IDEAS home Printed from https://ideas.repec.org/a/cog/meanco/v7y2019i1p102-113.html
   My bibliography  Save this article

The Cancer’s Margins Project: Access to Knowledge and Its Mobilization by LGBQ/T Cancer Patients

Author

Listed:
  • Evan T. Taylor

    (Department of Language and Literacy Education, University of British Columbia, Canada)

  • Mary K. Bryson

    (Department of Language and Literacy Education, University of British Columbia, Canada)

  • Lorna Boschman

    (Department of Language and Literacy Education, University of British Columbia, Canada)

  • Tae Hart

    (Department of Psychology, Ryerson University, Canada)

  • Jacqueline Gahagan

    (School of Health and Human Performance, Dalhousie University, Canada)

  • Genevieve Rail

    (Simone de Beauvoir Institute, Concordia University, Canada)

  • Janice Ristock

    (Department of Women’s and Gender Studies, University of Manitoba, Canada)

Abstract

Sexual and/or gender minority populations (LGBQ/T) have particular cancer risks, lower involvement in cancer screening, and experience barriers in communication with healthcare providers. All of these factors increase the probability of health decisions linked with poor outcomes that include higher levels of cancer mortality. Persistent discrimination against, and stigmatization of, LGBQ/T people is reflected in sparse medical curriculum addressing LGBQ/T communities. Marginalization makes LGBQ/T persons particularly reliant on knowledge derived from online networks and mainstream media sources. In what is likely the first nationally-funded and nation-wide study of LGBQ/T experiences of cancer, the Cancer’s Margins project (www.lgbtcancer.ca) conducted face-to-face interviews with 81 sexual and/or gender minority patients diagnosed and treated for breast and/or gynecological cancer in five Canadian provinces and the San Francisco Bay area (US). With specific attention to knowledge access, sharing, and mobilization, our objective was to document and analyze complex intersectional relationships between marginalization, gender and sexuality, and cancer health decision-making and care experiences. Findings indicate that cancer care knowledge in online environments is shaped by cisnormative and heteronormative narratives. Cancer knowledge and support environments need, by contrast, to be designed by taking into account intersectionally diverse models of minority identities and communities.

Suggested Citation

  • Evan T. Taylor & Mary K. Bryson & Lorna Boschman & Tae Hart & Jacqueline Gahagan & Genevieve Rail & Janice Ristock, 2019. "The Cancer’s Margins Project: Access to Knowledge and Its Mobilization by LGBQ/T Cancer Patients," Media and Communication, Cogitatio Press, vol. 7(1), pages 102-113.
    • Handle: RePEc:cog:meanco:v:7:y:2019:i:1:p:102-113
    as

    Download full text from publisher

    File URL: https://www.cogitatiopress.com/mediaandcommunication/article/view/1718
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Metzl, Jonathan M. & Hansen, Helena, 2014. "Structural competency: Theorizing a new medical engagement with stigma and inequality," Social Science & Medicine, Elsevier, vol. 103(C), pages 126-133.
    2. Deborah S. Chung & Sujin Kim, 2008. "Blogging activity among cancer patients and their companions: Uses, gratifications, and predictors of outcomes," Journal of the American Society for Information Science and Technology, Association for Information Science & Technology, vol. 59(2), pages 297-306, January.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Leen d’Haenens & Willem Joris, 2019. "Introduction to Communicating on/with Minorities," Media and Communication, Cogitatio Press, vol. 7(1), pages 1-3.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Rathert, Cheryl & Mittler, Jessica N. & Vogus, Timothy J. & Lee, Yuna S.H., 2023. "Better outcomes through patient – Provider therapeutic connections? An exploratory study of proposed mediating variables," Social Science & Medicine, Elsevier, vol. 338(C).
    2. Montenegro, Roberto E. & Dori-Hacohen, Gonen, 2020. "Morality in sugar talk: Presenting blood glucose levels in routine diabetes medical visits," Social Science & Medicine, Elsevier, vol. 253(C).
    3. Warren Kealy-Bateman & Georgina M. Gorman & Adam P. Carroll, 2021. "Patient/Consumer Codesign and Coproduction of Medical Curricula: A Possible Path Toward Improved Cultural Competence and Reduced Health Disparity," SAGE Open, , vol. 11(2), pages 21582440211, June.
    4. Shilo St. Cyr & Elise Trott Jaramillo & Laura Garrison & Lorraine Halinka Malcoe & Stephen R. Shamblen & Cathleen E. Willging, 2021. "Intimate Partner Violence and Structural Violence in the Lives of Incarcerated Women: A Mixed-Method Study in Rural New Mexico," IJERPH, MDPI, vol. 18(12), pages 1-16, June.
    5. Shih, P. & Worth, H. & Travaglia, J. & Kelly-Hanku, A., 2017. "Pastoral power in HIV prevention: Converging rationalities of care in Christian and medical practices in Papua New Guinea," Social Science & Medicine, Elsevier, vol. 193(C), pages 51-58.
    6. Costas S. Constantinou & Panayiota Andreou & Monica Nikitara & Alexia Papageorgiou, 2022. "Cultural Competence in Healthcare and Healthcare Education," Societies, MDPI, vol. 12(6), pages 1-4, November.
    7. Hunt, Joanne Elizabeth, 2022. "Making space for disability studies within a structurally competent medical curriculum: Reflections on Long Covid," SocArXiv p9qyk, Center for Open Science.
    8. Eisenbeiss, Maik & Blechschmidt, Boris & Backhaus, Klaus & Freund, Philipp Alexander, 2012. "“The (Real) World Is Not Enough:” Motivational Drivers and User Behavior in Virtual Worlds," Journal of Interactive Marketing, Elsevier, vol. 26(1), pages 4-20.
    9. Orr, Zvika & Jackson, Levi & Alpert, Evan Avraham & Fleming, Mark D., 2023. "Biomedicine and the treatment of difference in a Jerusalem emergency department," Social Science & Medicine, Elsevier, vol. 339(C).
    10. Alice Fiddian-Green & Aline Gubrium & Calla Harrington & Elizabeth A. Evans, 2022. "Women-Reported Barriers and Facilitators of Continued Engagement with Medications for Opioid Use Disorder," IJERPH, MDPI, vol. 19(15), pages 1-17, July.
    11. Gutin, Iliya, 2022. "Not ‘putting a name to it’: Managing uncertainty in the diagnosis of childhood obesity," Social Science & Medicine, Elsevier, vol. 294(C).
    12. Broussard, Kathleen, 2020. "The changing landscape of abortion care: Embodied experiences of structural stigma in the Republic of Ireland and Northern Ireland," Social Science & Medicine, Elsevier, vol. 245(C).
    13. Lauri Andress & Matthew P Purtill, 2020. "Shifting the gaze of the physician from the body to the body in a place: A qualitative analysis of a community-based photovoice approach to teaching place-health concepts to medical students," PLOS ONE, Public Library of Science, vol. 15(2), pages 1-15, February.
    14. Timmermans, Stefan & Tietbohl, Caroline, 2018. "Fifty years of sociological leadership at Social Science and Medicine," Social Science & Medicine, Elsevier, vol. 196(C), pages 209-215.
    15. Sandra Ziegler & Camilla Michaëlis & Janne Sørensen, 2022. "Diversity Competence in Healthcare: Experts’ Views on the Most Important Skills in Caring for Migrant and Minority Patients," Societies, MDPI, vol. 12(2), pages 1-23, March.
    16. Cheryl A. Vamos & Tara R. Foti & Estefanny Reyes Martinez & Zoe Pointer & Linda A. Detman & William M. Sappenfield, 2023. "Identification of Clinician Training Techniques as an Implementation Strategy to Improve Maternal Health: A Scoping Review," IJERPH, MDPI, vol. 20(11), pages 1-19, May.
    17. Krystallidou, Demi & Temizöz, Özlem & Wang, Fang & de Looper, Melanie & Maria, Emilio Di & Gattiglia, Nora & Giani, Stefano & Hieke, Graham & Morganti, Wanda & Pace, Cecilia Serena & Schouten, Barbara, 2024. "Communication in refugee and migrant mental healthcare: A systematic rapid review on the needs, barriers and strategies of seekers and providers of mental health services," Health Policy, Elsevier, vol. 139(C).
    18. Johanna Gummerus & Veronica Liljander & Reija Sihlman, 2017. "Do Ethical Social Media Communities Pay Off? An Exploratory Study of the Ability of Facebook Ethical Communities to Strengthen Consumers’ Ethical Consumption Behavior," Journal of Business Ethics, Springer, vol. 144(3), pages 449-465, September.
    19. David R. Williams & Lisa A. Cooper, 2019. "Reducing Racial Inequities in Health: Using What We Already Know to Take Action," IJERPH, MDPI, vol. 16(4), pages 1-26, February.
    20. Hudgins, Anastasia & Rising, Kristin L., 2016. "Fear, vulnerability and sacrifice: Drivers of emergency department use and implications for policy," Social Science & Medicine, Elsevier, vol. 169(C), pages 50-57.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:cog:meanco:v:7:y:2019:i:1:p:102-113. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: António Vieira (email available below). General contact details of provider: https://www.cogitatiopress.com/ .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.