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Development of a patient decision aid for the treatment of localised prostate cancer: a participatory design approach

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  • Hoda HM Al‐Itejawi
  • Cornelia F van Uden‐Kraan
  • André N Vis
  • Jakko A Nieuwenhuijzen
  • Myrna JA Hofstee
  • Reindert Jeroen A van Moorselaar
  • Irma M Verdonck‐de Leeuw

Abstract

Aims and objectives To develop a patient decision aid and to prepare an overview of requirements for implementation. Background We developed a decision aid that fits the preferences of patients and health care professionals to ensure adequate uptake in clinical practice. Design A participatory design approach was used to acquire insight into preferences regarding the content and design of a decision aid and into barriers and aspects of the decision aid that facilitate implementation in clinical practice. Methods Three focus group interviews with patients, their partners and health care professionals were conducted. A prototype of the decision aid was developed and presented to patients (n = 14) and health care professionals (n = 13) in semi‐structured interviews. Patients (n = 5) participated in a usability study. Data were analysed by two independent coders. Results Health care professionals considered medical information on treatments and side effects as the most important aspect to be included in the decision aid. Patients also focused on nonmedical considerations, such as location. Both expected the decision aid to support patients in making a treatment choice. According to health care professionals, the oncology nurse was the most suitable to discuss the decision aid with patients, while some patients preferred to discuss the patient decision aid with the urologist. The main barrier to implementation of the decision aid was said to be the expectation that it is time and money consuming, while the incorporation of the decision aid into clinical guidelines and basing the content on these guidelines, would promote implementation. Conclusions By using a participatory design approach a patient decision aid was designed to meet patients' and health care professionals' needs. Insight was also gained on requirements for implementation. Relevance to clinical practice Wide‐scale implementation of decision aids is desirable. An overview is provided of requirements for implementation to successfully incorporate a decision aid into clinical practice.

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  • Hoda HM Al‐Itejawi & Cornelia F van Uden‐Kraan & André N Vis & Jakko A Nieuwenhuijzen & Myrna JA Hofstee & Reindert Jeroen A van Moorselaar & Irma M Verdonck‐de Leeuw, 2016. "Development of a patient decision aid for the treatment of localised prostate cancer: a participatory design approach," Journal of Clinical Nursing, John Wiley & Sons, vol. 25(7-8), pages 1131-1144, April.
    • Handle: RePEc:wly:jocnur:v:25:y:2016:i:7-8:p:1131-1144
    DOI: 10.1111/jocn.13120
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    1. Deb Feldman-Stewart & Carlo Capirci & Sarah Brennenstuhl & Christine Tong & Ufuk Abacioglu & Marzena Gawkowska-Suwinska & Francis van Gils & Alicja Heyda & Sefik Igdem & Victor Macias & Isabel Monteir, 2011. "Information for Decision Making by Patients With Early-Stage Prostate Cancer," Medical Decision Making, , vol. 31(5), pages 754-766, September.
    2. Kirsten J. McCaffery & Sian K. Smith & Michael Wolf, 2010. "The Challenge of Shared Decision Making Among Patients With Lower Literacy: A Framework for Research and Development," Medical Decision Making, , vol. 30(1), pages 35-44, January.
    3. N/A, 2011. "Medical Decision Making," Medical Decision Making, , vol. 31(3), pages 376-377, May.
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    1. Holly O. Witteman & Kristin G. Maki & Gratianne Vaisson & Jeanette Finderup & Krystina B. Lewis & Karina Dahl Steffensen & Caroline Beaudoin & Sandrine Comeau & Robert J. Volk, 2021. "Systematic Development of Patient Decision Aids: An Update from the IPDAS Collaboration," Medical Decision Making, , vol. 41(7), pages 736-754, October.

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