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An Innovative Lab-Based Training Program to Help Patient Groups Understand Their Disease and the Research Process

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  • Marion Mathieu
  • Constance Hammond
  • David G Karlin

Abstract

Genuine partnership between patient groups and medical experts is important but challenging. Our training program meets this challenge by organizing hands-on, lab-based training sessions for members of patient groups. These sessions allow “trainees” to better understand their disease and the biomedical research process, and strengthen links between patients and local researchers. Over the past decade, we and our partner institutes have received more than 900 French patients, with the participation of over 60 researchers and clinicians.Lab-based mini-research projects allow members of patient groups to understand the scientific method and how research works in practice, thereby fostering genuine partnership between patient groups and medical experts.

Suggested Citation

  • Marion Mathieu & Constance Hammond & David G Karlin, 2015. "An Innovative Lab-Based Training Program to Help Patient Groups Understand Their Disease and the Research Process," PLOS Biology, Public Library of Science, vol. 13(2), pages 1-11, February.
    • Handle: RePEc:plo:pbio00:1002067
    DOI: 10.1371/journal.pbio.1002067
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    References listed on IDEAS

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    1. Heidi Ledford, 2014. "Disease research: Rare insights," Nature, Nature, vol. 505(7483), pages 443-445, January.
    2. Caron-Flinterman, J. Francisca & Broerse, Jacqueline E.W. & Bunders, Joske F.G., 2005. "The experiential knowledge of patients: a new resource for biomedical research?," Social Science & Medicine, Elsevier, vol. 60(11), pages 2575-2584, June.
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