IDEAS home Printed from https://ideas.repec.org/a/sae/socpsy/v69y2023i3p543-550.html
   My bibliography  Save this article

Caregiver burden experiences of caregivers of patients with schizophrenia: A qualitative inquiry

Author

Listed:
  • Erdinç Kalayci
  • Ä°mran Uzunaslan
  • Åžerif Uzunaslan

Abstract

Background: Parents of children with schizophrenia struggle with emotional, social, and economic burdens because they do not receive adequate support and experience difficulties. Aim: To determine the caregiver burden experiences of parents who care for schizophrenic patients and to provide in-depth data on their feelings, thoughts, and opinions on this issue. Methods: In this study, the phenomenological method was used. In-depth interviews were conducted with 13 parents. Maxqda 2020 was used for the analysis of the research data. Results: In our qualitative study, it was concluded that caregivers were stigmatized by their environment, exposed to social isolation, and stigmatized themselves. It has been determined that the social isolation experienced by the parents negatively affects them economically, socially, and emotionally. Conclusion: The results of this study were discussed within the framework of three themes: emotional burden, social burden, and economic burden experienced by caregivers.

Suggested Citation

  • Erdinç Kalayci & Ä°mran Uzunaslan & Åžerif Uzunaslan, 2023. "Caregiver burden experiences of caregivers of patients with schizophrenia: A qualitative inquiry," International Journal of Social Psychiatry, , vol. 69(3), pages 543-550, May.
    • Handle: RePEc:sae:socpsy:v:69:y:2023:i:3:p:543-550
    DOI: 10.1177/00207640221114564
    as

    Download full text from publisher

    File URL: https://journals.sagepub.com/doi/10.1177/00207640221114564
    Download Restriction: no
    File URL: https://libkey.io/10.1177/00207640221114564?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Lee, Sing & Chiu, Marcus Y.L. & Tsang, Adley & Chui, Helena & Kleinman, Arthur, 2006. "Stigmatizing experience and structural discrimination associated with the treatment of schizophrenia in Hong Kong," Social Science & Medicine, Elsevier, vol. 62(7), pages 1685-1696, April.
    2. Koschorke, Mirja & Padmavati, R. & Kumar, Shuba & Cohen, Alex & Weiss, Helen A. & Chatterjee, Sudipto & Pereira, Jesina & Naik, Smita & John, Sujit & Dabholkar, Hamid & Balaji, Madhumitha & Chavan, An, 2017. "Experiences of stigma and discrimination faced by family caregivers of people with schizophrenia in India," Social Science & Medicine, Elsevier, vol. 178(C), pages 66-77.
    3. Kerime Bademli & Neslihan Lök, 2020. "Feelings, thoughts and experiences of caregivers of patients with schizophrenia," International Journal of Social Psychiatry, , vol. 66(5), pages 452-459, August.
    4. Man-Man Peng & Tian-Ming Zhang & Ke-Zhi Liu & Ke Gong & Chao-Hua Huang & Guang-Zhi Dai & Shi-Hui Hu & Fu-Rong Lin & Sherry Kit Wa Chan & Siuman Ng & Mao-Sheng Ran, 2019. "Perception of social support and psychotic symptoms among persons with schizophrenia: A strategy to lessen caregiver burden," International Journal of Social Psychiatry, , vol. 65(7-8), pages 548-557, November.
    5. Schulze, Beate & Angermeyer, Matthias C., 2003. "Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals," Social Science & Medicine, Elsevier, vol. 56(2), pages 299-312, January.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Krupchanka, D. & Chrtková, D. & Vítková, M. & Munzel, D. & Čihařová, M. & Růžičková, T. & Winkler, P. & Janoušková, M. & Albanese, E. & Sartorius, N., 2018. "Experience of stigma and discrimination in families of persons with schizophrenia in the Czech Republic," Social Science & Medicine, Elsevier, vol. 212(C), pages 129-135.
    2. Yang, Lawrence Hsin & Kleinman, Arthur, 2008. "'Face' and the embodiment of stigma in China: The cases of schizophrenia and AIDS," Social Science & Medicine, Elsevier, vol. 67(3), pages 398-408, August.
    3. Yang, Lawrence H. & Purdie-Vaughns, Valerie & Kotabe, Hiroki & Link, Bruce G. & Saw, Anne & Wong, Gloria & Phelan, Jo C., 2013. "Culture, threat, and mental illness stigma: Identifying culture-specific threat among Chinese-American groups," Social Science & Medicine, Elsevier, vol. 88(C), pages 56-67.
    4. Kvaale, Erlend P. & Gottdiener, William H. & Haslam, Nick, 2013. "Biogenetic explanations and stigma: A meta-analytic review of associations among laypeople," Social Science & Medicine, Elsevier, vol. 96(C), pages 95-103.
    5. Lotte Groth Jensen & Stina Lou & Jørgen Aagaard & Ulla Væggemose, 2017. "Community families: A qualitative study of families who volunteer to support persons with severe mental illness," International Journal of Social Psychiatry, , vol. 63(1), pages 33-39, February.
    6. Carlos Arturo Cassiani-Miranda & Adalberto Campo-Arias & Andrés Felipe Tirado-Otálvaro & Luz Adriana Botero-Tobón & Luz Dary Upegui-Arango & María Soledad Rodríguez-Verdugo & María Elena Botero-, 2021. "Stigmatisation associated with COVID-19 in the general Colombian population," International Journal of Social Psychiatry, , vol. 67(6), pages 728-736, September.
    7. Noor Ahmed Giasuddin & Itzhak Levav & Gilad Gal, 2015. "Mental health stigma and attitudes to psychiatry among Bangladeshi medical students," International Journal of Social Psychiatry, , vol. 61(2), pages 137-147, March.
    8. Chi-Hsuan Fan & Shih-Chieh Hsu & Fei-Hsiu Hsiao & Chia-Ming Chang & Chia-Yih Liu & Yu-Ming Lai & Yu-Ting Chen, 2021. "The Association of Social Support and Symptomatic Remission among Community-Dwelling Schizophrenia Patients: A Cross-Sectional Study," IJERPH, MDPI, vol. 18(8), pages 1-14, April.
    9. Sabrina Gabrielle Anjara & Chiara Bonetto & Poushali Ganguli & Diana Setiyawati & Yodi Mahendradhata & Bambang Hastha Yoga & Laksono Trisnantoro & Carol Brayne & Tine Van Bortel, 2019. "Can General Practitioners manage mental disorders in primary care? A partially randomised, pragmatic, cluster trial," PLOS ONE, Public Library of Science, vol. 14(11), pages 1-26, November.
    10. David Feligreras-Alcalá & María del Pilar Cazalilla-López & Rafael del-Pino-Casado & Antonio Frías-Osuna, 2021. "Validity and Reliability of the Caregiver Strain Index Scale in Women during the Puerperium in Spain," IJERPH, MDPI, vol. 18(7), pages 1-11, March.
    11. Jing Ye & Timothy F Chen & Diane Paul & Rebecca McCahon & Sumitra Shankar & Alan Rosen & Claire L O’Reilly, 2016. "Stigma and discrimination experienced by people living with severe and persistent mental illness in assertive community treatment settings," International Journal of Social Psychiatry, , vol. 62(6), pages 532-541, September.
    12. Bichitra Nanda Patra & Vaibhav Patil & Yatan Pal Singh Balhara & Sudhir K Khandelwal, 2022. "Self-stigma in patients with major depressive disorder: An exploratory study from India," International Journal of Social Psychiatry, , vol. 68(1), pages 147-154, February.
    13. Yu, Yu & Liu, Zi-Wei & Li, Tong-Xin & Li, Yi-Lu & Xiao, Shui-Yuan & Tebes, Jacob Kraemer, 2020. "Test of the stress process model of family caregivers of people living with schizophrenia in China," Social Science & Medicine, Elsevier, vol. 259(C).
    14. Lewis, Sophie & Thomas, Samantha L. & Blood, R. Warwick & Castle, David J. & Hyde, Jim & Komesaroff, Paul A., 2011. "How do obese individuals perceive and respond to the different types of obesity stigma that they encounter in their daily lives? A qualitative study," Social Science & Medicine, Elsevier, vol. 73(9), pages 1349-1356.
    15. Victoria Vass & Katarzyna Sitko & Sophie West & Richard P. Bentall, 2017. "How stigma gets under the skin: the role of stigma, self-stigma and self-esteem in subjective recovery from psychosis," Psychosis, Taylor & Francis Journals, vol. 9(3), pages 235-244, July.
    16. Roger M.K. Ng & Veronica Pearson & Eric E.Y. Chen & C.W. Law, 2011. "What Does Recovery From Schizophrenia Mean? Perceptions of Medical Students and Trainee Psychiatrists," International Journal of Social Psychiatry, , vol. 57(3), pages 248-262, May.
    17. Marcus Yu-Lung Chiu & Grace Fang-Wan Wei & Sing Lee, 2006. "Personal Tragedy or System Failure: A Qualitative Analysis of Narratives of Caregivers of People with Severe Mental Illness in Hong Kong and Taiwan," International Journal of Social Psychiatry, , vol. 52(5), pages 413-423, September.
    18. Steven Marwaha & Sonia Johnson, 2005. "Views and Experiences of Employment among People with Psychosis: A Qualitative Descriptive Study," International Journal of Social Psychiatry, , vol. 51(4), pages 302-316, December.
    19. Heather Stuart, 2005. "Fighting Stigma and Discrimination Is Fighting for Mental Health," Canadian Public Policy, University of Toronto Press, vol. 31(s1), pages 21-28, August.
    20. Melissa Pyle & Anthony P Morrison, 2014. "“It’s just a very taboo and secretive kind of thing”: making sense of living with stigma and discrimination from accounts of people with psychosis," Psychosis, Taylor & Francis Journals, vol. 6(3), pages 195-205, July.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:sae:socpsy:v:69:y:2023:i:3:p:543-550. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: SAGE Publications (email available below). General contact details of provider: .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.