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Need of support in people with chronic obstructive pulmonary disease

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  • Lilas Ali
  • Andreas Fors
  • Inger Ekman

Abstract

Aim and objective The aim of this study was to describe peoples’ experiences and expectations of support when living with chronic obstructive pulmonary disease. Method We conducted and analysed face‐to‐face or telephone interviews with 17 individuals (aged 44–77 years) diagnosed with chronic obstructive pulmonary disease. The interviewer asked open‐ended questions aimed at encouraging further narration, and we analysed the participants’ narratives using a phenomenological hermeneutical approach. This report adheres to the COREQ guidelines. Results The overall theme suggests that people with chronic obstructive pulmonary disease describe support as shared knowledge and experiences, based on the following subthemes; similar experiences, the need of genuine professional knowledge, self‐reliance versus self‐blame, and the Internet – feeling safe but uncertain. Conclusions People with chronic obstructive pulmonary disease find their strength through shared knowledge and dialogical support with others who have similar experiences and with professionals. A person‐centred eHealth approach may be suitable for this group as it offers both collaboration and support. Relevance to clinical practice There is a demand for access to genuine professional knowledge as additional support to patients’ own capabilities and needs. Patient associations were assessed as reliable sources of information and to some extent also support, but the importance of access to professional sources was also stressed.

Suggested Citation

  • Lilas Ali & Andreas Fors & Inger Ekman, 2018. "Need of support in people with chronic obstructive pulmonary disease," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(5-6), pages 1089-1096, March.
    • Handle: RePEc:wly:jocnur:v:27:y:2018:i:5-6:p:e1089-e1096
    DOI: 10.1111/jocn.14170
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    1. Ann‐Britt Zakrisson & Mats Arne & Karin Lisspers & Lena Lundh & Hanna Sandelowsky & Björn Ställberg & Eva Thors Adolfsson & Kersti Theander, 2020. "Improved quality of care by using the PRISMS form to support self‐management in patients with COPD: A Randomised Controlled Trial," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(13-14), pages 2410-2419, July.

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