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Ableism and Contours of the Attitudinal Environment as Identified by Adults with Long-Term Physical Disabilities: A Qualitative Study

Author

Listed:
  • Lisa Reber

    (Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI 48108, USA)

  • Jodi M. Kreschmer

    (Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI 48108, USA)

  • Tyler G. James

    (Department of Family Medicine, University of Michigan, Ann Arbor, MI 48104, USA)

  • Jaime D. Junior

    (Civil Rights, Inclusion and Opportunity Department, Detroit, MI 48226, USA)

  • Gina L. DeShong

    (The Disability Network, Flint, MI 48507, USA)

  • Shan Parker

    (Department of Public Health and Health Sciences, University of Michigan, Flint, MI 48502, USA)

  • Michelle A. Meade

    (Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI 48108, USA)

Abstract

Adults with physical disabilities experience a continuum of enabling and disabling attitudes in the environment. This study identified where adults with physical disabilities experience the attitudinal environment, the continuum of those attitudes, and how they impact emotional and psychological health and well-being. Focus groups and interviews were conducted in 2019 and 2020 with adults with physical disabilities in southeastern Michigan in the United States. Participants discussed environmental factors that impact healthy aging. From an initial thematic coding of narratives, the attitudinal environment was identified. Transcripts were recoded and analyzed focusing on societal attitudes. Qualitative analyses revealed that participants did not experience societal attitudes as simply positive or negative, and that the contexts in which these attitudes were expressed were not limited to interpersonal interactions. Rather, these attitudes were also experienced in the built environment and through social institutions and organizations and their programs, systems, and structures that provide or deny needed accommodations, resources, and support. The spectrum of overlapping attitudes that participants articulated ranged from understanding and supportive, to not understanding, to being viewed and treated as less than human. Societal structures reflect and influence societal attitudes and have material consequences on the lives of adults with physical disabilities.

Suggested Citation

  • Lisa Reber & Jodi M. Kreschmer & Tyler G. James & Jaime D. Junior & Gina L. DeShong & Shan Parker & Michelle A. Meade, 2022. "Ableism and Contours of the Attitudinal Environment as Identified by Adults with Long-Term Physical Disabilities: A Qualitative Study," IJERPH, MDPI, vol. 19(12), pages 1-22, June.
  • Handle: RePEc:gam:jijerp:v:19:y:2022:i:12:p:7469-:d:841877
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    References listed on IDEAS

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    1. Whittle, Henry J. & Palar, Kartika & Ranadive, Nikhil A. & Turan, Janet M. & Kushel, Margot & Weiser, Sheri D., 2017. "“The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living with poverty and chronic illness in the United States," Social Science & Medicine, Elsevier, vol. 190(C), pages 181-189.
    2. Hansen, Helena & Bourgois, Philippe & Drucker, Ernest, 2014. "Pathologizing poverty: New forms of diagnosis, disability, and structural stigma under welfare reform," Social Science & Medicine, Elsevier, vol. 103(C), pages 76-83.
    3. Namkung, Eun Ha & Carr, Deborah, 2019. "Perceived interpersonal and institutional discrimination among persons with disability in the U.S.: Do patterns differ by age?," Social Science & Medicine, Elsevier, vol. 239(C).
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