IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v246y2020ics0277953619307294.html
   My bibliography  Save this article

Painful lives: Chronic pain experience among people who use illicit drugs in Montreal (Canada)

Author

Listed:
  • Dassieu, Lise
  • Kaboré, Jean-Luc
  • Choinière, Manon
  • Arruda, Nelson
  • Roy, Élise

Abstract

The current opioid crisis in North America has strengthened the boundary between “genuine chronic pain patients” and “drug addicts,” though these categories are not mutually exclusive. Despite its high prevalence —more than double the general population rate— chronic pain among people who use illicit drugs (PWUD) remains an overlooked issue in both health and social sciences. Using the theoretical framework of sociology of illness experience, the aim of this qualitative study was to understand how the experience of illicit drug use shapes the chronic pain experience. We conducted in-depth interviews with 25 individuals who used street opioids and/or cocaine (with or without any other drug) and had suffered from chronic pain for three months or more. Participants were recruited from July 2017 to May 2018, in Montreal (Canada). Social deprivation and drug use increased PWUD's exposure to a wide range of health issues including chronic pain. Even when intense, pain was often described as peripheral in their life given their many other problems. They experienced double stigmatization due to the cumulation of two socially devalued statuses, “drug addicts” and “chronic pain sufferers.” Their attempts to avoid stigma included valuing their toughness/endurance and pursuing physical activities despite the pain. Some reported using substances like cocaine or heroin to meet social expectations of performance regardless of pain. This study improves the knowledge on illness experiences within deprived social settings by showing how marginalization and stigma render PWUD's pain clinically and socially invisible.

Suggested Citation

  • Dassieu, Lise & Kaboré, Jean-Luc & Choinière, Manon & Arruda, Nelson & Roy, Élise, 2020. "Painful lives: Chronic pain experience among people who use illicit drugs in Montreal (Canada)," Social Science & Medicine, Elsevier, vol. 246(C).
  • Handle: RePEc:eee:socmed:v:246:y:2020:i:c:s0277953619307294
    DOI: 10.1016/j.socscimed.2019.112734
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953619307294
    Download Restriction: Full text for ScienceDirect subscribers only

    File URL: https://libkey.io/10.1016/j.socscimed.2019.112734?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Saunders, Benjamin & Bartlam, Bernadette & Artus, Majid & Konstantinou, Kika, 2018. "Biographical suspension and liminality of Self in accounts of severe sciatica," Social Science & Medicine, Elsevier, vol. 218(C), pages 28-36.
    2. Daftary, Amrita, 2012. "HIV and tuberculosis: The construction and management of double stigma," Social Science & Medicine, Elsevier, vol. 74(10), pages 1512-1519.
    3. Corbett, Mandy & Foster, Nadine E. & Ong, Bie Nio, 2007. "Living with low back pain--Stories of hope and despair," Social Science & Medicine, Elsevier, vol. 65(8), pages 1584-1594, October.
    4. Baszanger, Isabelle, 1989. "Pain: Its experience and treatments," Social Science & Medicine, Elsevier, vol. 29(3), pages 425-434, January.
    5. Lonardi, Cristina, 2007. "The passing dilemma in socially invisible diseases: Narratives on chronic headache," Social Science & Medicine, Elsevier, vol. 65(8), pages 1619-1629, October.
    6. Garro, Linda C., 1994. "Narrative representations of chronic illness experience: cultural models of illness, mind, and body in stories concerning the Temporomandibular Joint (TMJ)," Social Science & Medicine, Elsevier, vol. 38(6), pages 775-788, March.
    7. Vrecko, Scott, 2015. "Everyday drug diversions: A qualitative study of the illicit exchange and non-medical use of prescription stimulants on a university campus," Social Science & Medicine, Elsevier, vol. 131(C), pages 297-304.
    8. Glenton, Claire, 2003. "Chronic back pain sufferers--striving for the sick role," Social Science & Medicine, Elsevier, vol. 57(11), pages 2243-2252, December.
    9. Eaves, Emery R., 2015. "“Just Advil”: Harm reduction and identity construction in the consumption of over-the-counter medication for chronic pain," Social Science & Medicine, Elsevier, vol. 146(C), pages 147-154.
    10. Llewellyn, Henry & Low, Joe & Smith, Glenn & Hopkins, Katherine & Burns, Aine & Jones, Louise, 2014. "Narratives of continuity among older people with late stage chronic kidney disease who decline dialysis," Social Science & Medicine, Elsevier, vol. 114(C), pages 49-56.
    11. Richardson, Jane C. & Ong, Bie Nio & Sim, Julius, 2006. "Is chronic widespread pain biographically disruptive?," Social Science & Medicine, Elsevier, vol. 63(6), pages 1573-1585, September.
    12. Pryma, Jane, 2017. "“Even my sister says I'm acting like a crazy to get a check”: Race, gender, and moral boundary-work in women's claims of disabling chronic pain," Social Science & Medicine, Elsevier, vol. 181(C), pages 66-73.
    13. Conrad, Peter, 1990. "Qualitative research on chronic illness: A commentary on method and conceptual development," Social Science & Medicine, Elsevier, vol. 30(11), pages 1257-1263, January.
    14. May McCreaddie & Imogen Lyons & Debbie Watt & Elspeth Ewing & Jeanette Croft & Marion Smith & Jennifer Tocher, 2010. "Routines and rituals: a grounded theory of the pain management of drug users in acute care settings," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(19‐20), pages 2730-2740, October.
    15. Werner, Anne & Isaksen, L.W.Lise Widding & Malterud, Kirsti, 2004. "'I am not the kind of woman who complains of everything': Illness stories on self and shame in women with chronic pain," Social Science & Medicine, Elsevier, vol. 59(5), pages 1035-1045, September.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Philip Kinghorn & Angela Robinson & Richard Smith, 2015. "Developing a Capability-Based Questionnaire for Assessing Well-Being in Patients with Chronic Pain," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 120(3), pages 897-916, February.
    2. Madden, Sue & Sim, Julius, 2006. "Creating meaning in fibromyalgia syndrome," Social Science & Medicine, Elsevier, vol. 63(11), pages 2962-2973, December.
    3. Eaves, Emery R., 2015. "“Just Advil”: Harm reduction and identity construction in the consumption of over-the-counter medication for chronic pain," Social Science & Medicine, Elsevier, vol. 146(C), pages 147-154.
    4. Tan, Catherine D., 2018. "“I'm a normal autistic person, not an abnormal neurotypical”: Autism Spectrum Disorder diagnosis as biographical illumination," Social Science & Medicine, Elsevier, vol. 197(C), pages 161-167.
    5. Kathy Charmaz & Virginia Olesen, 1997. "Ethnographic Research in Medical Sociology," Sociological Methods & Research, , vol. 25(4), pages 452-494, May.
    6. Travers, Michele Kerry & Lawler, Jocalyn, 2008. "Self within a climate of contention: Experiences of chronic fatigue syndrome," Social Science & Medicine, Elsevier, vol. 66(2), pages 315-326, January.
    7. Nettleton, Sarah, 2006. "'I just want permission to be ill': Towards a sociology of medically unexplained symptoms," Social Science & Medicine, Elsevier, vol. 62(5), pages 1167-1178, March.
    8. Bell, Sarah L. & Tyrrell, Jessica & Phoenix, Cassandra, 2016. "Ménière's disease and biographical disruption: Where family transitions collide," Social Science & Medicine, Elsevier, vol. 166(C), pages 177-185.
    9. Melander, Stina, 2023. "Different logics of pain: the gendered dimension of chronic pain in a relational setting," Social Science & Medicine, Elsevier, vol. 335(C).
    10. Aujoulat, Isabelle & Marcolongo, Renzo & Bonadiman, Leopoldo & Deccache, Alain, 2008. "Reconsidering patient empowerment in chronic illness: A critique of models of self-efficacy and bodily control," Social Science & Medicine, Elsevier, vol. 66(5), pages 1228-1239, March.
    11. Pilkington, Karen & Ridge, Damien T. & Igwesi-Chidobe, Chinonso N. & Chew-Graham, Carolyn A. & Little, Paul & Babatunde, Opeyemi & Corp, Nadia & McDermott, Clare & Cheshire, Anna, 2020. "A relational analysis of an invisible illness: A meta-ethnography of people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) and their support needs," Social Science & Medicine, Elsevier, vol. 265(C).
    12. Phillips, Tarryn, 2012. "Repressive authenticity in the quest for legitimacy: Surveillance and the contested illness lawsuit," Social Science & Medicine, Elsevier, vol. 75(10), pages 1762-1768.
    13. Nicole Brown, 2021. "The Social Course of Fibromyalgia: Resisting Processes of Marginalisation," IJERPH, MDPI, vol. 19(1), pages 1-13, December.
    14. Richardson, Jane C. & Ong, Bie Nio & Sim, Julius, 2006. "Is chronic widespread pain biographically disruptive?," Social Science & Medicine, Elsevier, vol. 63(6), pages 1573-1585, September.
    15. Luechai Sringernyuang & Tida Sottiyotin, 2022. "“Ya Luk Ka Tan Yoo”: An Ethnography of Filial Piety Culture, Medication Usage, and Health Perceptions of the Elderly in Rural Southern Thailand," IJERPH, MDPI, vol. 19(19), pages 1-10, September.
    16. Lonardi, Cristina, 2007. "The passing dilemma in socially invisible diseases: Narratives on chronic headache," Social Science & Medicine, Elsevier, vol. 65(8), pages 1619-1629, October.
    17. Rhodes, Tim & Bernays, Sarah & Terzic, Katarina Jankovic, 2009. "Medical promise and the recalibration of expectation: Hope and HIV treatment engagement in a transitional setting," Social Science & Medicine, Elsevier, vol. 68(6), pages 1050-1059, March.
    18. Higgins, Angela & Porter, Sam & O'Halloran, Peter, 2014. "General practitioners' management of the long-term sick role," Social Science & Medicine, Elsevier, vol. 107(C), pages 52-60.
    19. Sommerland, Nina & Masquillier, Caroline & Rau, Asta & Engelbrecht, Michelle & Kigozi, Gladys & Pliakas, Triantafyllos & Janse van Rensburg, Andre & Wouters, Edwin, 2020. "Reducing HIV- and TB-Stigma among healthcare co-workers in South Africa: Results of a cluster randomised trial," Social Science & Medicine, Elsevier, vol. 266(C).
    20. Wamsiedel, Marius, 2020. "Credibility work and moral evaluation at the ED," Social Science & Medicine, Elsevier, vol. 248(C).

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:246:y:2020:i:c:s0277953619307294. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.