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Balancing the stigmatization risks of disability labels against the benefits of special education: Japanese parents' perceptions

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  • Kayama, Misa
  • Haight, Wendy

Abstract

Stigmatization can dampen the joys and exacerbate the challenges experienced by parents whose children have disabilities. This qualitative study examines the experiences of eight Japanese parents of their children's mild cognitive and behavioral disabilities and any associated stigmatization at public elementary schools. These parents' perceptions reflected Japanese people's general sensitivity to the threat of stigmatization due to individual differences. During individual interviews, parents described how their sensitivity to others' actual or anticipated negative responses led to social isolation. After significant, sustained efforts to support their children by themselves, most of these parents chose to consult with professionals and secure special education services for their children. They preferred support to be holistically and unobtrusively provided by all school staff members during academic and non-academic activities. The experiences of these Japanese parents underscore the importance of emotional and social support for children with disabilities and their parents. Examination of Japanese parents' perspectives on disability and stigmatization highlights our cultural blind spots, allows us to reflect back on taken for granted beliefs and practices, deepens our understandings, and may even lead to new and creative solutions to the persistent problem of stigmatization.

Suggested Citation

  • Kayama, Misa & Haight, Wendy, 2018. "Balancing the stigmatization risks of disability labels against the benefits of special education: Japanese parents' perceptions," Children and Youth Services Review, Elsevier, vol. 89(C), pages 43-53.
    • Handle: RePEc:eee:cysrev:v:89:y:2018:i:c:p:43-53
    DOI: 10.1016/j.childyouth.2018.04.008
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    References listed on IDEAS

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    1. Haight, Wendy & Kayama, Misa & Ku, May-Lee (Mary) & Cho, Minhae & Lee, Hee Yun, 2016. "Perspectives of elementary school educators in Japan, South Korea, Taiwan and the US on disability, stigmatization and children's developing self Part 1: Defining the problem in cultural context," Children and Youth Services Review, Elsevier, vol. 70(C), pages 214-228.
    2. Kayama, Misa & Haight, Wendy & Ku, May Lee Mary & Cho, Minhae & Lee, Hee Yun, 2017. "East Asian and US educators' reflections on how stigmatization affects their relationships with parents whose children have disabilities: Challenges and solutions," Children and Youth Services Review, Elsevier, vol. 73(C), pages 128-144.
    3. Yang, Lawrence Hsin & Kleinman, Arthur & Link, Bruce G. & Phelan, Jo C. & Lee, Sing & Good, Byron, 2007. "Culture and stigma: Adding moral experience to stigma theory," Social Science & Medicine, Elsevier, vol. 64(7), pages 1524-1535, April.
    4. Kayama, Misa & Haight, Wendy & Ku, May Lee & Cho, Minhae & Lee, Hee Yun, 2016. "Perspectives of elementary school educators in Japan, South Korea, Taiwan and the US on disability, stigmatization and children's developing self," Children and Youth Services Review, Elsevier, vol. 70(C), pages 403-418.
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    Cited by:

    1. Cho, Minhae & Yun, Heejung & Haight, Wendy, 2020. "Courtesy stigma from the perspectives of elementary school educators in South Korea," Children and Youth Services Review, Elsevier, vol. 119(C).
    2. Kayama, Misa & Johnstone, Christopher & Limaye, Sandhya, 2019. "Adjusting the “self” in social interaction: Disability and stigmatization in India," Children and Youth Services Review, Elsevier, vol. 96(C), pages 463-474.
    3. Monika Novak-Pavlic & Peter Rosenbaum & Briano Di Rezze, 2023. "Changing Directions and Expanding Horizons: Moving towards More Inclusive Healthcare for Parents of Children with Developmental Disabilities," IJERPH, MDPI, vol. 20(21), pages 1-11, October.

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