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People With Dementia as Active Agents in Nursing Homes: A Scoping Review

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Listed:
  • Cecilia Ingard
  • Maria Sjölund
  • Sven Trygged

Abstract

People with dementia (PWD) are fragile and need aid and care in their daily lives. This scoping review explores the extent to which PWD can be involved in society and their daily lives. Publications were selected according to PRISMA guidelines. We graded the level of participation/involvement in daily life and research using a five-level participation model developed by Shier. A higher grade means a greater ambition to involve PWD in decisions. Of the 11 included studies, three reached level three according to Shier’s model. The studies describe ways of and potentials for participation, capabilities of PWD, caregivers’ opportunities to foster involvement, and cooperation between PWD caregivers and relatives. Caregivers and managers must have the attitude that PWD can be involved in decisions and caregivers need opportunities to actively promote such involvement. Shier’s model can be a tool with which organizations strive to involve PWD.

Suggested Citation

  • Cecilia Ingard & Maria Sjölund & Sven Trygged, 2023. "People With Dementia as Active Agents in Nursing Homes: A Scoping Review," SAGE Open, , vol. 13(2), pages 21582440231, June.
    • Handle: RePEc:sae:sagope:v:13:y:2023:i:2:p:21582440231180585
    DOI: 10.1177/21582440231180585
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    References listed on IDEAS

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    1. Cahill, Helen & Dadvand, Babak, 2018. "Re-conceptualising youth participation: A framework to inform action," Children and Youth Services Review, Elsevier, vol. 95(C), pages 243-253.
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