IDEAS home Printed from https://ideas.repec.org/a/ibn/gjhsjl/v10y2018i1p60.html
   My bibliography  Save this article

Do Clinical And Psychosocial Factors Affect Health-Related Quality of Life in Adolescents with Chronic Diseases?

Author

Listed:
  • Teresa Santos
  • Margarida Matos
  • Adilson Marques
  • Celeste Simões
  • Isabel Leal
  • Maria Machado

Abstract

Living with a chronic disease in adolescence can have an impact on the perception of Health-related Quality of Life (HRQoL). Facing the increasing relevance of psychosocial dimensions and also considering the interaction with clinical variables, this study aimed to measure the impact of clinical and psychosocial factors (separated and combined) on adolescent’s reported HRQoL.A cross-sectional study was conducted in a clinical population of 135 adolescents with chronic diseases (n=70 boys), average age- 14±1.5 years old. Through a self-reported questionnaire, HRQoL (KIDSCREEN-10), socio-demographic, clinical variables (diagnostic; time of diagnosis; self-perceived pain; disease severity proxy; disease-related medication intake/use of special equipment), and psychosocial variables (psychosomatic health; resilience; self-regulation; social support) were assessed.Separately, clinical and psychosocial variables showed a significant impact in HRQoL, 27.9% and 62.4%, respectively. Once combined, the previously identified variables had a significant impact (64.2%), but a different contribution from clinical and psychosocial variables was revealed- when first entering the clinical variables (model 1) the variance only reaches 30%, and much more from psychosocial variables seems to explain the total (64.2%); inversely, when first integrating psychosocial variables (model 2), the clinical ones added a small significance to the model (0.6%).The present study underlined the association of clinical (“disease-related”) and psychosocial (“non-disease-related”) factors on HRQoL. Furthermore, it reinforced the need to focus more on psychosocial dimensions, highlighted the potential role of psychosomatic health, resilience, self-regulation and social support. It can be suggested that the identification of impaired psychosocial domains may help professionals to better plan, and achieve effective interventions of psychosocial care.

Suggested Citation

  • Teresa Santos & Margarida Matos & Adilson Marques & Celeste Simões & Isabel Leal & Maria Machado, 2018. "Do Clinical And Psychosocial Factors Affect Health-Related Quality of Life in Adolescents with Chronic Diseases?," Global Journal of Health Science, Canadian Center of Science and Education, vol. 10(1), pages 1-60, January.
  • Handle: RePEc:ibn:gjhsjl:v:10:y:2018:i:1:p:60
    as

    Download full text from publisher

    File URL: http://www.ccsenet.org/journal/index.php/gjhs/article/download/70975/39353
    Download Restriction: no

    File URL: http://www.ccsenet.org/journal/index.php/gjhs/article/view/70975
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Ulrike Ravens-Sieberer & Angela Gosch & Thomas Abel & Pascal Auquier & Bärbel-Maria Bellach & Jeanet Bruil & Wolfgang Dür & Mick Power & Luis Rajmil, 2001. "Quality of life in children and adolescents: a European public health perspective," International Journal of Public Health, Springer;Swiss School of Public Health (SSPH+), vol. 46(5), pages 294-302, September.
    2. Ulrike Ravens-Sieberer & Torbjorn Torsheim & Jorn Hetland & Wilma Vollebergh & Franco Cavallo & Helena Jericek & Mujgan Alikasifoglu & Raili Välimaa & Veronika Ottova & Michael Erhart, 2009. "Subjective health, symptom load and quality of life of children and adolescents in Europe," International Journal of Public Health, Springer;Swiss School of Public Health (SSPH+), vol. 54(2), pages 151-159, September.
    3. Chris Roberts & J. Freeman & O. Samdal & C. Schnohr & M. Looze & S. Nic Gabhainn & R. Iannotti & M. Rasmussen, 2009. "The Health Behaviour in School-aged Children (HBSC) study: methodological developments and current tensions," International Journal of Public Health, Springer;Swiss School of Public Health (SSPH+), vol. 54(2), pages 140-150, September.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Adilson Marques & Yolanda Demetriou & Riki Tesler & Élvio R. Gouveia & Miguel Peralta & Margarida Gaspar de Matos, 2019. "Healthy Lifestyle in Children and Adolescents and Its Association with Subjective Health Complaints: Findings from 37 Countries and Regions from the HBSC Study," IJERPH, MDPI, vol. 16(18), pages 1-14, September.
    2. Aarestrup, Anne Kristine & Jørgensen, Thea Suldrup & Due, Pernille & Krølner, Rikke, 2014. "A six-step protocol to systematic process evaluation of multicomponent cluster-randomised health promoting interventions illustrated by the Boost study," Evaluation and Program Planning, Elsevier, vol. 46(C), pages 58-71.
    3. Nielsen, Line & Koushede, Vibeke & Vinther-Larsen, Mathilde & Bendtsen, Pernille & Ersbøll, Annette Kjær & Due, Pernille & Holstein, Bjørn E., 2015. "Does school social capital modify socioeconomic inequality in mental health? A multi-level analysis in Danish schools," Social Science & Medicine, Elsevier, vol. 140(C), pages 35-43.
    4. Diana P. Pozuelo‐Carrascosa & Vicente Martínez‐Vizcaíno & Mairena Sánchez‐López & Raquel Bartolomé‐Gutiérrez & Beatriz Rodríguez‐Martín & Blanca Notario‐Pacheco, 2017. "Resilience as a mediator between cardiorespiratory fitness and mental health‐related quality of life: A cross‐sectional study," Nursing & Health Sciences, John Wiley & Sons, vol. 19(3), pages 316-321, September.
    5. Xiaojie Cao & Siduo Ji, 2024. "Bidirectional relationship between self-rated health and the big five personality traits among Chinese adolescents: a two-wave cross-lagged study," Palgrave Communications, Palgrave Macmillan, vol. 11(1), pages 1-11, December.
    6. Wiklund, Maria & Bengs, Carita & Malmgren-Olsson, Eva-Britt & Öhman, Ann, 2010. "Young women facing multiple and intersecting stressors of modernity, gender orders and youth," Social Science & Medicine, Elsevier, vol. 71(9), pages 1567-1575, November.
    7. Jaroslava Voráčová & Erik Sigmund & Dagmar Sigmundová & Michal Kalman, 2016. "Family Affluence and the Eating Habits of 11- to 15-Year-Old Czech Adolescents: HBSC 2002 and 2014," IJERPH, MDPI, vol. 13(10), pages 1-11, October.
    8. Alexandra Nonnenmacher & Jürgen Friedrichs, 2013. "The Missing Link: Deficits of Country-Level Studies. A Review of 22 Articles Explaining Life Satisfaction," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 110(3), pages 1221-1244, February.
    9. Lucia Bosakova & Peter Kolarcik & Daniela Bobakova & Martina Sulcova & Jitse P. Dijk & Sijmen A. Reijneveld & Andrea Madarasova Geckova, 2016. "Test–retest reliability of the scale of participation in organized activities among adolescents in the Czech Republic and Slovakia," International Journal of Public Health, Springer;Swiss School of Public Health (SSPH+), vol. 61(3), pages 329-336, April.
    10. Lorena Charrier & Paola Berchialla & Paola Dalmasso & Alberto Borraccino & Patrizia Lemma & Franco Cavallo, 2019. "Cigarette Smoking and Multiple Health Risk Behaviors: A Latent Class Regression Model to Identify a Profile of Young Adolescents," Risk Analysis, John Wiley & Sons, vol. 39(8), pages 1771-1782, August.
    11. Paniagua, Carmen & Moreno, Carmen & Rivera, Francisco & Ramos, Pilar, 2019. "The sources of support and their relation on the global health of adopted and non-adopted adolescents," Children and Youth Services Review, Elsevier, vol. 98(C), pages 228-237.
    12. Gabriel Fernandez de Grado & Virginie Ehlinger & Emmanuelle Godeau & Catherine Arnaud & Cathy Nabet & Nadia Benkirane-Jessel & Anne-Marie Musset & Damien Offner, 2021. "Changes in tooth brushing frequency and its associated factors from 2006 to 2014 among French adolescents: Results from three repeated cross sectional HBSC studies," PLOS ONE, Public Library of Science, vol. 16(3), pages 1-12, March.
    13. Gerry Redmond & Irene García-Moya & Carmen Moreno & Anna Mooney & Fiona Brooks, 2022. "Gender Differences in the Relationship between Pressure from Schoolwork and Health Complaints: a Three Country Study," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 15(3), pages 763-780, June.
    14. Moreno-Maldonado, C. & Jiménez-Iglesias, A. & Camacho, I. & Rivera, F. & Moreno, C. & Matos, M.G., 2020. "Factors associated with life satisfaction of adolescents living with employed and unemployed parents in Spain and Portugal: A person focused approach," Children and Youth Services Review, Elsevier, vol. 110(C).
    15. Linas Šumskas & Apolinaras Zaborskis, 2017. "Family Social Environment and Parenting Predictors of Alcohol Use among Adolescents in Lithuania," IJERPH, MDPI, vol. 14(9), pages 1-14, September.
    16. Bíró, Éva & Dezső, Dóra & Sándor, János & Ádány, Róza, 2018. "Inequalities in Hungarian adolescents' health, health behaviour and well-being, based upon the results of a cross-sectional survey at settlement level, using the Health Behaviour in School-aged Childr," Children and Youth Services Review, Elsevier, vol. 90(C), pages 15-20.
    17. Zhan, Weihai & Smith, Susan R. & Warner, Lynette C. & North, Fred & Wilhelm, Sara & Nowak, Amanda, 2019. "Quality of life among children and adolescents in foster family homes," Children and Youth Services Review, Elsevier, vol. 107(C).
    18. Katharina Rathmann & Max Herke & Ludwig Bilz & Arja Rimpelä & Klaus Hurrelmann & Matthias Richter, 2018. "Class-Level School Performance and Life Satisfaction: Differential Sensitivity for Low- and High-Performing School-Aged Children," IJERPH, MDPI, vol. 15(12), pages 1-17, December.
    19. Rob Gommans & Gonneke Stevens & Emily Finne & Antonius Cillessen & Meyran Boniel-Nissim & Tom Bogt, 2015. "Frequent electronic media communication with friends is associated with higher adolescent substance use," International Journal of Public Health, Springer;Swiss School of Public Health (SSPH+), vol. 60(2), pages 167-177, February.
    20. Aistė Kavaliauskienė & Antanas Šidlauskas & Apolinaras Zaborskis, 2017. "Association between Global Life Satisfaction and Self-Rated Oral Health Conditions among Adolescents in Lithuania," IJERPH, MDPI, vol. 14(11), pages 1-13, November.

    More about this item

    JEL classification:

    • R00 - Urban, Rural, Regional, Real Estate, and Transportation Economics - - General - - - General
    • Z0 - Other Special Topics - - General

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:ibn:gjhsjl:v:10:y:2018:i:1:p:60. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Canadian Center of Science and Education (email available below). General contact details of provider: https://edirc.repec.org/data/cepflch.html .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.