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Public engagement in priority-setting: Results from a pan-Canadian survey of decision-makers in cancer control

Author

Listed:
  • Regier, Dean A.
  • Bentley, Colene
  • Mitton, Craig
  • Bryan, Stirling
  • Burgess, Michael M.
  • Chesney, Ellen
  • Coldman, Andy
  • Gibson, Jennifer
  • Hoch, Jeffrey
  • Rahman, Syed
  • Sabharwal, Mona
  • Sawka, Carol
  • Schuckel, Victoria
  • Peacock, Stuart J.

Abstract

Decision-makers are challenged to incorporate public input into priority-setting decisions. We conducted a pan-Canadian survey of decision-makers in cancer control to investigate the types of evidence, especially evidence supplied by the public, that are utilized in health care priority-setting. We further examined how normative attitudes and contextual factors influence the use of public engagement as evidence at the committee level. Administered between November and December 2012, 67 respondents from 117 invited individuals participated in the survey. The results indicated that public engagement was infrequently utilized compared to clinical effectiveness evidence or cost evidence. General positive agreement between normative attitudes towards the use of evidence and the frequency of evidence utilization was observed, but absence of correlative agreement was found for the types of evidence that are supplied by the general public and for cost-effectiveness inputs. Regression analyses suggested that public engagement was unevenly utilized between jurisdictions and that educational background and barriers to implementing public input may decrease the odds of using public engagement as evidence. We recommend that institutions establish a link between committee members' normative attitudes for using public engagement and its real-world utilization.

Suggested Citation

  • Regier, Dean A. & Bentley, Colene & Mitton, Craig & Bryan, Stirling & Burgess, Michael M. & Chesney, Ellen & Coldman, Andy & Gibson, Jennifer & Hoch, Jeffrey & Rahman, Syed & Sabharwal, Mona & Sawka, , 2014. "Public engagement in priority-setting: Results from a pan-Canadian survey of decision-makers in cancer control," Social Science & Medicine, Elsevier, vol. 122(C), pages 130-139.
    • Handle: RePEc:eee:socmed:v:122:y:2014:i:c:p:130-139
    DOI: 10.1016/j.socscimed.2014.10.038
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    1. Kapiriri, Lydia & Norheim, Ole F. & Martin, Douglas K., 2009. "Fairness and accountability for reasonableness. Do the views of priority setting decision makers differ across health systems and levels of decision making?," Social Science & Medicine, Elsevier, vol. 68(4), pages 766-773, February.
    2. Gibson, Jennifer L. & Martin, Douglas K. & Singer, Peter A., 2005. "Priority setting in hospitals: Fairness, inclusiveness, and the problem of institutional power differences," Social Science & Medicine, Elsevier, vol. 61(11), pages 2355-2362, December.
    3. Abelson, Julia & Forest, Pierre-Gerlier & Eyles, John & Smith, Patricia & Martin, Elisabeth & Gauvin, Francois-Pierre, 2003. "Deliberations about deliberative methods: issues in the design and evaluation of public participation processes," Social Science & Medicine, Elsevier, vol. 57(2), pages 239-251, July.
    4. Kapiriri, Lydia & Norheim, Ole Frithjof & Martin, Douglas K., 2007. "Priority setting at the micro-, meso- and macro-levels in Canada, Norway and Uganda," Health Policy, Elsevier, vol. 82(1), pages 78-94, June.
    5. O'Doherty, Kieran C. & Hawkins, Alice K. & Burgess, Michael M., 2012. "Involving citizens in the ethics of biobank research: Informing institutional policy through structured public deliberation," Social Science & Medicine, Elsevier, vol. 75(9), pages 1604-1611.
    6. Roger Newson, 2002. "Parameters behind "nonparametric" statistics: Kendall's tau,Somers' D and median differences," Stata Journal, StataCorp LP, vol. 2(1), pages 45-64, February.
    7. Gauvin, Francois-Pierre & Abelson, Julia & Giacomini, Mita & Eyles, John & Lavis, John N., 2010. ""It all depends": Conceptualizing public involvement in the context of health technology assessment agencies," Social Science & Medicine, Elsevier, vol. 70(10), pages 1518-1526, May.
    8. Menon, Devidas & Stafinski, Tania & Martin, Douglas, 2007. "Priority-setting for healthcare: Who, how, and is it fair?," Health Policy, Elsevier, vol. 84(2-3), pages 220-233, December.
    9. Martin, Douglas K. & Giacomini, Mita & Singer, Peter A., 2002. "Fairness, accountability for reasonableness, and the views of priority setting decision-makers," Health Policy, Elsevier, vol. 61(3), pages 279-290, September.
    10. Pivik, Jayne & Rode, Elisabeth & Ward, Christopher, 2004. "A consumer involvement model for health technology assessment in Canada," Health Policy, Elsevier, vol. 69(2), pages 253-268, August.
    11. Dobrow, Mark J. & Goel, Vivek & Lemieux-Charles, Louise & Black, Nick A., 2006. "The impact of context on evidence utilization: A framework for expert groups developing health policy recommendations," Social Science & Medicine, Elsevier, vol. 63(7), pages 1811-1824, October.
    12. Mitton, Craig & Donaldson, Cam, 2002. "Setting priorities in Canadian regional health authorities: a survey of key decision makers," Health Policy, Elsevier, vol. 60(1), pages 39-58, April.
    13. Daniels, Norman & Sabin, James E., 2002. "Setting Limits Fairly: Can we learn to share medical resources?," OUP Catalogue, Oxford University Press, number 9780195149364.
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    2. Boxebeld, Sander & Geijsen, Tom & Tuit, Charlotte & Exel, Job van & Makady, Amr & Maes, Laurence & van Agthoven, Michel & Mouter, Niek, 2024. "Public preferences for the allocation of societal resources over different healthcare purposes," Social Science & Medicine, Elsevier, vol. 341(C).

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