IDEAS home Printed from https://ideas.repec.org/a/wly/jocnur/v27y2018i13-14p2558-2568.html
   My bibliography  Save this article

The rural mother's experience of caring for a child with a chronic health condition: An integrative review

Author

Listed:
  • Sally Bristow
  • Debra Jackson
  • Linda Shields
  • Kim Usher

Abstract

Aims and objectives To identify and review the literature on rural mothers’ experiences in caring for a child with a chronic health condition. Background Families living with a child who has a chronic health condition experience many challenges; these are often amplified for families living in rural areas, where issues such as the distance from services add further challenges the family must manage. Like many children, rural children with chronic health conditions are primarily cared for by their mothers. The additional strain of geography creates its own unique experiences for mothers who need to access the high‐quality care that their child requires. Design Integrative literature review using the Equator PRISMA guidelines. Methods A search of databases; Cochrane, CINAHL, Ovid, PubMed, ProQuest Health and Medicine, Informit and Scopus for studies published between 2005–2016 using an integrative review approach. A total of 1,484 studies were identified with an additional six studies found through snowballing. The search resulted in seven studies being meeting the inclusion criteria after using the Critical Appraisal Skills Programme. Results Data from the seven articles were analysed, and the mothers’ experiences were synthesised into five themes: “struggling for resources,” “barriers in accessing services,” “strain of decision‐making,” “mother's physical and emotional breakdown” and “the daily management of family activities”. These five themes formed the basis of this article. Conclusions The findings indicate that mothers from rural areas face additional barriers related to their rurality, including transportation difficulties, socioeconomic status and social isolation, and are challenged by limited access to specialty medical services, educators and allied health professionals. The literature review outcome will assist in informing nursing practice through identifying and allocating resources to reduce these barriers; rural mother experience will assist in enabling the child to reach their full developmental potential. Relevance to clinical practice There is a need for health professionals to understand the challenges and barriers rural mothers face in accessing services. Nurses can assist rural mothers to navigate and access the appropriate services in order to reduce health inequity, increase accessibility to services and reduce rural disadvantage for their child. Nurses and health professionals are in an ideal position to develop future models of care that optimise health outcomes and enable equity and access to services for rural children with chronic conditions similar to those experienced by their urban counterparts.

Suggested Citation

  • Sally Bristow & Debra Jackson & Linda Shields & Kim Usher, 2018. "The rural mother's experience of caring for a child with a chronic health condition: An integrative review," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(13-14), pages 2558-2568, July.
  • Handle: RePEc:wly:jocnur:v:27:y:2018:i:13-14:p:2558-2568
    DOI: 10.1111/jocn.14360
    as

    Download full text from publisher

    File URL: https://doi.org/10.1111/jocn.14360
    Download Restriction: no

    File URL: https://libkey.io/10.1111/jocn.14360?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Jane E Miller & Colleen N Nugent & Dorothy Gaboda & Louise B Russell, 2013. "Reasons for Unmet Need for Child and Family Health Services among Children with Special Health Care Needs with and without Medical Homes," PLOS ONE, Public Library of Science, vol. 8(12), pages 1-1, December.
    2. Riley, L. & Guthold, R. & Cowan, M. & Savin, S. & Bhatti, L. & Armstrong, T. & Bonita, R., 2016. "The world health organization STEPwise approach to noncommunicable disease risk-factor surveillance: Methods, challenges, and opportunities," American Journal of Public Health, American Public Health Association, vol. 106(1), pages 74-78.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Pablo A. Cantero-Garlito & Pedro Moruno-Miralles & Juan Antonio Flores-Martos, 2020. "Mothers Who Take Care of Children with Disabilities in Rural Areas of a Spanish Region," IJERPH, MDPI, vol. 17(8), pages 1-13, April.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Enkhtuguldur Myagmar-Ochir & Yasuo Haruyama & Nobuko Takaoka & Kyo Takahashi & Naranjargal Dashdorj & Myagmartseren Dashtseren & Gen Kobashi, 2023. "Comparison of Three Diagnostic Definitions of Metabolic Syndrome and Estimation of Its Prevalence in Mongolia," IJERPH, MDPI, vol. 20(6), pages 1-12, March.
    2. Fisaha Haile Tesfay & Kathryn Backholer & Christina Zorbas & Steven J. Bowe & Laura Alston & Catherine M. Bennett, 2022. "The Magnitude of NCD Risk Factors in Ethiopia: Meta-Analysis and Systematic Review of Evidence," IJERPH, MDPI, vol. 19(9), pages 1-19, April.
    3. Elena A. Zhidkova & Ekaterina M. Gutor & Inga A. Popova & Victoria A. Zaborova & Kira Kryuchkova & Konstantin G. Gurevich & Natella I. Krikheli & Katie M. Heinrich, 2022. "Risk Factors for Locomotive Crew Members Depending on Their Place of Work," IJERPH, MDPI, vol. 19(12), pages 1-10, June.
    4. Pablo Galan-Lopez & Francis Ries & Thordis Gisladottir & Raúl Domínguez & Antonio J. Sánchez-Oliver, 2018. "Healthy Lifestyle: Relationship between Mediterranean Diet, Body Composition and Physical Fitness in 13 to 16-Years Old Icelandic Students," IJERPH, MDPI, vol. 15(12), pages 1-15, November.
    5. Bai Cham & Shaun Scholes & Nora E. Groce & Jennifer S. Mindell, 2019. "Prevalence and Predictors of Smoking among Gambian Men: A Cross-Sectional National WHO STEP Survey," IJERPH, MDPI, vol. 16(23), pages 1-12, November.
    6. Natasa Popovic & Zorica Terzic-Supic & Snezana Simic & Biljana Mladenovic, 2017. "Predictors of unmet health care needs in Serbia; Analysis based on EU-SILC data," PLOS ONE, Public Library of Science, vol. 12(11), pages 1-20, November.
    7. Daniel A. Nnate & Chinedum O. Eleazu & Ukachukwu O. Abaraogu, 2021. "Ischemic Heart Disease in Nigeria: Exploring the Challenges, Current Status, and Impact of Lifestyle Interventions on Its Primary Healthcare System," IJERPH, MDPI, vol. 19(1), pages 1-10, December.
    8. Kaja Meh & Gregor Jurak & Maroje Sorić & Paulo Rocha & Vedrana Sember, 2021. "Validity and Reliability of IPAQ-SF and GPAQ for Assessing Sedentary Behaviour in Adults in the European Union: A Systematic Review and Meta-Analysis," IJERPH, MDPI, vol. 18(9), pages 1-17, April.
    9. Vedrana Sember & Kaja Meh & Maroje Sorić & Gregor Starc & Paulo Rocha & Gregor Jurak, 2020. "Validity and Reliability of International Physical Activity Questionnaires for Adults across EU Countries: Systematic Review and Meta Analysis," IJERPH, MDPI, vol. 17(19), pages 1-23, September.
    10. Jake M. Robinson & Martin F. Breed, 2019. "Green Prescriptions and Their Co-Benefits: Integrative Strategies for Public and Environmental Health," Challenges, MDPI, vol. 10(1), pages 1-14, January.
    11. Okwori, Glory, 2022. "Prevalence and correlates of mental health disorders among children & adolescents in U.S," Children and Youth Services Review, Elsevier, vol. 136(C).
    12. Qin Zhu & Die Luo & Xiaojun Zhou & Xianxu Cai & Qi Li & Yuanan Lu & Jiayan Chen, 2021. "A Model for Risk Prediction of Cerebrovascular Disease Prevalence—Based on Community Residents Aged 40 and above in a City in China," IJERPH, MDPI, vol. 18(12), pages 1-12, June.
    13. Natalya Glushkova & Dariga Smailova & Zhanar Namazbayeva & Gulmira Mukasheva & Ayaulym Zhamakurova & Asylzhan Kuanyshkalieva & Indira K. Karibayeva & Almagul Kauysheva & Nurzhamal Otyzbayeva & Maksut , 2023. "Prevalence of Smoking Various Tobacco Types in the Kazakhstani Adult Population in 2021: A Cross-Sectional Study," IJERPH, MDPI, vol. 20(2), pages 1-11, January.
    14. Justine I Davies & Sumithra Krishnamurthy Reddiar & Lisa R Hirschhorn & Cara Ebert & Maja-Emilia Marcus & Jacqueline A Seiglie & Zhaxybay Zhumadilov & Adil Supiyev & Lela Sturua & Bahendeka K Silver &, 2020. "Association between country preparedness indicators and quality clinical care for cardiovascular disease risk factors in 44 lower- and middle-income countries: A multicountry analysis of survey data," PLOS Medicine, Public Library of Science, vol. 17(11), pages 1-25, November.
    15. Kaja Meh & Vedrana Sember & Saša Đurić & Henri Vähä-Ypyä & Paulo Rocha & Gregor Jurak, 2021. "Reliability and Validity of Slovenian Versions of IPAQ-SF, GPAQ, and EHIS-PAQ for Assessing Physical Activity and Sedentarism of Adults," IJERPH, MDPI, vol. 19(1), pages 1-15, December.
    16. Herbert Chikafu & Moses J. Chimbari, 2020. "Levels and Correlates of Physical Activity in Rural Ingwavuma Community, uMkhanyakude District, KwaZulu-Natal, South Africa," IJERPH, MDPI, vol. 17(18), pages 1-13, September.
    17. Laila Fitria & Nurhayati Adnan Prihartono & Doni Hikmat Ramdhan & Tri Yunis Miko Wahyono & Pornpimol Kongtip & Susan Woskie, 2020. "Environmental and Occupational Risk Factors Associated with Chronic Kidney Disease of Unknown Etiology in West Javanese Rice Farmers, Indonesia," IJERPH, MDPI, vol. 17(12), pages 1-14, June.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:wly:jocnur:v:27:y:2018:i:13-14:p:2558-2568. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Wiley Content Delivery (email available below). General contact details of provider: https://doi.org/10.1111/(ISSN)1365-2702 .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.