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Perceived Needs of The Family Caregivers of People with Dementia in a Mediterranean Setting: A Qualitative Study

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  • Sara Moreno-Cámara

    (Department of Nursing, School of Health Sciences, University of Jaén, 23071 Jaén, Spain)

  • Pedro Ángel Palomino-Moral

    (Department of Nursing, School of Health Sciences, University of Jaén, 23071 Jaén, Spain)

  • Lourdes Moral-Fernández

    (University Hospital “San Juan de la Cruz”, Úbeda, 23400 Jaén, Spain)

  • Antonio Frías-Osuna

    (Department of Nursing, School of Health Sciences, University of Jaén, 23071 Jaén, Spain)

  • Laura Parra-Anguita

    (Department of Nursing, School of Health Sciences, University of Jaén, 23071 Jaén, Spain)

  • Rafael del-Pino-Casado

    (Department of Nursing, School of Health Sciences, University of Jaén, 23071 Jaén, Spain)

Abstract

The purpose of this study was to identify, classify and analyze the perceived needs of caregivers of elderly people with dementia during the care process. A descriptive phenomenological qualitative study using seven focus groups was conducted in different primary health care centers in the province of Jaén (Spain) between July 2012 and February 2013. Eighty-two family caregivers who were caring for people with dementia in different stages of the disease were selected by purposeful maximum variation sampling. Data were analyzed and organized thematically, considering the semantic and pragmatic content and field notes. Two main categories of the perceived needs of caregivers were identified. The first was related to the management of caring for a relative with dementia, and the second was related to the management of the caregivers’ own care. Our findings support the provision of comprehensive interventions for the improvement of caregivers’ emotional health that encompass more than one care need. This is where psycho-educational interventions aimed at managing the various aspects of dementia and self-care in caregivers can be accommodated. In addition, proactive interventions to develop important skills to care for a relative with dementia, which are not perceived as needs by the caregivers, are needed. These include skills in family negotiation, planning and searching for resources outside the family.

Suggested Citation

  • Sara Moreno-Cámara & Pedro Ángel Palomino-Moral & Lourdes Moral-Fernández & Antonio Frías-Osuna & Laura Parra-Anguita & Rafael del-Pino-Casado, 2019. "Perceived Needs of The Family Caregivers of People with Dementia in a Mediterranean Setting: A Qualitative Study," IJERPH, MDPI, vol. 16(6), pages 1-12, March.
    • Handle: RePEc:gam:jijerp:v:16:y:2019:i:6:p:993-:d:215301
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    References listed on IDEAS

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    1. Martin Pinquart & Silvia Sörensen, 2003. "Associations of Stressors and Uplifts of Caregiving With Caregiver Burden and Depressive Mood: A Meta-Analysis," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 58(2), pages 112-128.
    2. Alison Abbott, 2011. "Dementia: A problem for our age," Nature, Nature, vol. 475(7355), pages 2-4, July.
    3. Rie Fujisawa & Francesca Colombo, 2009. "The Long-Term Care Workforce: Overview and Strategies to Adapt Supply to a Growing Demand," OECD Health Working Papers 44, OECD Publishing.
    4. Jane Jenson & Stephane Jacobzone, 2000. "Care Allowances for the Frail Elderly and Their Impact on Women Care-Givers," OECD Labour Market and Social Policy Occasional Papers 41, OECD Publishing.
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    Cited by:

    1. Margarita Pérez-Cruz & Laura Parra-Anguita & Catalina López-Martínez & Sara Moreno-Cámara & Rafael del-Pino-Casado, 2019. "Coping and Anxiety in Caregivers of Dependent Older Adult Relatives," IJERPH, MDPI, vol. 16(9), pages 1-10, May.
    2. Jinjie He & Jing Wang & Hongmei Zhong & Chengguo Guan, 2022. "The Effectiveness of Multi-Component Interventions on the Positive and Negative Aspects of Well-Being among Informal Caregivers of People with Dementia: A Systematic Review and Meta-Analysis," IJERPH, MDPI, vol. 19(12), pages 1-16, June.
    3. Margarita Pérez-Cruz & Laura Parra-Anguita & Catalina López-Martínez & Sara Moreno-Cámara & Rafael del-Pino-Casado, 2019. "Burden and Anxiety in Family Caregivers in the Hospital That Debut in Caregiving," IJERPH, MDPI, vol. 16(20), pages 1-14, October.
    4. Martin Kopecky & Hana Tomaskova, 2020. "The Business Process Model and Notation Used for the Representation of Alzheimer’s Disease Patients Care Process," Data, MDPI, vol. 5(1), pages 1-12, February.

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