IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v20y2023i3p1892-d1041711.html
   My bibliography  Save this article

Caregivers’ Experiences with School–Work Transitions for Their Children with Disorders of Intellectual Development

Author

Listed:
  • Veerle Garrels

    (Department of Vocational Teacher Education, Oslo Metropolitan University, 0130 Oslo, Norway)

  • Hanne Marie Høybråten Sigstad

    (Department of Special Needs Education, University of Oslo, 0318 Oslo, Norway)

Abstract

During the period of school–work transition, caregivers of young adults with disorders of intellectual development (ID) often play an extended and leading role in supporting their children. This article explores caregivers’ overall experiences with their children’s school–work transition. Ten qualitative in-depth interviews were carried out with eleven parents/guardians of ten young adults with disorders of ID. Through reflexive thematic analysis, the following themes emerged: (i) varying degrees of preparation for employment during school years; (ii) the experience of transition collapse; (iii) struggling to navigate the system; (iv) caregivers’ ambitions and high expectations; and (v) positive meetings with professionals. All caregivers in our study had clear ambitions about employment for their children, and they supported them by advocating for their rights and by collaborating as best as possible with the support system. However, their experiences bring to light how the transition process often appears random and without an overarching implementation strategy. The overall picture of the transition process is a time of concern and stress for caregivers, with room for improvement in most areas.

Suggested Citation

  • Veerle Garrels & Hanne Marie Høybråten Sigstad, 2023. "Caregivers’ Experiences with School–Work Transitions for Their Children with Disorders of Intellectual Development," IJERPH, MDPI, vol. 20(3), pages 1-13, January.
  • Handle: RePEc:gam:jijerp:v:20:y:2023:i:3:p:1892-:d:1041711
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/20/3/1892/pdf
    Download Restriction: no

    File URL: https://www.mdpi.com/1660-4601/20/3/1892/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Christoph Becker & Isadora Kirchmaier & Stefan T Trautmann, 2019. "Marriage, parenthood and social network: Subjective well-being and mental health in old age," PLOS ONE, Public Library of Science, vol. 14(7), pages 1-20, July.
    2. Michael Brown & Anna Higgins & Juliet MacArthur, 2020. "Transition from child to adult health services: A qualitative study of the views and experiences of families of young adults with intellectual disabilities," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(1-2), pages 195-207, January.
    3. Nathaniel Scherer & Ibone Verhey & Hannah Kuper, 2019. "Depression and anxiety in parents of children with intellectual and developmental disabilities: A systematic review and meta-analysis," PLOS ONE, Public Library of Science, vol. 14(7), pages 1-18, July.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Siok Swan Tan & Irene N. Fierloos & Xuxi Zhang & Elin Koppelaar & Tamara Alhambra-Borras & Tasos Rentoumis & Greg Williams & Tomislav Rukavina & Rob van Staveren & Jordi Garces-Ferrer & Carmen B. Fran, 2020. "The Association between Loneliness and Health Related Quality of Life (HR-QoL) among Community-Dwelling Older Citizens," IJERPH, MDPI, vol. 17(2), pages 1-12, January.
    2. Magdalena Grabowska & Agata Górny & Małgorzata Kalbarczyk, 2024. "Why the Happiest Moments in Life are Sometimes Short? The Role of Psychological Traits and Socio-Economic Circumstances," Working Papers 2024-06, Faculty of Economic Sciences, University of Warsaw.
    3. Dominika Fijałkowska & Eleonora Bielawska-Batorowicz, 2021. "Psychometric Properties of the Polish Version of the Parental Feelings Inventory," IJERPH, MDPI, vol. 18(11), pages 1-13, June.
    4. Poon, Abner Weng Cheong & Cassaniti, Maria & Karan, Prasheela & Ow, Rosaleen, 2022. "Perceived needs and wellbeing of Vietnamese parents caring for children with disability," Children and Youth Services Review, Elsevier, vol. 136(C).
    5. Bruno Arpino & Jordi Gumà & Albert JuliÃ, 2021. "Deviations From Standard Family Histories and Subjective Wellbeing at Older Ages," Econometrics Working Papers Archive 2021_16, Universita' degli Studi di Firenze, Dipartimento di Statistica, Informatica, Applicazioni "G. Parenti".
    6. David Lobato & Francisco Montesinos & Eduardo Polín & Saray Cáliz, 2022. "Acceptance and Commitment Training Focused on Psychological Flexibility for Family Members of Children with Intellectual Disabilities," IJERPH, MDPI, vol. 19(21), pages 1-12, October.
    7. Roy McConkey, 2024. "Creating Family-Centred Support for Preschoolers with Developmental Disabilities in Low-Income Countries: A Rapid Review to Guide Practitioners," IJERPH, MDPI, vol. 21(6), pages 1-19, May.
    8. Hans Kristian Maridal & Hanne Marit Bjørgaas & Kristen Hagen & Egil Jonsbu & Pashupati Mahat & Shankar Malakar & Signe Dørheim, 2021. "Psychological Distress among Caregivers of Children with Neurodevelopmental Disorders in Nepal," IJERPH, MDPI, vol. 18(5), pages 1-13, March.
    9. Christoph K. Becker & Stefan T. Trautmann, 2022. "Does Happiness Increase in Old Age? Longitudinal Evidence from 20 European Countries," Journal of Happiness Studies, Springer, vol. 23(7), pages 3625-3654, October.
    10. Lucía I. Llinares-Insa & Ana M. Casino-García & Josefa García-Pérez, 2020. "Subjective Well-Being, Emotional Intelligence, and Mood of Parents: A Model of Relationships. Impact of Giftedness," Sustainability, MDPI, vol. 12(21), pages 1-22, October.
    11. Dembo, Robert S. & Huntington, Nick & Mitra, Monika & Rudolph, Abby E. & Lachman, Margie E. & Mailick, Marsha R., 2022. "Social network typology and health among parents of children with developmental disabilities: Results from a national study of midlife adults," Social Science & Medicine, Elsevier, vol. 292(C).
    12. Lauren Grove & Yingying Yang & Dai’jah Diggs & Arielle Hershkovich, 2022. "Parental Participation in Intellectual and Developmental Disability Research: A Review of Diversity," Disabilities, MDPI, vol. 2(2), pages 1-16, April.
    13. David Lobato & Francisco Montesinos & Juan M. Flujas-Contreras, 2022. "Psychological Flexibility Is Associated with Parental Stress in Relatives of People with Intellectual Disabilities," IJERPH, MDPI, vol. 19(10), pages 1-10, May.
    14. David Lobato & Francisco Montesinos & Eduardo Polín & Saray Cáliz, 2023. "Third-Generation Behavioural Therapies in the Context of Neurodevelopmental Problems and Intellectual Disabilities: A Randomised Clinical Trial with Parents," IJERPH, MDPI, vol. 20(5), pages 1-13, March.
    15. Mats Nylén-Eriksen & Ann Kristin Bjørnnes & Hege Hafstad & Irene Lie & Ellen Karine Grov & Mariela Loreto Lara-Cabrera, 2022. "Validating the Five-Item World Health Organization Well-Being Index," IJERPH, MDPI, vol. 19(18), pages 1-12, September.
    16. Tracey Smythe & Antony Duttine & Ana Carolina Dias Vieira & Barbara da Silveira Madeira de Castro & Hannah Kuper, 2019. "Engagement of Fathers in Parent Group Interventions for Children with Congenital Zika Syndrome: A Qualitative Study," IJERPH, MDPI, vol. 16(20), pages 1-10, October.
    17. Lisa Becker & Sarah Negash & Nadja Kartschmit & Alexander Kluttig & Rafael Mikolajczyk, 2021. "Association between Parenthood and Health Behaviour in Later Life—Results from the Population-Based CARLA Study," IJERPH, MDPI, vol. 19(1), pages 1-12, December.
    18. Ying Hao & Saijun Zhang & Austin Conner & Na Youn Lee, 2021. "The Evolution of Telepractice Use during the COVID-19 Pandemic: Perspectives of Pediatric Speech-Language Pathologists," IJERPH, MDPI, vol. 18(22), pages 1-18, November.
    19. Kasper Sipowicz & Tadeusz Pietras & Marlena Podlecka & Łukasz Mokros, 2022. "The Association between Depression and Perceived Stress among Parents of Autistic and Non-Autistic Children—The Role of Loneliness," IJERPH, MDPI, vol. 19(5), pages 1-9, March.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:20:y:2023:i:3:p:1892-:d:1041711. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.