IDEAS home Printed from https://ideas.repec.org/a/eee/cysrev/v89y2018icp43-53.html
   My bibliography  Save this article

Balancing the stigmatization risks of disability labels against the benefits of special education: Japanese parents' perceptions

Author

Listed:
  • Kayama, Misa
  • Haight, Wendy

Abstract

Stigmatization can dampen the joys and exacerbate the challenges experienced by parents whose children have disabilities. This qualitative study examines the experiences of eight Japanese parents of their children's mild cognitive and behavioral disabilities and any associated stigmatization at public elementary schools. These parents' perceptions reflected Japanese people's general sensitivity to the threat of stigmatization due to individual differences. During individual interviews, parents described how their sensitivity to others' actual or anticipated negative responses led to social isolation. After significant, sustained efforts to support their children by themselves, most of these parents chose to consult with professionals and secure special education services for their children. They preferred support to be holistically and unobtrusively provided by all school staff members during academic and non-academic activities. The experiences of these Japanese parents underscore the importance of emotional and social support for children with disabilities and their parents. Examination of Japanese parents' perspectives on disability and stigmatization highlights our cultural blind spots, allows us to reflect back on taken for granted beliefs and practices, deepens our understandings, and may even lead to new and creative solutions to the persistent problem of stigmatization.

Suggested Citation

  • Kayama, Misa & Haight, Wendy, 2018. "Balancing the stigmatization risks of disability labels against the benefits of special education: Japanese parents' perceptions," Children and Youth Services Review, Elsevier, vol. 89(C), pages 43-53.
    • Handle: RePEc:eee:cysrev:v:89:y:2018:i:c:p:43-53
    DOI: 10.1016/j.childyouth.2018.04.008
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0190740917310654
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.childyouth.2018.04.008?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Haight, Wendy & Kayama, Misa & Ku, May-Lee (Mary) & Cho, Minhae & Lee, Hee Yun, 2016. "Perspectives of elementary school educators in Japan, South Korea, Taiwan and the US on disability, stigmatization and children's developing self Part 1: Defining the problem in cultural context," Children and Youth Services Review, Elsevier, vol. 70(C), pages 214-228.
    2. Kayama, Misa & Haight, Wendy & Ku, May Lee Mary & Cho, Minhae & Lee, Hee Yun, 2017. "East Asian and US educators' reflections on how stigmatization affects their relationships with parents whose children have disabilities: Challenges and solutions," Children and Youth Services Review, Elsevier, vol. 73(C), pages 128-144.
    3. Kayama, Misa & Haight, Wendy & Ku, May Lee & Cho, Minhae & Lee, Hee Yun, 2016. "Perspectives of elementary school educators in Japan, South Korea, Taiwan and the US on disability, stigmatization and children's developing self," Children and Youth Services Review, Elsevier, vol. 70(C), pages 403-418.
    4. Yang, Lawrence Hsin & Kleinman, Arthur & Link, Bruce G. & Phelan, Jo C. & Lee, Sing & Good, Byron, 2007. "Culture and stigma: Adding moral experience to stigma theory," Social Science & Medicine, Elsevier, vol. 64(7), pages 1524-1535, April.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Cho, Minhae & Yun, Heejung & Haight, Wendy, 2020. "Courtesy stigma from the perspectives of elementary school educators in South Korea," Children and Youth Services Review, Elsevier, vol. 119(C).
    2. Kayama, Misa & Johnstone, Christopher & Limaye, Sandhya, 2019. "Adjusting the “self” in social interaction: Disability and stigmatization in India," Children and Youth Services Review, Elsevier, vol. 96(C), pages 463-474.
    3. Monika Novak-Pavlic & Peter Rosenbaum & Briano Di Rezze, 2023. "Changing Directions and Expanding Horizons: Moving towards More Inclusive Healthcare for Parents of Children with Developmental Disabilities," IJERPH, MDPI, vol. 20(21), pages 1-11, October.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Cho, Minhae & Yun, Heejung & Haight, Wendy, 2020. "Courtesy stigma from the perspectives of elementary school educators in South Korea," Children and Youth Services Review, Elsevier, vol. 119(C).
    2. Kayama, Misa & Haight, Wendy & Ku, May Lee Mary & Cho, Minhae & Lee, Hee Yun, 2017. "East Asian and US educators' reflections on how stigmatization affects their relationships with parents whose children have disabilities: Challenges and solutions," Children and Youth Services Review, Elsevier, vol. 73(C), pages 128-144.
    3. Kayama, Misa, 2017. "Development of children's understandings of physical disabilities and stigmatization in a Japanese cultural context: Reflections of children in second through sixth grades," Children and Youth Services Review, Elsevier, vol. 83(C), pages 190-200.
    4. Kayama, Misa & Johnstone, Christopher & Limaye, Sandhya, 2019. "Adjusting the “self” in social interaction: Disability and stigmatization in India," Children and Youth Services Review, Elsevier, vol. 96(C), pages 463-474.
    5. Kayama, Misa & Haight, Wendy & Ku, May Lee & Cho, Minhae & Lee, Hee Yun, 2016. "Perspectives of elementary school educators in Japan, South Korea, Taiwan and the US on disability, stigmatization and children's developing self," Children and Youth Services Review, Elsevier, vol. 70(C), pages 403-418.
    6. Haight, Wendy & Kayama, Misa & Ku, May-Lee (Mary) & Cho, Minhae & Lee, Hee Yun, 2016. "Perspectives of elementary school educators in Japan, South Korea, Taiwan and the US on disability, stigmatization and children's developing self Part 1: Defining the problem in cultural context," Children and Youth Services Review, Elsevier, vol. 70(C), pages 214-228.
    7. Song, Jieun & Mailick, Marsha R. & Greenberg, Jan S., 2018. "Health of parents of individuals with developmental disorders or mental health problems: Impacts of stigma," Social Science & Medicine, Elsevier, vol. 217(C), pages 152-158.
    8. Jong Won Min, 2019. "The Influence of Stigma and Views on Mental Health Treatment Effectiveness on Service Use by Age and Ethnicity: Evidence From the CDC BRFSS 2007, 2009, and 2012," SAGE Open, , vol. 9(3), pages 21582440198, September.
    9. Wright, Annemarie & Jorm, Anthony F. & Mackinnon, Andrew J., 2011. "Labeling of mental disorders and stigma in young people," Social Science & Medicine, Elsevier, vol. 73(4), pages 498-506, August.
    10. Katz, Arlene M. & Alegría, Margarita, 2009. "The clinical encounter as local moral world: Shifts of assumptions and transformation in relational context," Social Science & Medicine, Elsevier, vol. 68(7), pages 1238-1246, April.
    11. Tomori, Cecilia & Palmquist, Aunchalee E.L. & Dowling, Sally, 2016. "Contested moral landscapes: Negotiating breastfeeding stigma in breastmilk sharing, nighttime breastfeeding, and long-term breastfeeding in the U.S. and the U.K," Social Science & Medicine, Elsevier, vol. 168(C), pages 178-185.
    12. Yang, Lawrence Hsin & Kleinman, Arthur, 2008. "'Face' and the embodiment of stigma in China: The cases of schizophrenia and AIDS," Social Science & Medicine, Elsevier, vol. 67(3), pages 398-408, August.
    13. Yang, Lawrence H. & Chen, Fang-pei & Sia, Kathleen Janel & Lam, Jonathan & Lam, Katherine & Ngo, Hong & Lee, Sing & Kleinman, Arthur & Good, Byron, 2014. "“What matters most:” A cultural mechanism moderating structural vulnerability and moral experience of mental illness stigma," Social Science & Medicine, Elsevier, vol. 103(C), pages 84-93.
    14. Billings, Katie R. & Cort, David A. & Rozario, Tannuja D. & Siegel, Derek P., 2021. "HIV stigma beliefs in context: Country and regional variation in the effects of instrumental stigma beliefs on protective sexual behaviors in Latin America, the Caribbean, and Southern Africa," Social Science & Medicine, Elsevier, vol. 269(C).
    15. Yang, Lawrence H. & Purdie-Vaughns, Valerie & Kotabe, Hiroki & Link, Bruce G. & Saw, Anne & Wong, Gloria & Phelan, Jo C., 2013. "Culture, threat, and mental illness stigma: Identifying culture-specific threat among Chinese-American groups," Social Science & Medicine, Elsevier, vol. 88(C), pages 56-67.
    16. de Vries, Jantina & Jallow, Muminatou & Williams, Thomas N. & Kwiatkowski, Dominic & Parker, Michael & Fitzpatrick, Raymond, 2012. "Investigating the potential for ethnic group harm in collaborative genomics research in Africa: Is ethnic stigmatisation likely?," Social Science & Medicine, Elsevier, vol. 75(8), pages 1400-1407.
    17. Clair, Matthew & Daniel, Caitlin & Lamont, Michèle, 2016. "Destigmatization and health: Cultural constructions and the long-term reduction of stigma," Social Science & Medicine, Elsevier, vol. 165(C), pages 223-232.
    18. Koschorke, Mirja & Padmavati, R. & Kumar, Shuba & Cohen, Alex & Weiss, Helen A. & Chatterjee, Sudipto & Pereira, Jesina & Naik, Smita & John, Sujit & Dabholkar, Hamid & Balaji, Madhumitha & Chavan, An, 2017. "Experiences of stigma and discrimination faced by family caregivers of people with schizophrenia in India," Social Science & Medicine, Elsevier, vol. 178(C), pages 66-77.
    19. Adalberto Campo-Arias & Guillermo A Ceballos-Ospino & Edwin Herazo, 2020. "Barriers to access to mental health services among Colombia outpatients," International Journal of Social Psychiatry, , vol. 66(6), pages 600-606, September.
    20. Daniel Walsh & Juliet Foster, 2022. "Charting an Alternative Course for Mental Health-Related Anti-Stigma Social and Behaviour Change Programmes," IJERPH, MDPI, vol. 19(17), pages 1-21, August.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:cysrev:v:89:y:2018:i:c:p:43-53. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/locate/childyouth .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.