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Partners in projects: Preparing for public involvement in health and social care research

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  • Parkes, Jacqueline H.
  • Pyer, Michelle
  • Wray, Paula
  • Taylor, Jane

Abstract

In recent years, several UK and, international funders of health and social care related research have adopted the policy of requiring explicit evidence of the ‘public’ voice in all aspects of project design. For many academic researchers engaged within research, evaluations or audit projects, this formal requirement to actively engage members of the public will present them with both benefits and challenges to securing knowledgeable, skilled, and confident lay representation onto project teams. This could potentially lead to the exploitation of those individuals who are available, appropriately informed, and adequately prepared for such activities. Currently, much of the preparation of patients or members of the public for research involvement tends to be aligned to specific projects; however, with the call for greater active and meaningful involvement of lay representatives in future national and international funding applications, there is clearly a growing need to ‘train’ sufficient numbers of confident and competent representatives to meet this growing demand. This paper describes the development of a specifically designed research awareness training programme and underpinning theoretical model, which has been specifically designed to support active and meaningful lay involvement in research, evaluations and audit projects. Developed over a four year period, the course is a culmination of learning extracted from a series of four completed research projects, which have incorporated an element of public and patient involvement (PPI) training in their overall design.

Suggested Citation

  • Parkes, Jacqueline H. & Pyer, Michelle & Wray, Paula & Taylor, Jane, 2014. "Partners in projects: Preparing for public involvement in health and social care research," Health Policy, Elsevier, vol. 117(3), pages 399-408.
    • Handle: RePEc:eee:hepoli:v:117:y:2014:i:3:p:399-408
    DOI: 10.1016/j.healthpol.2014.04.014
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    References listed on IDEAS

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    1. Boote, Jonathan & Telford, Rosemary & Cooper, Cindy, 2002. "Consumer involvement in health research: a review and research agenda," Health Policy, Elsevier, vol. 61(2), pages 213-236, August.
    2. Boote, Jonathan & Baird, Wendy & Beecroft, Claire, 2010. "Public involvement at the design stage of primary health research: A narrative review of case examples," Health Policy, Elsevier, vol. 95(1), pages 10-23, April.
    3. O'Donnell, Maire & Entwistle, Vikki, 2004. "Consumer involvement in research projects: the activities of research funders," Health Policy, Elsevier, vol. 69(2), pages 229-238, August.
    4. Boote, Jonathan & Barber, Rosemary & Cooper, Cindy, 2006. "Principles and indicators of successful consumer involvement in NHS research: Results of a Delphi study and subgroup analysis," Health Policy, Elsevier, vol. 75(3), pages 280-297, February.
    5. Boote, Jonathan & Baird, Wendy & Sutton, Anthea, 2011. "Public involvement in the systematic review process in health and social care: A narrative review of case examples," Health Policy, Elsevier, vol. 102(2), pages 105-116.
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