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Does genetics matter for disease-related stigma? The impact of genetic attribution on stigma associated with rheumatic heart disease in the Western Cape, South Africa

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  • Faure, Marlyn C.
  • Matshabane, Olivia P.
  • Marshall, Patricia
  • Appelbaum, Paul S.
  • Stein, Dan J.
  • Engel, Mark E.
  • de Vries, Jantina

Abstract

A common concern in African genomic research is that such work may cause, or increase, stigma associated with particular diseases or population groups. While there is some evidence suggesting that genetic attribution of disease might impact stigma, there exists no evidence for the situation in African populations. With increasing genomic research in African populations, questions about the effect of genetic attribution on disease-related stigma are salient for stakeholders involved in implementation and regulation. To understand better the relationship between stigma and genetic attribution, we interviewed people with Rheumatic Heart Disease (RHD) in the Western Cape of South Africa.

Suggested Citation

  • Faure, Marlyn C. & Matshabane, Olivia P. & Marshall, Patricia & Appelbaum, Paul S. & Stein, Dan J. & Engel, Mark E. & de Vries, Jantina, 2019. "Does genetics matter for disease-related stigma? The impact of genetic attribution on stigma associated with rheumatic heart disease in the Western Cape, South Africa," Social Science & Medicine, Elsevier, vol. 243(C).
    • Handle: RePEc:eee:socmed:v:243:y:2019:i:c:s0277953619306148
    DOI: 10.1016/j.socscimed.2019.112619
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    References listed on IDEAS

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    5. de Vries, Jantina & Jallow, Muminatou & Williams, Thomas N. & Kwiatkowski, Dominic & Parker, Michael & Fitzpatrick, Raymond, 2012. "Investigating the potential for ethnic group harm in collaborative genomics research in Africa: Is ethnic stigmatisation likely?," Social Science & Medicine, Elsevier, vol. 75(8), pages 1400-1407.
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    1. Matshabane, Olivia P. & Campbell, Megan M. & Faure, Marlyn C. & Appelbaum, Paul S. & Marshall, Patricia A. & Stein, Dan J. & de Vries, Jantina, 2021. "The role of causal knowledge in stigma considerations in African genomics research: Views of South African Xhosa people," Social Science & Medicine, Elsevier, vol. 277(C).

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