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The Role of Social Support in Participation Perspectives of Caregivers of Children with Intellectual Disabilities in India and South Africa

Author

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  • Shakila Dada

    (Centre for Augmentative and Alternative Communication, Humanities Faculty, University of Pretoria, Pretoria 0002, South Africa)

  • Kirsty Bastable

    (Centre for Augmentative and Alternative Communication, Humanities Faculty, University of Pretoria, Pretoria 0002, South Africa)

  • Santoshi Halder

    (Department of Education, University of Calcutta, Alipore Campus, 1 Reformatory St., Kolkata 700027, India)

Abstract

Caregivers are an intrinsic component of the environment of children with intellectual disabilities. However, caregivers’ capacity to support children’s participation may be linked to the social support that they, as caregivers, receive. Social support may increase participation, educational, psychological, medical and financial opportunities. However, there is a lack of information on social support in middle-income countries. The current study described and compared the social support of caregivers of children with intellectual disabilities by using the Family Support Survey (FSS) in India and South Africa. The different types of social support were subsequently considered in relation to participation, using the Children’s Assessment of Participation and Enjoyment (CAPE). One hundred caregiver–child dyads from India and 123 from South Africa participated in this study. The data were analysed using non-parametric measures. Indian caregivers reported greater availability of more helpful support than did the South African caregivers. Social support was associated with children’s participation diversity (India) and intensity (South Africa). The child-/caregiver-reported participation data showed different associations with participation. Results from this study suggest that perceived social support of caregivers differs between countries and is associated with their child’s participation. These factors need to be considered when generalising results from different countries.

Suggested Citation

  • Shakila Dada & Kirsty Bastable & Santoshi Halder, 2020. "The Role of Social Support in Participation Perspectives of Caregivers of Children with Intellectual Disabilities in India and South Africa," IJERPH, MDPI, vol. 17(18), pages 1-18, September.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:18:p:6644-:d:412478
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    References listed on IDEAS

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    1. Tannistha Samanta & Feinian Chen & Reeve Vanneman, 2015. "Living Arrangements and Health of Older Adults in India," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 70(6), pages 937-947.
    2. Shakila Dada & Kirsty Bastable & Liezl Schlebusch & Santoshi Halder, 2020. "The Participation of Children with Intellectual Disabilities: Including the Voices of Children and Their Caregivers in India and South Africa," IJERPH, MDPI, vol. 17(18), pages 1-13, September.
    3. Deepak Saraswat, 2018. "Gender Composition of Children and Sanitation Behavior In India," Working papers 2018-12, University of Connecticut, Department of Economics.
    4. Douglas Bonett & Thomas Wright, 2000. "Sample size requirements for estimating pearson, kendall and spearman correlations," Psychometrika, Springer;The Psychometric Society, vol. 65(1), pages 23-28, March.
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    1. Arne H. Eide & Dag Ofstad & Marit Støylen & Emil Hansen & Marikken Høiseth, 2022. "Participation and Inclusion of Children and Youth with Disabilities in Local Communities," IJERPH, MDPI, vol. 19(19), pages 1-15, September.
    2. Xanthe Hunt & Melissa Bradshaw & Steyn Lodewyk Vogel & Alberto Vasquez Encalada & Shanice Eksteen & Marguerite Schneider & Kelly Chunga & Leslie Swartz, 2022. "Community Support for Persons with Disabilities in Low- and Middle-Income Countries: A Scoping Review," IJERPH, MDPI, vol. 19(14), pages 1-17, July.
    3. Roopa Srinivasan & Vrushali Kulkarni & Sana Smriti & Rachel Teplicky & Dana Anaby, 2021. "Cross-Cultural Adaptation and Evaluation of the Participation and Environment Measure for Children and Youth to the Indian Context—A Mixed-Methods Study," IJERPH, MDPI, vol. 18(4), pages 1-16, February.

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