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Social Stigma in Diabetes

Author

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  • Jasmin Schabert
  • Jessica Browne
  • Kylie Mosely
  • Jane Speight

Abstract

A comprehensive understanding of the social and psychological impact of diabetes mellitus is important for informing policy and practice. One potentially significant, yet under-researched, issue is the social stigma surrounding diabetes. This narrative review draws on literature about health-related stigma in diabetes and other chronic conditions in order to develop a framework for understanding diabetes-related stigma. Our review of the literature found that people who do not have diabetes assume that diabetes is not a stigmatized condition. In contrast, people with diabetes report that stigma is a significant concern to them, experienced across many life domains, e.g., in the workplace, in relationships. The experience of diabetes-related stigma has a significant negative impact on many aspects of psychological well-being and may also result in sub-optimal clinical outcomes for people with diabetes. We propose a framework that highlights the causes (attitudes of blame, feelings of fear and disgust, and the felt need to enforce social norms and avoid disease), experiences (being judged, rejected, and discriminated against), and consequences (e.g., distress, poorer psychological well-being, and sub-optimal self-care) of diabetes-related stigma and also identifies potential mitigating strategies to reduce diabetes-related stigma and/or enhance coping and resilience amongst people with diabetes. The systematic investigation of the experiences, causes, and consequences of diabetes-related stigma is an urgent research priority. Copyright Springer International Publishing Switzerland 2013

Suggested Citation

  • Jasmin Schabert & Jessica Browne & Kylie Mosely & Jane Speight, 2013. "Social Stigma in Diabetes," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 6(1), pages 1-10, March.
    • Handle: RePEc:spr:patien:v:6:y:2013:i:1:p:1-10
    DOI: 10.1007/s40271-012-0001-0
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    Cited by:

    1. Ahmed, Ali & Hammarstedt, Mats & Karlsson, Karl, 2020. "Do Swedish schools discriminate against children with disabilities?," GLO Discussion Paper Series 529, Global Labor Organization (GLO).
    2. Michela Luciani & Lorenzo Montali & Gabriella Nicolò & Diletta Fabrizi & Stefania Di Mauro & Davide Ausili, 2021. "Self-care is Renouncement, Routine, and Control: The Experience of Adults with Type 2 Diabetes Mellitus," Clinical Nursing Research, , vol. 30(6), pages 892-900, July.
    3. Kawoun Seo & Youngshin Song, 2019. "Self‐stigma among Korean patients with diabetes: A concept analysis," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(9-10), pages 1794-1807, May.
    4. Whittle, Henry J. & Palar, Kartika & Ranadive, Nikhil A. & Turan, Janet M. & Kushel, Margot & Weiser, Sheri D., 2017. "“The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living with poverty and chronic illness in the United States," Social Science & Medicine, Elsevier, vol. 190(C), pages 181-189.
    5. Gemma C Macdonald & Lesley V Campbell, 2019. "What do People with Diabetes Distress want from their Diabetes Care Providers: are there Gender Differences?," Current Research in Diabetes & Obesity Journal, Juniper Publishers Inc., vol. 9(3), pages 66-71, January.
    6. Sarju Sing Rai & Elena V. Syurina & Ruth M. H. Peters & Annisa Ika Putri & Marjolein B. M. Zweekhorst, 2020. "Non-Communicable Diseases-Related Stigma: A Mixed-Methods Systematic Review," IJERPH, MDPI, vol. 17(18), pages 1-25, September.
    7. Michela Luciani & Paola Rebora & Emanuela Rossi & Luca Tonoli & Silvia Androni & Enrico Ballerini & Diletta Fabrizi & Barbara Riegel & Davide Ausili & Stefania Di Mauro, 2020. "How Do Basic Human Values Affect Self-Care of Type 2 Diabetes Patients? A Multicentre Observational Study," Clinical Nursing Research, , vol. 29(5), pages 304-312, June.
    8. Mónica Carreira & María Soledad Ruiz de Adana & Marta Domínguez & Sergio Valdés & Maria Cruz Almaraz & Gabriel Olveira & María Teresa Anarte, 2021. "Development and Validation of the Depression Inventory for Type 1 Diabetes (DID-1)," IJERPH, MDPI, vol. 18(23), pages 1-16, November.
    9. Schultze, Steven R. & Mujica, Frances C. & Kleinheksel, A.J., 2019. "Demographic and spatial trends in diabetes-related virtual nursing examinations," Social Science & Medicine, Elsevier, vol. 222(C), pages 225-230.
    10. Victor Pedrero & Jorge Manzi & Luz Marina Alonso, 2021. "A Cross-Sectional Analysis of the Stigma Surrounding Type 2 Diabetes in Colombia," IJERPH, MDPI, vol. 18(23), pages 1-16, December.
    11. Judith M. Ochieng & Janice D. Crist, 2021. "Social Determinants of Health and Health Care Delivery: African American Women’s T2DM Self-Management," Clinical Nursing Research, , vol. 30(3), pages 263-272, March.
    12. Winchenbach, Anke & Hanna, Paul & Miller, Graham, 2022. "Constructing identity in marine tourism diversification," Annals of Tourism Research, Elsevier, vol. 95(C).
    13. Maísa Miranda Araújo & Nathalia Pizato & Lorrany Santos Rodrigues & Laila Santos de Andrade & Verena Duarte de Moraes & Kênia Mara Baiocchi de Carvalho & Eliane Said Dutra & Patrícia Borges Botelho & , 2023. "Development and Validation of Protocol Based on Brazilian Dietary Guidelines for Adults with Diabetes Mellitus Who Attended Primary Health Care," IJERPH, MDPI, vol. 20(10), pages 1-13, May.
    14. Justin A. Haegele & Steven K. Holland & Eddie Hill, 2022. "Understanding Parents’ Experiences with Children with Type 1 Diabetes: A Qualitative Inquiry," IJERPH, MDPI, vol. 19(1), pages 1-10, January.
    15. Hasanul K. Al-Kayyis & Dyah A. Perwitasari, 2018. "Illness Perception and Quality of Life in Type 2 Diabetes Mellitus Patients in Lampung, Indonesia," Global Journal of Health Science, Canadian Center of Science and Education, vol. 10(7), pages 136-136, July.

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