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Translating Evidence to Facilitate Shared Decision Making: Development and Usability of a Consult Decision Aid Prototype

Author

Listed:
  • Dawn Stacey

    (University of Ottawa and Clinical Epidemiology Program, Ottawa Hospital Research Institute)

  • France Légaré

    (Centre de recherche du CHU de Québec-Université Laval, Hôpital St-François d’Assise)

  • Anne Lyddiatt
  • Anik M. C. Giguere

    (Laval University)

  • Manosila Yoganathan

    (Bruyère Research Institute)

  • Anton Saarimaki

    (Ottawa Hospital Research Institute)

  • Jordi Pardo Pardo

    (Centre for Practice–Changing Research, General Campus, Ottawa Hospital Research Institute)

  • Tamara Rader

    (Canadian Agency for Drugs and Technologies in Health)

  • Peter Tugwell

    (University of Ottawa and Clinical Epidemiology Program)

Abstract

Aim The purpose of this study was to translate evidence from Cochrane Reviews into a format that can be used to facilitate shared decision making during the consultation, namely patient decision aids. Methods A systematic development process (a) established a stakeholder committee; (b) developed a prototype according to the International Patient Decision Aid Standards; (c) applied the prototype to a Cochrane Review and used an interview-guided survey to evaluate acceptability/usability; (d) created 12 consult decision aids; and (e) used a Delphi process to reach consensus on considerations for creating a consult decision aid. Results The 1-page prototype includes (a) a title specifying the decision; (b) information on the health condition, options, benefits/harms with probabilities; (c) an explicit values clarification exercise; and (d) questions to screen for decisional conflict. Hyperlinks provide additional information on definitions, probabilities presented graphically, and references. Fourteen Cochrane Consumer Network members and Cochrane Editorial Unit staff participated. Thirteen reported that it would help patient/clinician discussions and were willing to use and/or recommend it. Seven indicated the right amount of information, six not enough, and one too much. Changes to the prototype were more links to definitions, more white space, and details on GRADE evidence ratings. Creating 12 consult decision aids took about 4 h each. We identified ten considerations when selecting Cochrane Reviews for creating consult decision aids. Conclusions Using a systematic process, we developed a consult decision aid prototype to be populated with evidence from Cochrane Reviews. It was acceptable and easy to apply. Future studies will evaluate implementation of consult decision aids.

Suggested Citation

  • Dawn Stacey & France Légaré & Anne Lyddiatt & Anik M. C. Giguere & Manosila Yoganathan & Anton Saarimaki & Jordi Pardo Pardo & Tamara Rader & Peter Tugwell, 2016. "Translating Evidence to Facilitate Shared Decision Making: Development and Usability of a Consult Decision Aid Prototype," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 9(6), pages 571-582, December.
    • Handle: RePEc:spr:patien:v:9:y:2016:i:6:d:10.1007_s40271-016-0177-9
    DOI: 10.1007/s40271-016-0177-9
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    Cited by:

    1. Holly O. Witteman & Kristin G. Maki & Gratianne Vaisson & Jeanette Finderup & Krystina B. Lewis & Karina Dahl Steffensen & Caroline Beaudoin & Sandrine Comeau & Robert J. Volk, 2021. "Systematic Development of Patient Decision Aids: An Update from the IPDAS Collaboration," Medical Decision Making, , vol. 41(7), pages 736-754, October.
    2. Helle Sorensen von Essen & Frantz Rom Poulsen & Rikke Hedegaard Dahlrot & Karin Piil & Karina Dahl Steffensen, 2022. "Development of a Patient Decision Aid to Support Shared Decision Making for Patients with Recurrent High-Grade Glioma," IJERPH, MDPI, vol. 19(12), pages 1-17, June.

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