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Mothers Who Take Care of Children with Disabilities in Rural Areas of a Spanish Region

Author

Listed:
  • Pablo A. Cantero-Garlito

    (Facultad de Ciencias de la Salud, Universidad de Castilla—La Mancha, 45600 Toledo, Spain)

  • Pedro Moruno-Miralles

    (Facultad de Ciencias de la Salud, Universidad de Castilla—La Mancha, 45600 Toledo, Spain)

  • Juan Antonio Flores-Martos

    (Department of Philosophy, Anthropology, Sociology and Aesthetics, University of Castilla-La Mancha, 45600 Talavera de la Reina, Spain)

Abstract

The purpose of this research is to describe how the mothers of children with disabilities in rural areas of Extremadura perceive care tasks and the subjective impact that these tasks have on their daily life and health, as well as the subjective assessment that these mothers make of the benefits and services of the Spanish welfare policy. An interpretative paradigm was selected, using a qualitative approach and a phenomenological design. Twelve mothers were included. Data were collected through semi-structured interviews. A discourse analysis of the narrative information was performed using open, axial, and selective coding processes and the constant comparative method. Three topics have been extracted from the findings of the analysis: (1) extensive care responsibilities, (2) impacts upon well-being and daily life, and (3) resources that “barely” help. The care tasks performed by mothers of children with disabilities in rural areas have an enormous impact on their daily life and health. This involvement in caregiving generates a significant occupational imbalance which has an impact on their mental health, and which causes economic and social problems.

Suggested Citation

  • Pablo A. Cantero-Garlito & Pedro Moruno-Miralles & Juan Antonio Flores-Martos, 2020. "Mothers Who Take Care of Children with Disabilities in Rural Areas of a Spanish Region," IJERPH, MDPI, vol. 17(8), pages 1-13, April.
  • Handle: RePEc:gam:jijerp:v:17:y:2020:i:8:p:2920-:d:349339
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    References listed on IDEAS

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    1. Sally Bristow & Debra Jackson & Linda Shields & Kim Usher, 2018. "The rural mother's experience of caring for a child with a chronic health condition: An integrative review," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(13-14), pages 2558-2568, July.
    2. Natasha A. Layton & Emily J. Steel, 2015. "“An Environment Built to Include Rather than Exclude Me”: Creating Inclusive Environments for Human Well-Being," IJERPH, MDPI, vol. 12(9), pages 1-17, September.
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    Cited by:

    1. Miguel Madruga & Jorge Carlos-Vivas & María Mendoza-Muñoz & José Carmelo Adsuar & Lorenzo Mariano-Juárez & David Conde-Caballero, 2021. "Family Orchards and Health-Related Quality of Life in the Elderly. A Protocol for a Study in Las Hurdes (Spain) Based on an Ethnographic Approach," IJERPH, MDPI, vol. 18(3), pages 1-14, January.
    2. Borja Rivero-Jiménez & David Conde-Caballero & Lorenzo Mariano-Juárez, 2020. "Health and Nutritional Beliefs and Practices among Rural Elderly Population: An Ethnographic Study in Western Spain," IJERPH, MDPI, vol. 17(16), pages 1-16, August.

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    More about this item

    Keywords

    children; dependency; care; mothers; rural;
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