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Understanding parents’ emotional experiences for neonatal education: A narrative, interpretive approach

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  • Julia Petty
  • Joy Jarvis
  • Rebecca Thomas

Abstract

Aims and objectives To explore the emotional experiences of parents who have had premature babies to inform and educate neonatal nurses and health professionals in this field. Background Parents find the neonatal unit a daunting and unfamiliar place leading to anxiety, uncertainty and fear about the future of their baby. Parents have significant emotional needs in relation to assisting them to cope with their neonatal experience. In line with a family‐centred approach to neonatal education, it is essential to teach health professionals about the emotional impact of neonatal care based on an appreciation of the parent experience. Design A narrative‐based, interpretive approach was undertaken in line with constructivist learning theory. Methods Twenty narrative interviews took place, with a total of 23 parents of premature babies. Following core story creation to create coherent stories from the raw transcripts, thematic analysis of the narrative constructs using the principles of Braun and Clarke's, International Journal of Qualitative Studies on Health and Well‐Being, 2014, 9, 1, framework was undertaken. The study methods were compliant with the consolidated criteria for reporting qualitative research (COREQ). Findings Thematic analysis revealed key themes relating to the following: parents’ emotions through the whole neonatal experience, feelings towards the baby, the environment, the staff and the transitions through the different phases of neonatal care. Both negative and positive experiences were reported. Conclusion Understanding the emotional experience from the parent's perspective, following birth of their premature baby, informs empathic, family‐centred teaching and learning within the neonatal education arena. Relevance to clinical practice Students and health professionals alike can learn what is important in the delivery of care that addresses the emotional needs of parents and families. Educators can use narratives and key messages from parents, both negative and positive, to teach family‐centred principles to nurses and health professionals as a core component of a narrative curricula and potentially to enhance empathy.

Suggested Citation

  • Julia Petty & Joy Jarvis & Rebecca Thomas, 2019. "Understanding parents’ emotional experiences for neonatal education: A narrative, interpretive approach," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(9-10), pages 1911-1924, May.
    • Handle: RePEc:wly:jocnur:v:28:y:2019:i:9-10:p:1911-1924
    DOI: 10.1111/jocn.14807
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    References listed on IDEAS

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    1. Anna Aftyka & Beata Rybojad & Wojciech Rosa & Aleksandra Wróbel & Hanna Karakuła‐Juchnowicz, 2017. "Risk factors for the development of post‐traumatic stress disorder and coping strategies in mothers and fathers following infant hospitalisation in the neonatal intensive care unit," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(23-24), pages 4436-4445, December.
    2. Melanie Turner & Anna Chur‐Hansen & Helen Winefield, 2014. "The neonatal nurses' view of their role in emotional support of parents and its complexities," Journal of Clinical Nursing, John Wiley & Sons, vol. 23(21-22), pages 3156-3165, November.
    3. Dua'a Fayiz Al Maghaireh & Khatijah Lim Abdullah & Chong Mei Chan & Chua Yan Piaw & Mariam Mofleh Al Kawafha, 2016. "Systematic review of qualitative studies exploring parental experiences in the Neonatal Intensive Care Unit," Journal of Clinical Nursing, John Wiley & Sons, vol. 25(19-20), pages 2745-2756, October.
    4. Shahirose S. Premji & Gianella Pana & Genevieve Currie & Aliyah Dosani & Sandra Reilly & Marilyn Young & Marc Hall & Tyler Williamson & Abhay K Lodha, 2018. "Mother's level of confidence in caring for her late preterm infant: A mixed methods study," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(5-6), pages 1120-1133, March.
    5. Janet Green & Philip Darbyshire & Anne Adams & Debra Jackson, 2015. "Looking like a proper baby: nurses' experiences of caring for extremely premature infants," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(1-2), pages 81-89, January.
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    1. Lene Tandle Lyngstad & Flore Le Marechal & Birgitte Lenes Ekeberg & Krzysztof Hochnowski & Mariann Hval & Bente Silnes Tandberg, 2022. "Ten Years of Neonatal Intensive Care Adaption to the Infants’ Needs: Implementation of a Family-Centered Care Model with Single-Family Rooms in Norway," IJERPH, MDPI, vol. 19(10), pages 1-13, May.

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