IDEAS home Printed from https://ideas.repec.org/a/plo/pone00/0171818.html
   My bibliography  Save this article

Improving brain computer interface research through user involvement - The transformative potential of integrating civil society organisations in research projects

Author

Listed:
  • Bernd Carsten Stahl
  • Kutoma Wakunuma
  • Stephen Rainey
  • Christian Hansen

Abstract

Research on Brain Computer Interfaces (BCI) often aims to provide solutions for vulnerable populations, such as individuals with diseases, conditions or disabilities that keep them from using traditional interfaces. Such research thereby contributes to the public good. This contribution to the public good corresponds to a broader drive of research and funding policy that focuses on promoting beneficial societal impact. One way of achieving this is to engage with the public. In practical terms this can be done by integrating civil society organisations (CSOs) in research. The open question at the heart of this paper is whether and how such CSO integration can transform the research and contribute to the public good. To answer this question the paper describes five detailed qualitative case studies of research projects including CSOs. The paper finds that transformative impact of CSO integration is possible but by no means assured. It provides recommendations on how transformative impact can be promoted.

Suggested Citation

  • Bernd Carsten Stahl & Kutoma Wakunuma & Stephen Rainey & Christian Hansen, 2017. "Improving brain computer interface research through user involvement - The transformative potential of integrating civil society organisations in research projects," PLOS ONE, Public Library of Science, vol. 12(2), pages 1-38, February.
  • Handle: RePEc:plo:pone00:0171818
    DOI: 10.1371/journal.pone.0171818
    as

    Download full text from publisher

    File URL: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0171818
    Download Restriction: no

    File URL: https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0171818&type=printable
    Download Restriction: no

    File URL: https://libkey.io/10.1371/journal.pone.0171818?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Doyle, Cathal & Patel, Preeti, 2008. "Civil society organisations and global health initiatives: Problems of legitimacy," Social Science & Medicine, Elsevier, vol. 66(9), pages 1928-1938, May.
    2. Simon Joss, 1999. "Public participation in science and technology policy- and decision-making — ephemeral phenomenon or lasting change?," Science and Public Policy, Oxford University Press, vol. 26(5), pages 290-293, October.
    3. Rodríguez, Hannot & Fisher, Erik & Schuurbiers, Daan, 2013. "Integrating science and society in European Framework Programmes: Trends in project-level solicitations," Research Policy, Elsevier, vol. 42(5), pages 1126-1137.
    4. Lena Tsipouri, 2012. "Comparing innovation performance and science in society in the European member states," Science and Public Policy, Oxford University Press, vol. 39(6), pages 732-740, December.
    5. Martin, Adrienne & Sherington, John, 1997. "Participatory research methods--Implementation, effectiveness and institutional context," Agricultural Systems, Elsevier, vol. 55(2), pages 195-216, October.
    6. repec:bla:devpol:v:21:y:2003:i:1:p:93-106 is not listed on IDEAS
    7. Anthony Dudo & John C Besley, 2016. "Scientists’ Prioritization of Communication Objectives for Public Engagement," PLOS ONE, Public Library of Science, vol. 11(2), pages 1-18, February.
    8. Nugroho, Yanuar, 2011. "Opening the black box: The adoption of innovations in the voluntary sector--The case of Indonesian civil society organisations," Research Policy, Elsevier, vol. 40(5), pages 761-777, June.
    9. Maria Paola Ferretti & Vincenzo Pavone, 2009. "What do civil society organisations expect from participation in science? Lessons from Germany and Spain on the issue of GMOs," Science and Public Policy, Oxford University Press, vol. 36(4), pages 287-299, May.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Mónica García-Melón & Tomás Gómez-Navarro & Hannia Gonzalez-Urango & Carmen Corona-Sobrino, 2022. "Adapting RRI public engagement indicators to the Spanish scientific and innovation context: a participatory methodology based on AHP and content analysis," Central European Journal of Operations Research, Springer;Slovak Society for Operations Research;Hungarian Operational Research Society;Czech Society for Operations Research;Österr. Gesellschaft für Operations Research (ÖGOR);Slovenian Society Informatika - Section for Operational Research;Croatian Operational Research Society, vol. 30(4), pages 1483-1512, December.
    2. Lievrouw, Leah A., 2010. "Instructions for being unhappy with PTA — The impact on PTA of Austrian technology policy experts´ conceptualisation of the public," ITA manu:scripts 10_02, Institute of Technology Assessment (ITA).
    3. Sara Amoroso & Alex Coad & Nicola Grassano, 2017. "European R&D networks: A snapshot from the 7th EU Framework Programme," JRC Working Papers on Corporate R&D and Innovation JRC107546, Joint Research Centre (Seville site).
    4. Borzaga, Carlo & Fazzi, Luca, 2014. "Civil society, third sector, and healthcare: The case of social cooperatives in Italy," Social Science & Medicine, Elsevier, vol. 123(C), pages 234-241.
    5. Blackstock, K.L. & Kelly, G.J. & Horsey, B.L., 2007. "Developing and applying a framework to evaluate participatory research for sustainability," Ecological Economics, Elsevier, vol. 60(4), pages 726-742, February.
    6. Chilombo, Andrew & Van Der Horst, Dan, 2021. "Livelihoods and coping strategies of local communities on previous customary land in limbo of commercial agricultural development: Lessons from the farm block program in Zambia," Land Use Policy, Elsevier, vol. 104(C).
    7. Pascal Sanginga & Jackson Tumwine & Nina Lilja, 2006. "Patterns of participation in farmers’ research groups: Lessons from the highlands of southwestern Uganda," Agriculture and Human Values, Springer;The Agriculture, Food, & Human Values Society (AFHVS), vol. 23(4), pages 501-512, December.
    8. Shane Cronin & Mike Petterson & Paul Taylor & Randall Biliki, 2004. "Maximising Multi-Stakeholder Participation in Government and Community Volcanic Hazard Management Programs; A Case Study from Savo, Solomon Islands," Natural Hazards: Journal of the International Society for the Prevention and Mitigation of Natural Hazards, Springer;International Society for the Prevention and Mitigation of Natural Hazards, vol. 33(1), pages 105-136, September.
    9. Higgins, Andrew, 2006. "Scheduling of road vehicles in sugarcane transport: A case study at an Australian sugar mill," European Journal of Operational Research, Elsevier, vol. 170(3), pages 987-1000, May.
    10. Donghyun Kim & Jung Eun Kang, 2020. "Building Consensus with Local Residents in Community-Based Adaptation Planning: The Case of Bansong Pilbongoreum Community in Busan, South Korea," Sustainability, MDPI, vol. 12(4), pages 1-20, February.
    11. Dickson-Gomez, Julia & Corbett, A. Michelle & Bodnar, Gloria & Rodriguez, Karla & Guevara, Carmen E., 2010. "Resources and obstacles to developing and implementing a structural intervention to prevent HIV in San Salvador, El Salvador," Social Science & Medicine, Elsevier, vol. 70(3), pages 351-359, February.
    12. Michael Poznic & Erik Fisher, 2021. "The Integrative Expert: Moral, Epistemic, and Poietic Virtues in Transformation Research," Sustainability, MDPI, vol. 13(18), pages 1-11, September.
    13. Adrian Rauchfleisch & Mike S Schäfer & Dario Siegen, 2021. "Beyond the ivory tower: Measuring and explaining academic engagement with journalists, politicians and industry representatives among Swiss professorss," PLOS ONE, Public Library of Science, vol. 16(5), pages 1-20, May.
    14. Higgins, Andrew & Antony, George & Sandell, Gary & Davies, Ian & Prestwidge, Di & Andrew, Bill, 2004. "A framework for integrating a complex harvesting and transport system for sugar production," Agricultural Systems, Elsevier, vol. 82(2), pages 99-115, November.
    15. Owczarzak, Jill & Kazi, Asiya K. & Mazhnaya, Alyona & Alpatova, Polina & Zub, Tatyana & Filippova, Olga & Phillips, Sarah D., 2021. "“You're nobody without a piece of paper:” visibility, the state, and access to services among women who use drugs in Ukraine," Social Science & Medicine, Elsevier, vol. 269(C).
    16. Yuwan Malakar & Justine Lacey & Paul M Bertsch, 2022. "Towards responsible science and technology: How nanotechnology research and development is shaping risk governance practices in Australia," Palgrave Communications, Palgrave Macmillan, vol. 9(1), pages 1-14, December.
    17. Mariya Dobryakova & Zoya Kotelnikova, 2015. "Social Embeddedness of Technology: Prospective Research Areas," Foresight and STI Governance (Foresight-Russia till No. 3/2015), National Research University Higher School of Economics, vol. 9(1), pages 6-19.
    18. Fisher, Erik, 2019. "Governing with ambivalence: The tentative origins of socio-technical integration," Research Policy, Elsevier, vol. 48(5), pages 1138-1149.
    19. Kaisu Koivumäki & Timo Koivumäki & Erkki Karvonen, 2020. "“On Social Media Science Seems to Be More Human”: Exploring Researchers as Digital Science Communicators," Media and Communication, Cogitatio Press, vol. 8(2), pages 425-439.
    20. Karolin Sjöö & Wolfgang Kaltenbrunner, 2023. "Gender mainstreaming research funding: a study of effects on STEM research proposals," Science and Public Policy, Oxford University Press, vol. 50(2), pages 304-317.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:plo:pone00:0171818. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: plosone (email available below). General contact details of provider: https://journals.plos.org/plosone/ .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.