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“Even my sister says I'm acting like a crazy to get a check”: Race, gender, and moral boundary-work in women's claims of disabling chronic pain

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  • Pryma, Jane

Abstract

Recent research examines how women claim chronic pain in response to gendered moral discourses. However, extant research does not explore how race shapes the moral boundary-work performed by women suffering from disabling chronic pain. Through the qualitative analysis of twenty-four semi-structured interviews with women fibromyalgia sufferers conducted between October 2014 and August 2016 in the U.S.A., I demonstrate how women with fibromyalgia claim chronic pain by doing moral boundary-work, referencing gendered and racialized moral discourses that structure how claims of chronic pain as disability are and are not read as legitimate by doctors, disability bureaucrats and personal networks. Extending Hansen et al.’s work on stigma and the “pathologization of poverty,” I suggest that, per my sample, the different moral discourses deployed in white and Black women's claims of chronic pain can be explained by the racialized and gendered boundaries of citizenship that structure U.S. welfare and disability politics. Finally, I argue for intersectionality's relevance to research on moral boundary-work and the medicalization of poverty.

Suggested Citation

  • Pryma, Jane, 2017. "“Even my sister says I'm acting like a crazy to get a check”: Race, gender, and moral boundary-work in women's claims of disabling chronic pain," Social Science & Medicine, Elsevier, vol. 181(C), pages 66-73.
  • Handle: RePEc:eee:socmed:v:181:y:2017:i:c:p:66-73
    DOI: 10.1016/j.socscimed.2017.03.048
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    References listed on IDEAS

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    1. Brian Walitt & Richard L Nahin & Robert S Katz & Martin J Bergman & Frederick Wolfe, 2015. "The Prevalence and Characteristics of Fibromyalgia in the 2012 National Health Interview Survey," PLOS ONE, Public Library of Science, vol. 10(9), pages 1-16, September.
    2. O'Brien, Rourke L., 2015. "Monetizing illness: The influence of disability assistance priming on how we evaluate the health symptoms of others," Social Science & Medicine, Elsevier, vol. 128(C), pages 31-35.
    3. Hansen, Helena & Bourgois, Philippe & Drucker, Ernest, 2014. "Pathologizing poverty: New forms of diagnosis, disability, and structural stigma under welfare reform," Social Science & Medicine, Elsevier, vol. 103(C), pages 76-83.
    4. Katz, Michael B., 2013. "The Undeserving Poor: America's Enduring Confrontation with Poverty: Fully Updated and Revised," OUP Catalogue, Oxford University Press, number 9780199933952.
    5. Werner, Anne & Isaksen, L.W.Lise Widding & Malterud, Kirsti, 2004. "'I am not the kind of woman who complains of everything': Illness stories on self and shame in women with chronic pain," Social Science & Medicine, Elsevier, vol. 59(5), pages 1035-1045, September.
    6. Werner, Anne & Malterud, Kirsti, 2003. "It is hard work behaving as a credible patient: encounters between women with chronic pain and their doctors," Social Science & Medicine, Elsevier, vol. 57(8), pages 1409-1419, October.
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    5. Dassieu, Lise & Kaboré, Jean-Luc & Choinière, Manon & Arruda, Nelson & Roy, Élise, 2020. "Painful lives: Chronic pain experience among people who use illicit drugs in Montreal (Canada)," Social Science & Medicine, Elsevier, vol. 246(C).
    6. Baumgart-McFarland, Madison & Chiarello, Elizabeth & Slay, Tayla, 2022. "Reluctant Saviors: Professional ambivalence, cultural imaginaries, and deservingness construction in naloxone provision," Social Science & Medicine, Elsevier, vol. 309(C).

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