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Social Belonging as the Main Concern for Achieving Life Satisfaction When Adapting to Parkinson’s Disease

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  • Lina Rosengren

    (Department of Health Sciences, Lund University, S-221 00 Lund, Sweden
    Department of Neurology, Rehabilitation Medicine, Memory Disorders and Geriatrics, Skåne University Hospital, S-221 85 Lund, Sweden)

  • Anna Forsberg

    (Department of Health Sciences, Lund University, S-221 00 Lund, Sweden
    Department of Thoracic Surgery, Skåne University Hospital, S-222 85 Lund, Sweden)

  • Christina Brogårdh

    (Department of Health Sciences, Lund University, S-221 00 Lund, Sweden
    Department of Neurology, Rehabilitation Medicine, Memory Disorders and Geriatrics, Skåne University Hospital, S-221 85 Lund, Sweden)

  • Jan Lexell

    (Department of Health Sciences, Lund University, S-221 00 Lund, Sweden
    Department of Neurology, Rehabilitation Medicine, Memory Disorders and Geriatrics, Skåne University Hospital, S-221 85 Lund, Sweden)

Abstract

Parkinson’s disease (PD) is a complex, progressive neurological condition that impacts daily life and reduces life satisfaction (LS). To achieve and maintain high LS, persons with PD (PwPD) must go through a process of change to adapt to their new life situation. However, our knowledge about this process is very limited. The aim of this study was to investigate the process of change, and the main concern in this process, in PwPD. To study the transitional experience of PwPD, an inductive qualitative approach, using Grounded Theory (GT), was employed. Thirteen participants (9 women, 3 men and 1 non-binary), with a mean age of 54 years (range from 47–62 years), participated in in-depth interviews. Data showed that social belonging is the main concern in the process of change for PwPD. In this process of change, they use strategies to comprehend, accept, adapt, and balance in their strive for social belonging, which in turn can enhance LS. Health care professionals can use this model with an interdisciplinary approach to support PwPD through a successful process of change to achieve social belonging, and thereby achieving and maintaining LS.

Suggested Citation

  • Lina Rosengren & Anna Forsberg & Christina Brogårdh & Jan Lexell, 2021. "Social Belonging as the Main Concern for Achieving Life Satisfaction When Adapting to Parkinson’s Disease," IJERPH, MDPI, vol. 18(16), pages 1-11, August.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:16:p:8653-:d:615453
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    References listed on IDEAS

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    1. Ruut Veenhoven, 1996. "Developments in satisfaction-research," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 37(1), pages 1-46, January.
    2. Lina Rosengren & Anna Forsberg & Christina Brogårdh & Jan Lexell, 2021. "Life Satisfaction and Adaptation in Persons with Parkinson’s Disease—A Qualitative Study," IJERPH, MDPI, vol. 18(6), pages 1-12, March.
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    Cited by:

    1. Maria Nolvi & Anna Forsberg & Christina Brogårdh & Lars Jacobsson & Jan Lexell, 2022. "The Meaning of Sense of Coherence (SOC) in Persons with Late Effects of Polio—A Qualitative Study," IJERPH, MDPI, vol. 19(10), pages 1-13, May.

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