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User Involvement in the Design and Development of Patient Decision Aids and Other Personal Health Tools: A Systematic Review

Author

Listed:
  • Gratianne Vaisson

    (Universite Laval Faculte de Medicine, Quebec City, QC, Canada)

  • Thierry Provencher

    (Laval University Faculty of Medicine, Quebec, QC, Canada)

  • Michèle Dugas

    (Universite Laval Faculte de Medicine, Quebec City, QC, Canada)

  • Marie-Ève Trottier

    (Universite Laval Faculte de Medicine, Quebec City, QC, Canada)

  • Selma Chipenda Dansokho

    (Laval University Faculty of Medicine, Quebec, QC, Canada)

  • Heather Colquhoun

    (University of Toronto Faculty of Medicine, Toronto, ON, Canada)

  • Angela Fagerlin

    (University of Utah School of Medicine, Salt Lake City, UT, USA)

  • Anik M. C. Giguere

    (McMaster University Faculty of Health Sciences, Quebec, QC, Canada)

  • Hina Hakim

    (Universite Laval Faculte de Medicine, Quebec City, QC, Canada)

  • Lynne Haslett

    (East End Community Health Centre, Toronto, ON, Canada)

  • Aubri S. Hoffman

    (The University of Texas MD Anderson Cancer Center, Houston, TX, USA)

  • Noah M. Ivers

    (Women’s College Hospital, Toronto, ON, Canada)

  • Anne-Sophie Julien

    (Universite Laval Faculte des Sciences et de Genie, Quebec, QC, Canada)

  • France Légaré

    (Universite Laval Faculte de Medicine, Quebec City, QC, Canada)

  • Jean-Sébastien Renaud

    (Universite Laval Faculte de Medicine, Quebec City, QC, Canada)

  • Dawn Stacey

    (University of Ottawa Faculty of Health Sciences, Ottawa, ON, Canada)

  • Robert J. Volk

    (The University of Texas MD Anderson Cancer Center, Houston, TX, USA)

  • Holly O. Witteman

    (Universite Laval Faculte de Medicine, Quebec City, QC, Canada)

Abstract

Background When designing and developing patient decision aids, guidelines recommend involving patients and stakeholders. There are myriad ways to do this. We aimed to describe how such involvement occurs by synthesizing reports of patient decision aid design and development within a user-centered design framework and to provide context by synthesizing reports of user-centered design applied to other personal health tools. Methods We included articles describing at least one development step of 1) a patient decision aid, 2) user- or human-centered design of another personal health tool, or 3) evaluation of these. We organized data within a user-centered design framework comprising 3 elements in iterative cycles: understanding users, developing/refining prototype, and observing users. Results We included 607 articles describing 325 patient decision aid projects and 65 other personal health tool projects. Fifty percent of patient decision aid projects reported involving users in at least 1 step for understanding users, 35% in at least 1 step for developing/refining the prototype, and 84% in at least 1 step for observing users’ interaction with the prototype. In comparison, other personal health tool projects reported 91%, 49%, and 92%, respectively. A total of 74% of patient decision aid projects and 92% of other personal health tool projects reported iterative processes, both with a median of 3 iterative cycles. Preliminary evaluations such as usability or feasibility testing were reported in 66% of patient decision aid projects and 89% of other personal health tool projects. Conclusions By synthesizing design and development practices, we offer evidence-based portraits of user involvement. Those wishing to further align patient decision aid design and development with user-centered design methods could involve users earlier, design and develop iteratively, and report processes in greater detail.

Suggested Citation

  • Gratianne Vaisson & Thierry Provencher & Michèle Dugas & Marie-Ève Trottier & Selma Chipenda Dansokho & Heather Colquhoun & Angela Fagerlin & Anik M. C. Giguere & Hina Hakim & Lynne Haslett & Aubri , 2021. "User Involvement in the Design and Development of Patient Decision Aids and Other Personal Health Tools: A Systematic Review," Medical Decision Making, , vol. 41(3), pages 261-274, April.
    • Handle: RePEc:sae:medema:v:41:y:2021:i:3:p:261-274
    DOI: 10.1177/0272989X20984134
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    Cited by:

    1. Holly O. Witteman & Kristin G. Maki & Gratianne Vaisson & Jeanette Finderup & Krystina B. Lewis & Karina Dahl Steffensen & Caroline Beaudoin & Sandrine Comeau & Robert J. Volk, 2021. "Systematic Development of Patient Decision Aids: An Update from the IPDAS Collaboration," Medical Decision Making, , vol. 41(7), pages 736-754, October.

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