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Life Satisfaction and Adaptation in Persons with Parkinson’s Disease—A Qualitative Study

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  • Lina Rosengren

    (Department of Health Sciences, Lund University, S-221 00 Lund, Sweden
    Department of Neurology, Rehabilitation Medicine, Memory Disorders and Geriatrics, Skåne University Hospital, S-221 85 Lund, Sweden)

  • Anna Forsberg

    (Department of Health Sciences, Lund University, S-221 00 Lund, Sweden
    Department of Thoracic Surgery, Skåne University Hospital, S-222 85 Lund, Sweden)

  • Christina Brogårdh

    (Department of Health Sciences, Lund University, S-221 00 Lund, Sweden
    Department of Neurology, Rehabilitation Medicine, Memory Disorders and Geriatrics, Skåne University Hospital, S-221 85 Lund, Sweden)

  • Jan Lexell

    (Department of Health Sciences, Lund University, S-221 00 Lund, Sweden
    Department of Neurology, Rehabilitation Medicine, Memory Disorders and Geriatrics, Skåne University Hospital, S-221 85 Lund, Sweden)

Abstract

Persons with Parkinson’s disease (PD) need to adapt to their progressive disability to achieve and maintain a high degree of life satisfaction (LS), but little is known about the meaning of LS and adaptation. This study aimed to gain an in-depth understanding of the meaning of LS and adaptation in persons with PD. Open-ended in-depth interviews were performed with 13 persons diagnosed with PD, 9 women, 3 men, and one non-binary person (mean age 54 years, mean time since diagnosis 3.4 years). The interviews were analyzed using a phenomenological–hermeneutic approach. The participants were in the process of adapting to their new health situation. There were two quite distinct groups: one that adapted through acceptance and one that struggled to resist the disease and the profound impact it had on their lives. The thematic structural analysis covers eight themes illustrating the meaning of LS and adaptation, through either acceptance or resistance. Adaptation to PD involves a transitional process characterized by either acceptance or resistance, which influences a person’s LS. Acceptance makes LS possible, whereas resistance constitutes a behavioral barrier to adaptation and LS. Rehabilitation professionals need to understand this individual process to be able to support a person with PD to reach and maintain a high level of LS. Understanding the link between LS and adaptation can support rehabilitation professionals to provide targeted interventions for people with PD.

Suggested Citation

  • Lina Rosengren & Anna Forsberg & Christina Brogårdh & Jan Lexell, 2021. "Life Satisfaction and Adaptation in Persons with Parkinson’s Disease—A Qualitative Study," IJERPH, MDPI, vol. 18(6), pages 1-12, March.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:6:p:3308-:d:522491
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    References listed on IDEAS

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    1. Ruut Veenhoven, 1996. "Developments in satisfaction-research," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 37(1), pages 1-46, January.
    2. William Pavot & Ed Diener, 1993. "The affective and cognitive context of self-reported measures of subjective well-being," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 28(1), pages 1-20, January.
    3. Joanna Coast & Cara Bailey & Rosanna Orlando & Kathy Armour & Rachel Perry & Louise Jones & Philip Kinghorn, 2018. "Adaptation, Acceptance and Adaptive Preferences in Health and Capability Well-Being Measurement Amongst Those Approaching End of Life," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 11(5), pages 539-546, October.
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    Cited by:

    1. Maria Nolvi & Anna Forsberg & Christina Brogårdh & Lars Jacobsson & Jan Lexell, 2022. "The Meaning of Sense of Coherence (SOC) in Persons with Late Effects of Polio—A Qualitative Study," IJERPH, MDPI, vol. 19(10), pages 1-13, May.
    2. Lina Rosengren & Anna Forsberg & Christina Brogårdh & Jan Lexell, 2021. "Social Belonging as the Main Concern for Achieving Life Satisfaction When Adapting to Parkinson’s Disease," IJERPH, MDPI, vol. 18(16), pages 1-11, August.

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