IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v19y2022i1p599-d718311.html
   My bibliography  Save this article

The Psychosocial Burden of Families with Childhood Blood Cancer

Author

Listed:
  • Florencia Borrescio-Higa

    (Business School and GobLab UAI, Universidad Adolfo Ibáñez, Santiago 7941169, Chile)

  • Nieves Valdés

    (Business School and GobLab UAI, Universidad Adolfo Ibáñez, Santiago 7941169, Chile)

Abstract

Cancer is the second leading cause of death for children, and leukemias are the most common pediatric cancer diagnoses in Chile. Childhood cancer is a traumatic experience and is associated with distress, pain, and other negative experiences for patients and their families. Thus, psychosocial costs represent a large part of the overall burden of cancer. This study examines psychosocial experiences in a sample of 90 families of children with blood-related cancer in Chile. We provide a global overview of the family experience, focusing on patients, caregivers, and siblings. We find that most families report a negative impact upon diagnosis; disruptions in family dynamics; a range of negative feelings of the patient, such as depression, discouragement, and irritability; and difficulty with social lives. Additionally, they report negative effects in the relationship between the siblings of the patient and their parents, and within their caregivers’ spouse/partner relationship, as well as a worsening of the economic condition of the primary caregiver. Furthermore, over half of the families in the sample had to move due to diagnosis and/or treatment. Promoting interventions that can help patients, siblings, and parents cope with distress and promote resilience and well-being are important.

Suggested Citation

  • Florencia Borrescio-Higa & Nieves Valdés, 2022. "The Psychosocial Burden of Families with Childhood Blood Cancer," IJERPH, MDPI, vol. 19(1), pages 1-14, January.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:1:p:599-:d:718311
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/19/1/599/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/1660-4601/19/1/599/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Hye Chong Hong & Ari Min & Sungkyoung Choi, 2021. "Living with the Late Effects of Childhood Cancer Treatment: A Descriptive Qualitative Study," IJERPH, MDPI, vol. 18(16), pages 1-14, August.
    2. Florencia Borrescio-Higa & Nieves Valdés, 2021. "Medical Cost of Cancer Care for Privately Insured Children in Chile," IJERPH, MDPI, vol. 18(13), pages 1-15, June.
    3. Raimundo Soto & Arístides Torche, 2004. "Spatial Inequality, Migration and Economic Growth in Chile," Latin American Journal of Economics-formerly Cuadernos de Economía, Instituto de Economía. Pontificia Universidad Católica de Chile., vol. 41(124), pages 401-424.
    4. Atanu Sengupta & Sanjoy De, 2020. "Review of Literature," India Studies in Business and Economics, in: Assessing Performance of Banks in India Fifty Years After Nationalization, chapter 0, pages 15-30, Springer.
    5. Raimundo Soto & Aristides Torche, 2004. "Spatial Inequality in Chile," Econometric Society 2004 Latin American Meetings 241, Econometric Society.
    6. Filiberto Toledano-Toledano & David Luna & José Moral de la Rubia & Silvia Martínez Valverde & Carlos Alberto Bermúdez Morón & Marcela Salazar García & Mario José Vasquez Pauca, 2021. "Psychosocial Factors Predicting Resilience in Family Caregivers of Children with Cancer: A Cross-Sectional Study," IJERPH, MDPI, vol. 18(2), pages 1-13, January.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Maria Carolina Neves & Ana Bártolo & Judith B. Prins & Célia M. D. Sales & Sara Monteiro, 2023. "Taking Care of an Adolescent and Young Adult Cancer Survivor: A Systematic Review of the Impact of Cancer on Family Caregivers," IJERPH, MDPI, vol. 20(8), pages 1-17, April.
    2. Silvia Spaggiari & Giulia Calignano & Maria Montanaro & Silvana Zaffani & Valerio Cecinati & Claudio Maffeis & Daniela Di Riso, 2024. "Examining Coping Strategies and Their Relation with Anxiety: Implications for Children Diagnosed with Cancer or Type 1 Diabetes and Their Caregivers," IJERPH, MDPI, vol. 21(1), pages 1-17, January.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Gallego Francisco, 2013. "When Does Inter-School Competition Matter? Evidence from the Chilean “Voucher” System," The B.E. Journal of Economic Analysis & Policy, De Gruyter, vol. 13(2), pages 525-562, August.
    2. Faguet, Jean-Paul & Shami, Mahvish, 2008. "Fiscal policy and spatial inequality in Latin America and beyond," LSE Research Online Documents on Economics 27162, London School of Economics and Political Science, LSE Library.
    3. Cárdenas-Retamal, Roberto & Dresdner-Cid, Jorge & Ceballos-Concha, Adams, 2021. "Impact assessment of salmon farming on income distribution in remote coastal areas: The Chilean case," Food Policy, Elsevier, vol. 101(C).
    4. Elena Vakulenko, 2016. "Does migration lead to regional convergence in Russia?," International Journal of Economic Policy in Emerging Economies, Inderscience Enterprises Ltd, vol. 9(1), pages 1-25.
    5. Modrego, Félix & Berdegué, Julio A., 2015. "A Large-Scale Mapping of Territorial Development Dynamics in Latin America," World Development, Elsevier, vol. 73(C), pages 11-31.
    6. Vargas, Enver, 2012. "El impacto del gasto público sobre el proceso de migración interna: Evidencia empírica para el periodo 2002-2007," Revista Estudios Económicos, Banco Central de Reserva del Perú, issue 23, pages 67-81.
    7. Luz María Ferrada & Pilar Zarzosa, 2010. "Diferencias Regionales en la Participación Laboral Femenina en Chile," Latin American Journal of Economics-formerly Cuadernos de Economía, Instituto de Economía. Pontificia Universidad Católica de Chile., vol. 47(136), pages 249-272.
    8. Murat G. Kırdar & D. Şirin Saracoğlu, 2008. "Migration and regional convergence: An empirical investigation for Turkey," Papers in Regional Science, Wiley Blackwell, vol. 87(4), pages 545-566, November.
    9. Valdés, Alberto & Foster, William, 2010. "Reflections on the Role of Agriculture in Pro-Poor Growth," World Development, Elsevier, vol. 38(10), pages 1362-1374, October.
    10. Marcelo Bergolo & Fedora Carbajal, 2010. "Exploring the Urban-Rural Labor Income Gap in Uruguay: A Quantile Regression Decomposition," Revista de Analisis Economico – Economic Analysis Review, Universidad Alberto Hurtado/School of Economics and Business, vol. 25(2), pages 133-168, Diciembre.
    11. Juan Gabriel Brida & Silvia London & Mara Rojas, 2013. "Desempeno económico regional: un análisis dinámico para el caso chileno en el período 1960-2009," Revista de Economía del Rosario, Universidad del Rosario, November.
    12. Félix Modrego & Dusan Paredes & Gianni Romaní, 2017. "Individual and place-based drivers of self-employment in Chile," Small Business Economics, Springer, vol. 49(2), pages 469-492, August.
    13. Tomás Rau & Loreto Reyes & Sergio S. Urzúa, 2013. "The Long-term Effects of Early Lead Exposure: Evidence from a case of Environmental Negligence," NBER Working Papers 18915, National Bureau of Economic Research, Inc.
    14. Modrego, F. & Ramírez, E. & Tartakowsky, A., 2008. "La heterogeneidad espacial del desarrollo económico en Chile," Working papers 009, Rimisp Latin American Center for Rural Development.
    15. Tomás Rau & Sergio Urzúa & Loreto Reyes, 2015. "Early Exposure to Hazardous Waste and Academic Achievement: Evidence from a Case of Environmental Negligence," Journal of the Association of Environmental and Resource Economists, University of Chicago Press, vol. 2(4), pages 527-563.
    16. Fischer, Lorenz Benedikt & Pfaffermayr, Michael, 2018. "The more the merrier? Migration and convergence among European regions," Regional Science and Urban Economics, Elsevier, vol. 72(C), pages 103-114.
    17. Ceren Ozgen & Peter Nijkamp & Jacques Poot, 2009. "The Effect of Migration on Income Convergence: Meta-Analytic Evidence," Tinbergen Institute Discussion Papers 09-022/3, Tinbergen Institute.
    18. Jorge Dresdner & Carlos Sanhueza, 2009. "NOTA TECNICA: Estimación de Series de Salarios Regionales en Chile," Estudios de Economia, University of Chile, Department of Economics, vol. 36(2 Year 20), pages 243-261, December.
    19. García Callejas, Danny, 2011. "Per Capita GDP Convergence in South America, 1960-2007," Borradores Departamento de Economía 8983, Universidad de Antioquia, CIE.
    20. Mr. Bennett W Sutton & Mrs. Genevieve M Lindow & Maria Isabel Serra & Mr. Gustavo Ramirez & Maria Fernanda Pazmino, 2006. "Regional Convergence in Latin America," IMF Working Papers 2006/125, International Monetary Fund.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:19:y:2022:i:1:p:599-:d:718311. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.