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Systematic Development of Patient Decision Aids: An Update from the IPDAS Collaboration

Author

Listed:
  • Holly O. Witteman

    (Department of Family and Emergency Medicine, Faculty of Medicine, Laval University, Quebec City, Canada
    VITAM Research Centre, Quebec City, Canada
    CHU de Québec Research Centre, Quebec City, Canada)

  • Kristin G. Maki

    (Department of Health Services Research, The University of Texas MD Anderson Cancer Center, Houston, TX, USA)

  • Gratianne Vaisson

    (Department of Family and Emergency Medicine, Faculty of Medicine, Laval University, Quebec City, Québec, Canada)

  • Jeanette Finderup

    (Research Centre for Patient Involvement & Department of Renal Medicine, Aarhus University & Aarhus University Hospital, Aarhus, Denmark)

  • Krystina B. Lewis

    (School of Nursing, Faculty of Health Sciences, University of Ottawa, Ottawa, ON, Canada
    University of Ottawa Heart Institute, Ottawa, ON, Canada)

  • Karina Dahl Steffensen

    (Center for Shared Decision Making/Department of Oncology, Lillebaelt University Hospital of Southern Denmark, Vejle, Denmark
    Institute of Regional Health Research, Faculty of Health Sciences, Vejle, Denmark)

  • Caroline Beaudoin

    (Department of Family and Emergency Medicine, Laval University, Quebec, Canada)

  • Sandrine Comeau

    (Department of Family and Emergency Medicine, Laval University, Quebec, Canada)

  • Robert J. Volk

    (Department of Health Services Research, The University of Texas MD Anderson Cancer Center, Houston, TX, USA)

Abstract

Background The 2013 update of the evidence informing the quality dimensions behind the International Patient Decision Aid Standards (IPDAS) offered a model process for developers of patient decision aids. Objective To summarize and update the evidence used to inform the systematic development of patient decision aids from the IPDAS Collaboration. Methods To provide further details about design and development methods, we summarized findings from a subgroup ( n = 283 patient decision aid projects) in a recent systematic review of user involvement by Vaisson et al. Using a new measure of user-centeredness (UCD-11), we then rated the degree of user-centeredness reported in 66 articles describing patient decision aid development and citing the 2013 IPDAS update on systematic development. We contacted the 66 articles’ authors to request their self-reports of UCD-11 items. Results The 283 development processes varied substantially from minimal iteration cycles to more complex processes, with multiple iterations, needs assessments, and extensive involvement of end users. We summarized minimal, medium, and maximal processes from the data. Authors of 54 of 66 articles (82%) provided self-reported UCD-11 ratings. Self-reported scores were significantly higher than reviewer ratings (reviewers: mean [SD] = 6.45 [3.10]; authors: mean [SD] = 9.62 [1.16], P

Suggested Citation

  • Holly O. Witteman & Kristin G. Maki & Gratianne Vaisson & Jeanette Finderup & Krystina B. Lewis & Karina Dahl Steffensen & Caroline Beaudoin & Sandrine Comeau & Robert J. Volk, 2021. "Systematic Development of Patient Decision Aids: An Update from the IPDAS Collaboration," Medical Decision Making, , vol. 41(7), pages 736-754, October.
    • Handle: RePEc:sae:medema:v:41:y:2021:i:7:p:736-754
    DOI: 10.1177/0272989X211014163
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    References listed on IDEAS

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    1. Dawn Stacey & France Légaré & Anne Lyddiatt & Anik M. C. Giguere & Manosila Yoganathan & Anton Saarimaki & Jordi Pardo Pardo & Tamara Rader & Peter Tugwell, 2016. "Translating Evidence to Facilitate Shared Decision Making: Development and Usability of a Consult Decision Aid Prototype," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 9(6), pages 571-582, December.
    2. Hoda HM Al‐Itejawi & Cornelia F van Uden‐Kraan & André N Vis & Jakko A Nieuwenhuijzen & Myrna JA Hofstee & Reindert Jeroen A van Moorselaar & Irma M Verdonck‐de Leeuw, 2016. "Development of a patient decision aid for the treatment of localised prostate cancer: a participatory design approach," Journal of Clinical Nursing, John Wiley & Sons, vol. 25(7-8), pages 1131-1144, April.
    3. Dawn Stacey & Victoria Suwalska & Laura Boland & Krystina B. Lewis & Justin Presseau & Richard Thomson, 2019. "Are Patient Decision Aids Used in Clinical Practice after Rigorous Evaluation? A Survey of Trial Authors," Medical Decision Making, , vol. 39(7), pages 805-815, October.
    4. Peter D. Coxeter & Chris B. Del Mar & Tammy C. Hoffmann, 2017. "Preparing Parents to Make An Informed Choice About Antibiotic Use for Common Acute Respiratory Infections in Children: A Randomised Trial of Brief Decision Aids in a Hypothetical Scenario," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 10(4), pages 463-474, August.
    5. Dawn Stacey & Claire Ludwig & Patrick Archambault & Kevin Babulic & Nancy Edwards & Josée Lavoie & Samir Sinha & Annette M. O’Connor, 2021. "Feasibility of Rapidly Developing and Widely Disseminating Patient Decision Aids to Respond to Urgent Decisional Needs due to the COVID-19 Pandemic," Medical Decision Making, , vol. 41(2), pages 233-239, February.
    6. Gratianne Vaisson & Thierry Provencher & Michèle Dugas & Marie-Ève Trottier & Selma Chipenda Dansokho & Heather Colquhoun & Angela Fagerlin & Anik M. C. Giguere & Hina Hakim & Lynne Haslett & Aubri , 2021. "User Involvement in the Design and Development of Patient Decision Aids and Other Personal Health Tools: A Systematic Review," Medical Decision Making, , vol. 41(3), pages 261-274, April.
    7. Dawn Stacey & France Légaré & Laura Boland & Krystina B. Lewis & Marie-Chantal Loiselle & Lauren Hoefel & Mirjam Garvelink & Annette O’Connor, 2020. "20th Anniversary Ottawa Decision Support Framework: Part 3 Overview of Systematic Reviews and Updated Framework," Medical Decision Making, , vol. 40(3), pages 379-398, April.
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    Cited by:

    1. Helle Sorensen von Essen & Frantz Rom Poulsen & Rikke Hedegaard Dahlrot & Karin Piil & Karina Dahl Steffensen, 2022. "Development of a Patient Decision Aid to Support Shared Decision Making for Patients with Recurrent High-Grade Glioma," IJERPH, MDPI, vol. 19(12), pages 1-17, June.
    2. Dawn Stacey & Robert J. Volk, 2021. "The International Patient Decision Aid Standards (IPDAS) Collaboration: Evidence Update 2.0," Medical Decision Making, , vol. 41(7), pages 729-733, October.

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