reported outcome measures in the NHS: new methods for analysing and reporting EQ‐5D data," Health Economics, John Wiley & Sons, Ltd., vol. 19(8), pages 886-905, August.
    13. Madhavan, Naveen & White, Gareth R.T. & Jones, Paul, 2023. "Identifying the value of a clinical information system during the COVID-19 pandemic," Technovation, Elsevier, vol. 120(C).
    14. Anabela Coelho & Candan Kendir & Eliana Barrenho & Niek Klazinga & Cláudia Paiva & Joaquim Abreu de Sousa & Salomé Gonçalves-Monteiro & Patrícia Redondo & Ana Bastos & Armanda Nogueira & Fábio Botelho, 2023. "Patient-Reported Outcomes and Experiences Assessment in Women with Breast Cancer: Portuguese Case Study," IJERPH, MDPI, vol. 20(4), pages 1-11, February.
    15. Zoe Moula & Nicola Walshe & Elsa Lee, 2021. "Making Nature Explicit in Children’s Drawings of Wellbeing and Happy Spaces," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 14(4), pages 1653-1675, August.
    16. Max W de Graaf & Inge H F Reininga & Erik Heineman & Mostafa El Moumni, 2019. "The development and internal validation of a model to predict functional recovery after trauma," PLOS ONE, Public Library of Science, vol. 14(3), pages 1-16, March.
    17. Elizabeth Lumley & Patrick Phillips & Ahmed Aber & Helen Buckley‐Woods & Georgina L. Jones & Jonathan A. Michaels, 2019. "Experiences of living with varicose veins: A systematic review of qualitative research," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(7-8), pages 1085-1099, April.
    18. Paul F M Krabbe, 2013. "A Generalized Measurement Model to Quantify Health: The Multi-Attribute Preference Response Model," PLOS ONE, Public Library of Science, vol. 8(11), pages 1-12, November.
    19. Matthew Skellern, 2017. "The hospital as a multi-product firm: the effect of hospital competition on value-added indicators of clinical quality," CEP Discussion Papers dp1484, Centre for Economic Performance, LSE.
    20. Michela Luciana Luisa Zini & Giuseppe Banfi, 2021. "A Narrative Literature Review of Bias in Collecting Patient Reported Outcomes Measures (PROMs)," IJERPH, MDPI, vol. 18(23), pages 1-12, November.
    21. Wei-Han Cheng & Haridarshan Patel & Wan-Ju Lee & Fang-Ju Lin & A. Pickard, 2015. "Positive Outcomes of Varicose Vein Surgery: The Patient Perspective," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 8(4), pages 329-337, August.
    22. Leah Couzner & Maria Crotty & Richard Norman & Julie Ratcliffe, 2013. "A Comparison of the EQ-5D-3L and ICECAP-O in an Older Post-Acute Patient Population Relative to the General Population," Applied Health Economics and Health Policy, Springer, vol. 11(4), pages 415-425, August.
    23. Deepa Jahagirdar & Thilo Kroll & Karen Ritchie & Sally Wyke, 2013. "Patient-Reported Outcome Measures for Chronic Obstructive Pulmonary Disease," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 6(1), pages 11-21, March.
    24. David Nuttall & David Parkin & Nancy Devlin, 2015. "Inter‐Provider Comparison Of Patient‐Reported Outcomes: Developing An Adjustment To Account For Differences In Patient Case Mix," Health Economics, John Wiley & Sons, Ltd., vol. 24(1), pages 41-54, January.

    More about this item

    Keywords

    Getting the Most out of PROMs: Putting Health Outcomes at the Heart of NHS Decision-Making;

    JEL classification:

    • I1 - Health, Education, and Welfare - - Health

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