IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v21y2024i6p782-d1415610.html
   My bibliography  Save this article

The Effect of Stigma and Social Networks on Role Expectations among African Immigrants Living with HIV

Author

Listed:
  • Emmanuel F. Koku

    (Department of Sociology, Drexel University, 3201 Arch Street, Room 288, Philadelphia, PA 19104, USA)

Abstract

This paper examines how African immigrants living with HIV negotiate and reconstruct their productive (i.e., educational and career opportunities), sexual, and reproductive identities. We used data from a mixed-methods study to explore how stigma and social networks in which participants were embedded shaped how they understood and negotiated their role expectations and responsibilities. Participants revealed how HIV not only changed their identities and limited their sex life, partner choices, and fundamental decisions about fertility and reproduction, but also presented them with the opportunity to reinvent/reshape their lives. Our analysis revealed that the cultural discourses about illness and HIV in participant’s countries of origin, the acculturative and migratory stressors, and the competing influences and expectations from family and friends in their home and host countries shape their illness experience, and how they adjust to life with HIV. This paper builds on sociological understanding of illness experience as a social construct that shapes the ill person’s identity, role, and function in society. Specifically, the paper contributes to discourses on how (i) participants’ social location and identity (as transnational migrants adjusting to acculturative stressors associated with resettlement into a new country), (ii) cultural discourses about illness and HIV in their countries of origin, and (iii) embeddedness in transnational social networks influence health outcomes, including lived experiences with chronic illnesses and stigmatized conditions such as HIV.

Suggested Citation

  • Emmanuel F. Koku, 2024. "The Effect of Stigma and Social Networks on Role Expectations among African Immigrants Living with HIV," IJERPH, MDPI, vol. 21(6), pages 1-16, June.
  • Handle: RePEc:gam:jijerp:v:21:y:2024:i:6:p:782-:d:1415610
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/21/6/782/pdf
    Download Restriction: no

    File URL: https://www.mdpi.com/1660-4601/21/6/782/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Nelsensius Klau Fauk & Karen Hawke & Lillian Mwanri & Paul Russell Ward, 2021. "Stigma and Discrimination towards People Living with HIV in the Context of Families, Communities, and Healthcare Settings: A Qualitative Study in Indonesia," IJERPH, MDPI, vol. 18(10), pages 1-17, May.
    2. Engman, Athena, 2019. "Embodiment and the foundation of biographical disruption," Social Science & Medicine, Elsevier, vol. 225(C), pages 120-127.
    3. Richardson, Jane C. & Ong, Bie Nio & Sim, Julius, 2006. "Is chronic widespread pain biographically disruptive?," Social Science & Medicine, Elsevier, vol. 63(6), pages 1573-1585, September.
    4. Nelsensius Klau Fauk & Lillian Mwanri & Hailay Abrha Gesesew & Paul Russell Ward, 2023. "Biographical Reinvention: An Asset-Based Approach to Understanding the World of Men Living with HIV in Indonesia," IJERPH, MDPI, vol. 20(16), pages 1-16, August.
    5. Afulani, Patience A. & Torres, Jacqueline M. & Sudhinaraset, May & Asunka, Joseph, 2016. "Transnational ties and the health of sub-Saharan African migrants: The moderating role of gender and family separation," Social Science & Medicine, Elsevier, vol. 168(C), pages 63-71.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Gede Benny Setia Wirawan & Brigitta Dhyah K. Wardhani & Putu Erma Pradnyani & Afriana Nurhalina & Nurjannah Sulaiman & Evi Sukmaningrum & Luh Putu Lila Wulandari & Pande Putu Januraga, 2022. "Behavioral Changes, Adaptation, and Supports among Indonesian Female Sex Workers Facing Dual Risk of COVID-19 and HIV in a Pandemic," IJERPH, MDPI, vol. 19(3), pages 1-14, January.
    2. Nelsensius Klau Fauk & Lillian Mwanri & Hailay Abrha Gesesew & Paul Russell Ward, 2023. "Biographical Reinvention: An Asset-Based Approach to Understanding the World of Men Living with HIV in Indonesia," IJERPH, MDPI, vol. 20(16), pages 1-16, August.
    3. Zoe C. Waldman & Blayne R. Schenk & Marie Grace Duhuze Karera & Arielle C. Patterson & Thomas Hormenu & Lilian S. Mabundo & Christopher W. DuBose & Ram Jagannathan & Peter L. Whitesell & Annemarie Wen, 2022. "Sleep and Economic Status Are Linked to Daily Life Stress in African-Born Blacks Living in America," IJERPH, MDPI, vol. 19(5), pages 1-14, February.
    4. Darawan Thapinta & Kriengkrai Srithanaviboonchai & Penpaktr Uthis & Sunisa Suktrakul & Rangsima Wiwatwongnawa & Arunrat Tangmunkongvorakul & Saranya Wannachaiyakul & Patumrat Sripan, 2022. "Association between Internalized Stigma and Depression among People Living with HIV in Thailand," IJERPH, MDPI, vol. 19(8), pages 1-9, April.
    5. Nelsensius Klau Fauk & Maria Silvia Merry & Lillian Mwanri & Karen Hawke & Paul Russell Ward, 2022. "Mental Health Challenges and the Associated Factors in Women Living with HIV Who Have Children Living with HIV in Indonesia: A Qualitative Study," IJERPH, MDPI, vol. 19(11), pages 1-12, June.
    6. Engman, Athena, 2019. "Embodiment and the foundation of biographical disruption," Social Science & Medicine, Elsevier, vol. 225(C), pages 120-127.
    7. Philip Kinghorn & Angela Robinson & Richard Smith, 2015. "Developing a Capability-Based Questionnaire for Assessing Well-Being in Patients with Chronic Pain," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 120(3), pages 897-916, February.
    8. Nelsensius Klau Fauk & Lillian Mwanri & Karen Hawke & Leila Mohammadi & Paul Russell Ward, 2022. "Psychological and Social Impact of HIV on Women Living with HIV and Their Families in Low- and Middle-Income Asian Countries: A Systematic Search and Critical Review," IJERPH, MDPI, vol. 19(11), pages 1-25, May.
    9. Campbell, Chadwick K., 2021. "Structural and intersectional biographical disruption: The case of HIV disclosure among a sample of black gay and bisexual men," Social Science & Medicine, Elsevier, vol. 280(C).
    10. Dassieu, Lise & Kaboré, Jean-Luc & Choinière, Manon & Arruda, Nelson & Roy, Élise, 2020. "Painful lives: Chronic pain experience among people who use illicit drugs in Montreal (Canada)," Social Science & Medicine, Elsevier, vol. 246(C).
    11. Anita Ghai & Suchaita Tenneti, 2024. "An Autoethnographic Reflection of COVID-19 and/as Biographical Disruption," Indian Journal of Gender Studies, Centre for Women's Development Studies, vol. 31(1), pages 43-60, February.
    12. Nelsensius Klau Fauk & Gregorius Abanit Asa & Caitlan McLean & Paul Russell Ward, 2023. "“I Was Very Shocked, I Wanted It to Be Over”: A Qualitative Exploration of Suicidal Ideation and Attempts among Women Living with HIV in Indonesia," IJERPH, MDPI, vol. 21(1), pages 1-14, December.
    13. Barry, L.E. & O'Neill, S. & Heaney, L.G. & O'Neill, C., 2021. "Stress-related health depreciation: Using allostatic load to predict self-rated health," Social Science & Medicine, Elsevier, vol. 283(C).
    14. Onome Henry Osokpo & Lisa M. Lewis & Uchechukwu Ikeaba & Jesse Chittams & Frances K. Barg & Barbara Riegel, 2022. "Self-Care of African Immigrant Adults with Chronic Illness," Clinical Nursing Research, , vol. 31(3), pages 413-425, March.
    15. Nelsensius Klau Fauk & Hailay Abrha Gesesew & Alfonsa Liquory Seran & Christopher Raymond & Roheena Tahir & Paul Russell Ward, 2022. "Barriers to Accessing HIV Care Services in Host Low and Middle Income Countries: Views and Experiences of Indonesian Male Ex-Migrant Workers Living with HIV," IJERPH, MDPI, vol. 19(21), pages 1-14, November.
    16. Bell, Sarah L. & Tyrrell, Jessica & Phoenix, Cassandra, 2016. "Ménière's disease and biographical disruption: Where family transitions collide," Social Science & Medicine, Elsevier, vol. 166(C), pages 177-185.
    17. Lazare Manirankunda & Aletha Wallace & Charles Ddungu & Christiana Nöstlinger, 2021. "Stigma Mechanisms and Outcomes among Sub-Saharan African Descendants in Belgium—Contextualizing the HIV Stigma Framework," IJERPH, MDPI, vol. 18(16), pages 1-17, August.
    18. Elyssa M. Shoup & Thomas Hormenu & Nana H. Osei-Tutu & M. C. Sage Ishimwe & Arielle C. Patterson & Christopher W. DuBose & Annemarie Wentzel & Margrethe F. Horlyck-Romanovsky & Anne E. Sumner, 2020. "Africans Who Arrive in the United States before 20 Years of Age Maintain Both Cardiometabolic Health and Cultural Identity: Insight from the Africans in America Study," IJERPH, MDPI, vol. 17(24), pages 1-14, December.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:21:y:2024:i:6:p:782-:d:1415610. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.