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Patient and Public Involvement in the Development of Healthcare Guidance: An Overview of Current Methods and Future Challenges

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  • Ahmed Rashid

    (National Institute for Health and Care Excellence (NICE))

  • Victoria Thomas

    (National Institute for Health and Care Excellence (NICE))

  • Toni Shaw

    (National Institute for Health and Care Excellence (NICE))

  • Gillian Leng

    (National Institute for Health and Care Excellence (NICE))

Abstract

Clinical guidelines and health technology assessments are valuable instruments to improve the quality of healthcare delivery and aim to integrate the best available evidence with real-world, expert context. The role of patient and public involvement in their development has grown in recent decades, and this article considers the international literature exploring aspects of this participation, including the integration of experiential and scientific knowledge, recruitment strategies, models of involvement, stages of involvement, and methods of evaluation. These developments have been underpinned by the parallel rise of public involvement and evidence-based medicine as important concepts in health policy. Improving the recruitment of guideline group chairs, widening evidence reviews to include patient preference studies, adapting guidance presentation to highlight patient preference points and providing clearer instructions on how patient organisations can submit their intelligence are emerging proposals that may further enhance patient and public involvement in their processes.

Suggested Citation

  • Ahmed Rashid & Victoria Thomas & Toni Shaw & Gillian Leng, 2017. "Patient and Public Involvement in the Development of Healthcare Guidance: An Overview of Current Methods and Future Challenges," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 10(3), pages 277-282, June.
    • Handle: RePEc:spr:patien:v:10:y:2017:i:3:d:10.1007_s40271-016-0206-8
    DOI: 10.1007/s40271-016-0206-8
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    References listed on IDEAS

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    1. Boote, Jonathan & Telford, Rosemary & Cooper, Cindy, 2002. "Consumer involvement in health research: a review and research agenda," Health Policy, Elsevier, vol. 61(2), pages 213-236, August.
    2. Bombard, Yvonne & Abelson, Julia & Simeonov, Dorina & Gauvin, Francois-Pierre, 2011. "Eliciting ethical and social values in health technology assessment: A participatory approach," Social Science & Medicine, Elsevier, vol. 73(1), pages 135-144, July.
    3. Gauvin, Francois-Pierre & Abelson, Julia & Giacomini, Mita & Eyles, John & Lavis, John N., 2010. ""It all depends": Conceptualizing public involvement in the context of health technology assessment agencies," Social Science & Medicine, Elsevier, vol. 70(10), pages 1518-1526, May.
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