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Community families: A qualitative study of families who volunteer to support persons with severe mental illness

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Listed:
  • Lotte Groth Jensen
  • Stina Lou
  • Jørgen Aagaard
  • Ulla Væggemose

Abstract

Background: Social interventions targeted at people with severe mental illness (SMI) often include volunteers. Volunteers’ perspectives are important for these interventions to work. This article investigates the experiences of volunteer families who befriend a person with SMI. Material: Qualitative interviews with members of volunteer families. Discussion: The families were motivated by helping a vulnerable person and by engaging in a rewarding relationship. However, the families often doubted their personal judgement and relied on mental health workers to act as safety net. Conclusion: The volunteer involvement is meaningful but also challenging. The families value professional support.

Suggested Citation

  • Lotte Groth Jensen & Stina Lou & Jørgen Aagaard & Ulla Væggemose, 2017. "Community families: A qualitative study of families who volunteer to support persons with severe mental illness," International Journal of Social Psychiatry, , vol. 63(1), pages 33-39, February.
  • Handle: RePEc:sae:socpsy:v:63:y:2017:i:1:p:33-39
    DOI: 10.1177/0020764016674346
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    References listed on IDEAS

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    1. Brigitte Müller & Carlos Nordt & Christoph Lauber & Wulf Rössler, 2007. "Changes in Social Network Diversity and Perceived Social Support After Psychiatric Hospitalization: Results From a Longitudinal Study," International Journal of Social Psychiatry, , vol. 53(6), pages 564-575, November.
    2. Brian H. Mccorkle & Erin C. Dunn & Yu Mui Wan & Cheryl Gagne, 2009. "Compeer Friends: a Qualitative Study of a Volunteer Friendship Programme for People with Serious Mental Illness," International Journal of Social Psychiatry, , vol. 55(4), pages 291-305, July.
    3. A. Topor & M. Borg & S. Di Girolamo & L. Davidson, 2011. "Not Just an Individual Journey: Social Aspects of Recovery," International Journal of Social Psychiatry, , vol. 57(1), pages 90-99, January.
    4. Schulze, Beate & Angermeyer, Matthias C., 2003. "Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals," Social Science & Medicine, Elsevier, vol. 56(2), pages 299-312, January.
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