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Extent and Predictors of Decision Regret among Informal Caregivers Making Decisions for a Loved One: A Systematic Review

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  • Hélène Elidor

    (VITAM–Centre de recherche en santé durable, Quebec, QC, Canada
    Canada Research Chair in Shared Decision Making and Knowledge Translation (Tier 1) and Population Health and Practice-Changing Research Group, Quebec, QC, Canada
    Department of Social and Preventive Medicine, Faculty of Medicine, Université Laval, Quebec, QC, Canada)

  • Rhéda Adekpedjou

    (Canada Research Chair in Shared Decision Making and Knowledge Translation (Tier 1) and Population Health and Practice-Changing Research Group, Quebec, QC, Canada)

  • Hervé Tchala Vignon Zomahoun

    (VITAM–Centre de recherche en santé durable, Quebec, QC, Canada
    Health and Social Services Systems, Knowledge Translation and Implementation component of the Quebec SPOR-SUPPORT Unit, Université Laval, Quebec, QC, Canada
    Department of Social and Preventive Medicine, Faculty of Medicine, Université Laval, Quebec, QC, Canada)

  • Ali Ben Charif

    (VITAM–Centre de recherche en santé durable, Quebec, QC, Canada
    Health and Social Services Systems, Knowledge Translation and Implementation component of the Quebec SPOR-SUPPORT Unit, Université Laval, Quebec, QC, Canada
    Canada Research Chair in Shared Decision Making and Knowledge Translation (Tier 1) and Population Health and Practice-Changing Research Group, Quebec, QC, Canada
    Department of Family Medicine and Emergency Medicine, Université Laval, Quebec, QC, Canada)

  • Titilayo Tatiana Agbadjé

    (VITAM–Centre de recherche en santé durable, Quebec, QC, Canada
    Canada Research Chair in Shared Decision Making and Knowledge Translation (Tier 1) and Population Health and Practice-Changing Research Group, Quebec, QC, Canada)

  • Nathalie Rheault

    (VITAM–Centre de recherche en santé durable, Quebec, QC, Canada
    Health and Social Services Systems, Knowledge Translation and Implementation component of the Quebec SPOR-SUPPORT Unit, Université Laval, Quebec, QC, Canada)

  • France Légaré

    (VITAM–Centre de recherche en santé durable, Quebec, QC, Canada
    Health and Social Services Systems, Knowledge Translation and Implementation component of the Quebec SPOR-SUPPORT Unit, Université Laval, Quebec, QC, Canada
    Canada Research Chair in Shared Decision Making and Knowledge Translation (Tier 1) and Population Health and Practice-Changing Research Group, Quebec, QC, Canada
    Department of Family Medicine and Emergency Medicine, Université Laval, Quebec, QC, Canada)

Abstract

Background Informal caregivers often serve as decision makers for dependent or vulnerable individuals facing health care decisions. Decision regret is one of the most prevalent outcomes reported by informal caregivers who have made such decisions. Objective To examine levels of decision regret and its predictors among informal caregivers who have made health-related decisions for a loved one. Data sources We performed a systematic search of Embase, MEDLINE, Web of Science, and Google Scholar up to November 2018. Participants were informal caregivers, and the outcome was decision regret as measured using the Decision Regret Scale (DRS). Review methods Two reviewers independently selected eligible studies, extracted data, and assessed the methodological quality of studies using the Mixed Methods Appraisal Tool. We performed a narrative synthesis and presented predictors of decision regret using a conceptual framework, dividing the predictors into decision antecedents, decision-making process, and decision outcomes. Results We included 16 of 3003 studies identified. Most studies ( n = 13) reported a mean DRS score ranging from 7.0 to 32.3 out of 100 (median = 14.3). The methodological quality of studies was acceptable. We organized predictors and their estimated effects (β) or odds ratio (OR) with 95% confidence interval (CI) as follows: decision antecedents (e.g., caregivers’ desire to avoid the decision, OR 2.07, 95% CI [1.04–4.12], P = 0.04), decision-making process (e.g., caregivers’ perception of effective decision making, β = 0.49 [0.05, 0.93], P

Suggested Citation

  • Hélène Elidor & Rhéda Adekpedjou & Hervé Tchala Vignon Zomahoun & Ali Ben Charif & Titilayo Tatiana Agbadjé & Nathalie Rheault & France Légaré, 2020. "Extent and Predictors of Decision Regret among Informal Caregivers Making Decisions for a Loved One: A Systematic Review," Medical Decision Making, , vol. 40(8), pages 946-958, November.
    • Handle: RePEc:sae:medema:v:40:y:2020:i:8:p:946-958
    DOI: 10.1177/0272989X20963038
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    References listed on IDEAS

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