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Developing a Capability-Based Questionnaire for Assessing Well-Being in Patients with Chronic Pain

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  • Philip Kinghorn
  • Angela Robinson
  • Richard Smith

Abstract

This paper reports a qualitative study which sought to operationalise Sen’s capability approach in the context of chronic pain. The resulting capability-instrument will allow treatments and services to be evaluated according to whether they enable users to achieve those things which they value in life. This is particularly important in chronic conditions, where the emphasis is often on helping the patient to live their life as fully as possible despite persistent symptoms. Participatory methods were used to identify a list of capabilities deemed important to those with chronic pain. Respondents were recruited through a Pain Management Clinic in the East of England (n = 16). Focus groups were followed-up by individual interviews (n = 6). The following eight capabilities were identified as being important: Love and social inclusion; Enjoyment; Respect and Identity; Remaining physically and mentally active; Independence and autonomy; Societal and family roles; Physical and mental well-being; Feeling secure about the future. These have been developed into a questionnaire for self-completion by service users. The impact of chronic pain on well-being extends well beyond health symptoms and the range of health functionings typically considered when evaluating services. The capability-instrument is intended to supplement current evidence by assessing what service users are enabled to do. In its current form it will also be a useful tool for those seeking to deliver patient-centred care. Additional research into valuation and a decision-rule will progress capability as a stand-alone alternative economic framework. Copyright Springer Science+Business Media Dordrecht 2015

Suggested Citation

  • Philip Kinghorn & Angela Robinson & Richard Smith, 2015. "Developing a Capability-Based Questionnaire for Assessing Well-Being in Patients with Chronic Pain," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 120(3), pages 897-916, February.
    • Handle: RePEc:spr:soinre:v:120:y:2015:i:3:p:897-916
    DOI: 10.1007/s11205-014-0625-7
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    References listed on IDEAS

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    1. Paul Anand & Graham Hunter & Ron Smith, 2005. "Capabilities and Well-Being: Evidence Based on the Sen–Nussbaum Approach to Welfare," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 74(1), pages 9-55, October.
    2. Simon, Judit & Anand, Paul & Gray, Alastair & Rugkåsa, Jorun & Yeeles, Ksenija & Burns, Tom, 2013. "Operationalising the capability approach for outcome measurement in mental health research," Social Science & Medicine, Elsevier, vol. 98(C), pages 187-196.
    3. Richardson, Jane C. & Ong, Bie Nio & Sim, Julius, 2006. "Is chronic widespread pain biographically disruptive?," Social Science & Medicine, Elsevier, vol. 63(6), pages 1573-1585, September.
    4. Coast, Joanna & Smith, Richard D. & Lorgelly, Paula, 2008. "Welfarism, extra-welfarism and capability: The spread of ideas in health economics," Social Science & Medicine, Elsevier, vol. 67(7), pages 1190-1198, October.
    5. Werner, Anne & Isaksen, L.W.Lise Widding & Malterud, Kirsti, 2004. "'I am not the kind of woman who complains of everything': Illness stories on self and shame in women with chronic pain," Social Science & Medicine, Elsevier, vol. 59(5), pages 1035-1045, September.
    6. Viswanathan, Madhubalan & Sudman, Seymour & Johnson, Michael, 2004. "Maximum versus meaningful discrimination in scale response:: Implications for validity of measurement of consumer perceptions about products," Journal of Business Research, Elsevier, vol. 57(2), pages 108-124, February.
    7. Corbett, Mandy & Foster, Nadine E. & Ong, Bie Nio, 2007. "Living with low back pain--Stories of hope and despair," Social Science & Medicine, Elsevier, vol. 65(8), pages 1584-1594, October.
    8. Coast, Joanna, 2009. "Maximisation in extra-welfarism: A critique of the current position in health economics," Social Science & Medicine, Elsevier, vol. 69(5), pages 786-792, September.
    9. Grewal, Ini & Lewis, Jane & Flynn, Terry & Brown, Jackie & Bond, John & Coast, Joanna, 2006. "Developing attributes for a generic quality of life measure for older people: Preferences or capabilities?," Social Science & Medicine, Elsevier, vol. 62(8), pages 1891-1901, April.
    10. Ingrid Robeyns, 2005. "Selecting Capabilities for Quality of Life Measurement," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 74(1), pages 191-215, October.
    11. Joanna Coast & Richard Smith & Paula Lorgelly, 2008. "Should the capability approach be applied in Health Economics?," Health Economics, John Wiley & Sons, Ltd., vol. 17(6), pages 667-670, June.
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    Cited by:

    1. Judith Dams & Elisabeth Huynh & Steffi Riedel-Heller & Margrit Löbner & Christian Brettschneider & Hans-Helmut König, 2021. "German tariffs for the ICECAP-Supportive Care Measure (ICECAP-SCM) for use in economic evaluations at the end of life," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 22(3), pages 365-380, April.
    2. Kibel, Mia & Vanstone, Meredith, 2017. "Reconciling ethical and economic conceptions of value in health policy using the capabilities approach: A qualitative investigation of Non-Invasive Prenatal Testing," Social Science & Medicine, Elsevier, vol. 195(C), pages 97-104.
    3. Mitchell, Paul Mark & Roberts, Tracy E. & Barton, Pelham M. & Coast, Joanna, 2015. "Assessing sufficient capability: A new approach to economic evaluation," Social Science & Medicine, Elsevier, vol. 139(C), pages 71-79.

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