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Participation and Inclusion of Children and Youth with Disabilities in Local Communities

Author

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  • Arne H. Eide

    (SINTEF Digital, Health Research, Forskningsveien 1, N-0314 Oslo, Norway
    Department of Social Work, Faculty of Social and Educational Sciences, Norwegian University of Science and Technology, N-7491 Trondheim, Norway)

  • Dag Ofstad

    (Norwegian National Advisory Unit on Disability in Children and Youth (NKBFU), Valnesfjord Health Sports Center (VHSS), N-8215 Valnesfjord, Norway)

  • Marit Støylen

    (SINTEF Digital, Health Research, Forskningsveien 1, N-0314 Oslo, Norway)

  • Emil Hansen

    (Norwegian National Advisory Unit on Disability in Children and Youth (NKBFU), Valnesfjord Health Sports Center (VHSS), N-8215 Valnesfjord, Norway)

  • Marikken Høiseth

    (SINTEF Digital, Health Research, Forskningsveien 1, N-0314 Oslo, Norway
    Department of Design, Faculty of Architecture and Design, Norwegian University of Science and Technology, N-7491 Trondheim, Norway)

Abstract

This research aimed at strengthening the evidence base for interventions to promote the participation and inclusion of children and youth with disabilities in their communities. Four selected municipalities in four different regions of Norway participated. Focus group discussions (FGDs) were carried out in all four municipalities with service providers, children and youth with disabilities, and parents of children and youth with disabilities. The FGDs were used to develop a questionnaire to measure participation indicators. A survey was carried out among 186 children and youth, combining (a) random sampling of children and youth without disabilities and (b) invitations to all children and youth with disabilities, as registered by the municipalities. High-level analyses of the FGDs are presented, indicating the barriers and facilitators for participation for children and youth with disabilities, as well as requests for improvement of services to stimulate participation. The categories of family, technology, and volunteering were identified primarily as facilitators of participation, while school environment was primarily identified as a barrier. The survey measured four different aspects of perception of one’s own participation. Data analyses revealed higher level of environmental barriers among children and youth with disabilities, and lower level of actual participation, satisfaction with one’s own participation and one’s own participation compared with that of peers.

Suggested Citation

  • Arne H. Eide & Dag Ofstad & Marit Støylen & Emil Hansen & Marikken Høiseth, 2022. "Participation and Inclusion of Children and Youth with Disabilities in Local Communities," IJERPH, MDPI, vol. 19(19), pages 1-15, September.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:19:p:11893-:d:920195
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    References listed on IDEAS

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    1. Ghaidaa Khalifa & Peter Rosenbaum & Kathy Georgiades & Eric Duku & Briano Di Rezze, 2020. "Exploring the Participation Patterns and Impact of Environment in Preschool Children with ASD," IJERPH, MDPI, vol. 17(16), pages 1-15, August.
    2. Colin Hoehne & Brittany Baranski & Louiza Benmohammed & Liam Bienstock & Nathan Menezes & Noah Margolese & Dana Anaby, 2020. "Changes in Overall Participation Profile of Youth with Physical Disabilities Following the PREP Intervention," IJERPH, MDPI, vol. 17(11), pages 1-18, June.
    3. United Nations UN, 2015. "Transforming our World: the 2030 Agenda for Sustainable Development," Working Papers id:7559, eSocialSciences.
    4. Alecia Samuels & Shakila Dada & Karin Van Niekerk & Patrik Arvidsson & Karina Huus, 2020. "Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities," IJERPH, MDPI, vol. 17(18), pages 1-12, September.
    5. Shakila Dada & Kirsty Bastable & Santoshi Halder, 2020. "The Role of Social Support in Participation Perspectives of Caregivers of Children with Intellectual Disabilities in India and South Africa," IJERPH, MDPI, vol. 17(18), pages 1-18, September.
    6. Yael Fogel & Naomi Josman & Sara Rosenblum, 2020. "Exploring the Impacts of Environmental Factors on Adolescents’ Daily Participation: A Structural Equation Modelling Approach," IJERPH, MDPI, vol. 18(1), pages 1-12, December.
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