IDEAS home Printed from https://ideas.repec.org/a/spr/hecrev/v1y2011i1p1-1010.1186-2191-1991-1-6.html
   My bibliography  Save this article

Measuring economic consequences of preterm birth - Methodological recommendations for the evaluation of personal burden on children and their caregivers

Author

Listed:
  • Jan-Marc Hodek
  • J-Matthias von der Schulenburg
  • Thomas Mittendorf

Abstract

This study aims to identify the impact of a preterm birth on financial and emotional burden from the families' perspective. Additionally, a comprehensive schedule of recommendations for a sufficient evaluation of all aspects of burden is developed. Based on the results of a literature search relevant categories and sub-domains for a questionnaire covering multiple aspects of associated financial and emotional burden are identified and converted into a recommendation scheme. Results of the literature search illustrate the large extend of burden of prematurity on parents. This results in substantial out-of-pocket expenditures (OOPE) and emotional distress to the parents besides the medical problems and further financial costs to the health insurance system. According to the results on infants' state of health, OOPE and emotional distress are significantly increased with decreasing gestational age. OOPE for transportation often amounts to the main parental cost dimension. Moreover there is some evidence for a high magnitude of reduced income and missed work days. The family perspective has to be taken into account when calculating the overall costs of preterm births from a societal point of view. However, in recent years economic evaluations were performed rather inhomogeneously in this field. For future studies a) direct medical costs, b) direct non-medical costs, c) indirect costs as well as d) intangible costs (in terms of emotional distress and reduced quality of life for caregivers and children) are the main categories that should be evaluated measuring personal burden of preterm birth on families adequately. A detailed list of specific sub-domains is given. Additionally, the recommendations are not restricted to application in infants born preterm and/or at low birth weight. Copyright Hodek et al; licensee Springer 2011

Suggested Citation

  • Jan-Marc Hodek & J-Matthias von der Schulenburg & Thomas Mittendorf, 2011. "Measuring economic consequences of preterm birth - Methodological recommendations for the evaluation of personal burden on children and their caregivers," Health Economics Review, Springer, vol. 1(1), pages 1-10, December.
    • Handle: RePEc:spr:hecrev:v:1:y:2011:i:1:p:1-10:10.1186/2191-1991-1-6
    DOI: 10.1186/2191-1991-1-6
    as

    Download full text from publisher

    File URL: http://hdl.handle.net/10.1186/2191-1991-1-6
    Download Restriction: Access to full text is restricted to subscribers.
    File URL: https://libkey.io/10.1186/2191-1991-1-6?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Chaikind, Stephen & Corman, Hope, 1991. "The impact of low birthweight on special education costs," Journal of Health Economics, Elsevier, vol. 10(3), pages 291-311, October.
    2. G Torrance & Y Zhang & D Feeny & W Furlong & R Barr, 1992. "Multi-attribute Utility Functions for a Comprehensive Health Status Classification System: Health Utilities Index Mark 2," Centre for Health Economics and Policy Analysis Working Paper Series 1992-18, Centre for Health Economics and Policy Analysis (CHEPA), McMaster University, Hamilton, Canada.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Caroline Wilson & Catherine Cook, 2018. "Ambiguous loss and post‐traumatic growth: Experiences of mothers whose school‐aged children were born extremely prematurely," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(7-8), pages 1627-1639, April.
    2. Hosein Dalili & Mohaddese Fallahi & Saeid Moradi & Fatemeh Nayeri & Mamak Shariat & Arash Rashidian, 2014. "Clinical outcome and cost of treatment and care for neonates less than 1000 grams admitted to Vali-e ASR Hospital," Health Economics Review, Springer, vol. 4(1), pages 1-6, December.
    3. Christabel C Enweronu-Laryea & Hilary D Andoh & Audrey Frimpong-Barfi & Francis M Asenso-Boadi, 2018. "Parental costs for in-patient neonatal services for perinatal asphyxia and low birth weight in Ghana," PLOS ONE, Public Library of Science, vol. 13(10), pages 1-14, October.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. McCabe, Christopher & Brazier, John & Gilks, Peter & Tsuchiya, Aki & Roberts, Jennifer & O'Hagan, Anthony & Stevens, Katherine, 2006. "Using rank data to estimate health state utility models," Journal of Health Economics, Elsevier, vol. 25(3), pages 418-431, May.
    2. Stevens, K, 2010. "Valuation of the Child Health Utility Index 9D (CHU9D)," MPRA Paper 29938, University Library of Munich, Germany.
    3. Lee, Jonq-Ying & Rampersaud, Gail S. & Brown, Mark G., 2008. "An Index to Measure Health Status," Research papers 36819, Florida Department of Citrus.
    4. Christopher McCabe & Katherine Stevens & Jennifer Roberts & John Brazier, 2005. "Health state values for the HUI 2 descriptive system: results from a UK survey," Health Economics, John Wiley & Sons, Ltd., vol. 14(3), pages 231-244, March.
    5. Leonardo Becchetti & Pierluigi Conzo & Fabio Pisani, 2018. "Education and health in Europe," Applied Economics, Taylor & Francis Journals, vol. 50(12), pages 1362-1377, March.
    6. Tzeyu L. Michaud & Robert L. Kane & J. Riley McCarten & Joseph E. Gaugler & John A. Nyman & Karen M. Kuntz, 2018. "Using Cerebrospinal Fluid Biomarker Testing to Target Treatment to Patients with Mild Cognitive Impairment: A Cost-Effectiveness Analysis," PharmacoEconomics - Open, Springer, vol. 2(3), pages 309-323, September.
    7. Kevin Haninger & James K. Hammitt, 2011. "Diminishing Willingness to Pay per Quality‐Adjusted Life Year: Valuing Acute Foodborne Illness," Risk Analysis, John Wiley & Sons, vol. 31(9), pages 1363-1380, September.
    8. Hope Corman, 1995. "The Effects of Low Birthweight and Other Medical Risk Factors on Resource Utilization in the Pre-School Years," NBER Working Papers 5273, National Bureau of Economic Research, Inc.
    9. Lisa R. Ulrich & Juliana J. Petersen & Karola Mergenthal & Andrea Berghold & Gudrun Pregartner & Rolf Holle & Andrea Siebenhofer, 2019. "Cost-effectiveness analysis of case management for optimized antithrombotic treatment in German general practices compared to usual care – results from the PICANT trial," Health Economics Review, Springer, vol. 9(1), pages 1-10, December.
    10. William N. Evans & Jeanne S. Ringel & Diana Stech, 1999. "Tobacco Taxes and Public Policy to Discourage Smoking," NBER Chapters, in: Tax Policy and the Economy, Volume 13, pages 1-56, National Bureau of Economic Research, Inc.
    11. Hope Corman & Stephen Chaikind, 1993. "The Effect of Low Birthweight on the Health, Behavior, and School Performance of School-Aged Children," NBER Working Papers 4409, National Bureau of Economic Research, Inc.
    12. Katherine J. Stevens & Christopher J. McCabe & John E. Brazier, 2006. "Mapping between Visual Analogue Scale and Standard Gamble data; results from the UK Health Utilities Index 2 valuation survey," Health Economics, John Wiley & Sons, Ltd., vol. 15(5), pages 527-533, May.
    13. Krupnick, Alan & Hoffmann, Sandra & Adamowicz, Wictor, 2005. "Economic Uncertainties in Valuing Reductions in Children's Environmental Health Risks," RFF Working Paper Series dp-05-27, Resources for the Future.
    14. Katherine Stevens, 2012. "Valuation of the Child Health Utility 9D Index," PharmacoEconomics, Springer, vol. 30(8), pages 729-747, August.
    15. Batana, Yélé Maweki, 2010. "Evolution of social inequalities in health in Quebec?," MPRA Paper 20710, University Library of Munich, Germany.
    16. Hill, Elaine L., 2018. "Shale gas development and infant health: Evidence from Pennsylvania," Journal of Health Economics, Elsevier, vol. 61(C), pages 134-150.
    17. Nick Lee & John W. Cadogan & Laura Chamberlain, 2013. "The MIMIC model and formative variables: problems and solutions," AMS Review, Springer;Academy of Marketing Science, vol. 3(1), pages 3-17, March.
    18. Temple, Judy & Arteaga, Irma & Reynolds, Arthur, 2010. "Low birthweight, preschool education, and school remediation," MPRA Paper 46977, University Library of Munich, Germany.
    19. Charles M. Harvey & Lars Peter Østerdal, 2010. "Cardinal Scales for Health Evaluation," Decision Analysis, INFORMS, vol. 7(3), pages 256-281, September.
    20. Lisa Prosser & James Hammitt & Ron Keren, 2007. "Measuring Health Preferences for Use in Cost-Utility and Cost-Benefit Analyses of Interventions in Children," PharmacoEconomics, Springer, vol. 25(9), pages 713-726, September.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:spr:hecrev:v:1:y:2011:i:1:p:1-10:10.1186/2191-1991-1-6. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Sonal Shukla or Springer Nature Abstracting and Indexing (email available below). General contact details of provider: http://www.springer.com/economics/journal/13561 .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.