IDEAS home Printed from https://ideas.repec.org/a/sae/clnure/v33y2024i4p240-252.html
   My bibliography  Save this article

Impact of the Pandemic on Dementia Care and Caregivers: A Qualitative Study

Author

Listed:
  • Juan Francisco Velarde-García
  • Carmen Ortego-Maté
  • Carmen Sarabia-Cobo
  • Aroa Delgado Uria
  • Rosario Fernández-Peña

Abstract

Physical distancing measures to limit contagion in the COVID-19 pandemic made it difficult to care for older persons with dementia. Non-essential home visits were prevented and family caregivers took over most of their care. The aim of our study was to describe the lived experience of peoples living with dementia caregivers during the pandemic regarding the care provided and the person cared for. A qualitative phenomenological design was used. Participants were recruited using purposeful sampling. Informants were selected from primary healthcare centers, day centers, and a community mental health unit. The study participants comprised 21 caregivers. Semi-structured in-depth interviews by telephone were used, and field notes were collected from the researchers. A thematic analysis was conducted. The criteria used to control trustworthiness were credibility, transferability, dependability, and confirmability. Three main themes and six related sub-themes were identified: (1) care for the person with dementia during the pandemic, including lockdown, associated with difficulties in coping with restrictions, deterioration in health, and the impact of the closure of health and social resources; (2) health and social care provided to people with dementia after the disruptions and the care received from primary care prior to hospital or residential admission; and (3) the caregiver’s perspective on the effects of the psycho-emotional impact, and coping strategies adopted in caring. Interventions for people with dementia should be planned in order to prevent the worsening of their health and cognitive status, while also developing programs to prevent stress and alleviate caregiver burden in case of health crises.

Suggested Citation

  • Juan Francisco Velarde-García & Carmen Ortego-Maté & Carmen Sarabia-Cobo & Aroa Delgado Uria & Rosario Fernández-Peña, 2024. "Impact of the Pandemic on Dementia Care and Caregivers: A Qualitative Study," Clinical Nursing Research, , vol. 33(4), pages 240-252, May.
    • Handle: RePEc:sae:clnure:v:33:y:2024:i:4:p:240-252
    DOI: 10.1177/10547738241246023
    as

    Download full text from publisher

    File URL: https://journals.sagepub.com/doi/10.1177/10547738241246023
    Download Restriction: no
    File URL: https://libkey.io/10.1177/10547738241246023?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Martin Pinquart & Silvia Sörensen, 2003. "Associations of Stressors and Uplifts of Caregiving With Caregiver Burden and Depressive Mood: A Meta-Analysis," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 58(2), pages 112-128.
    2. Katherine Carroll Britt & Kathy C. Richards & Kavita Radhakrishnan & Andrea Vanags-Louredo & Eunice Park & Nalaka S. Gooneratne & Liam Fry, 2023. "Religion, Spirituality, and Coping During the Pandemic: Perspectives of Dementia Caregivers," Clinical Nursing Research, , vol. 32(1), pages 94-104, January.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Pavel Bachmann & Jan Hruska, 2022. "Alzheimer Caregiving Problems According to ADLs: Evidence from Facebook Support Groups," IJERPH, MDPI, vol. 19(11), pages 1-15, May.
    2. M Khurram Malik & KS Jacob, 2015. "Psychological morbidity among co-residents of older people in rural South India: Prevalence and risk factors," International Journal of Social Psychiatry, , vol. 61(2), pages 183-187, March.
    3. Bremer, Patrick & Cabrera, Esther & Leino-Kilpi, Helena & Lethin, Connie & Saks, Kai & Sutcliffe, Caroline & Soto, Maria & Zwakhalen, Sandra M.G. & Wübker, Ansgar, 2015. "Informal dementia care: Consequences for caregivers’ health and health care use in 8 European countries," Health Policy, Elsevier, vol. 119(11), pages 1459-1471.
    4. Cheng-Chang Liu & Chang-Franw Lee & Tung Chang & Jing-Jing Liao, 2020. "Exploring the Relationship between the Caregiver’s Stress Load and Dementia Patient Behavior: A Case Study of Dementia Specialist Outpatient Data from the Southern Medical Center of Taiwan," IJERPH, MDPI, vol. 17(14), pages 1-18, July.
    5. Yukie Nakajima & Steven M. Schmidt & Agneta Malmgren Fänge & Mari Ono & Toshiharu Ikaga, 2019. "Relationship between Perceived Indoor Temperature and Self-Reported Risk for Frailty among Community-Dwelling Older People," IJERPH, MDPI, vol. 16(4), pages 1-12, February.
    6. Marie Blaise & Laetitia Dillenseger, 2023. "Informal Caregivers and Life Satisfaction: Empirical Evidence from the Netherlands," Journal of Happiness Studies, Springer, vol. 24(6), pages 1883-1930, August.
    7. Yin LiuPhD & Jooyoung KongPhD & Lauren R BangerterPhD & Steven H ZaritPhD & David M AlmeidaPhD, 2018. "Early Parental Abuse and Daily Assistance to Aging Parents With Disability: Associations With the Middle-Aged Adults’ Daily Well-being," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 73(5), pages 59-68.
    8. Chimdindu Ohayagha & Paul B. Perrin & Annahir N. Cariello & Juan Carlos Arango-Lasprilla, 2021. "Is Helping Really Helping? Health-Related Quality of Life after TBI Predicting Caregiver Depression Symptom Trajectories in Latin America," IJERPH, MDPI, vol. 18(3), pages 1-12, January.
    9. María Gómez-Gallego & Juan Cándido Gómez-Gallego, 2021. "Predictors of Caregiver Burden of Patients with Alzheimer Disease Attending Day-Care Centres," IJERPH, MDPI, vol. 18(20), pages 1-9, October.
    10. Yueh-Feng Yvonne Lu & May Wykle, 2007. "Relationships Between Caregiver Stress and Self-Care Behaviors in Response to Symptoms," Clinical Nursing Research, , vol. 16(1), pages 29-43, February.
    11. Rossarin Soottipong Gray & Umaporn Pattaravanich, 2020. "Internal and external resources, tiredness and the subjective well-being of family caregivers of older adults: a case study from western Thailand, Southeast Asia," European Journal of Ageing, Springer, vol. 17(3), pages 349-359, September.
    12. Vladimir Spokoiny & Mayya Zhilova, 2013. "Sharp deviation bounds for quadratic forms," SFB 649 Discussion Papers SFB649DP2013-035, Sonderforschungsbereich 649, Humboldt University, Berlin, Germany.
    13. Pavel Bachmann, 2020. "Caregivers’ Experience of Caring for a Family Member with Alzheimer’s Disease: A Content Analysis of Longitudinal Social Media Communication," IJERPH, MDPI, vol. 17(12), pages 1-22, June.
    14. László Árpád Kostyál & Zsuzsa Széman & Virág Erzsébet Almási & Paolo Fabbietti & Sabrina Quattrini & Marco Socci & Cristina Gagliardi, 2022. "The Impact of COVID-19 on the Health and Experience of the Carers of Older Family Members Living with Dementia: An Italian–Hungarian Comparative Study," IJERPH, MDPI, vol. 19(9), pages 1-29, April.
    15. Maša Filipovič Hrast & Valentina Hlebec & Tatjana Rakar, 2020. "Sustainable Care in a Familialist Regime: Coping with Elderly Care in Slovenia," Sustainability, MDPI, vol. 12(20), pages 1-15, October.
    16. Clemens Tesch-Römer & Hans-Werner Wahl, 2017. "Toward a More Comprehensive Concept of Successful Aging: Disability and Care Needs," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 72(2), pages 310-318.
    17. Rafael del-Pino-Casado & Marta Rodríguez Cardosa & Catalina López-Martínez & Vasiliki Orgeta, 2019. "The association between subjective caregiver burden and depressive symptoms in carers of older relatives: A systematic review and meta-analysis," PLOS ONE, Public Library of Science, vol. 14(5), pages 1-16, May.
    18. Margarita Pérez-Cruz & Laura Parra-Anguita & Catalina López-Martínez & Sara Moreno-Cámara & Rafael del-Pino-Casado, 2019. "Burden and Anxiety in Family Caregivers in the Hospital That Debut in Caregiving," IJERPH, MDPI, vol. 16(20), pages 1-14, October.
    19. Joukje Swinkels & Theo van Tilburg & Ellen Verbakel & Marjolein Broese van Groenou, 2019. "Explaining the Gender Gap in the Caregiving Burden of Partner Caregivers," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 74(2), pages 309-317.
    20. Ceres Ferretti & Flávia M Sarti & Ricardo Nitrini & Fernando F Ferreira & Sonia M D Brucki, 2018. "An assessment of direct and indirect costs of dementia in Brazil," PLOS ONE, Public Library of Science, vol. 13(3), pages 1-15, March.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:sae:clnure:v:33:y:2024:i:4:p:240-252. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: SAGE Publications (email available below). General contact details of provider: .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.