IDEAS home Printed from https://ideas.repec.org/a/gam/jsoctx/v7y2017i2p6-d95723.html
   My bibliography  Save this article

Shared Participatory Research Principles and Methodologies: Perspectives from the USA and Brazil—45 Years after Paulo Freire’s “Pedagogy of the Oppressed”

Author

Listed:
  • Nina Wallerstein

    (Center for Participatory Research, College of Population Health, University of New Mexico, Albuquerque, NM 87131, USA)

  • Leandro L. Giatti

    (School of Public Health, University of São Paulo, São Paulo SP 01246-904, Brazil)

  • Cláudia Maria Bógus

    (School of Public Health, University of São Paulo, São Paulo SP 01246-904, Brazil)

  • Marco Akerman

    (School of Public Health, University of São Paulo, São Paulo SP 01246-904, Brazil)

  • Pedro Roberto Jacobi

    (Institute of Energy and Environment, University of São Paulo, São Paulo SP 05508-010, Brazil)

  • Renata Ferraz De Toledo

    (Complexo Educacional Faculdades Metropolitanas Unidas—FMU, Environmental Health Master Degree Program, São Paulo SP 05690-050, Brazil)

  • Rosilda Mendes

    (Federal University of São Paulo, Department of Public Policy and Collective Health, São Paulo SP 11065-240, Brazil)

  • Sonia Acioli

    (Nursing College, State University of Rio de Janeiro, UERJ, Rio de Janeiro RJ 20.551.030, Brazil)

  • Margaret Bluehorse-Anderson

    (Healthy Native Communities Partnership, Inc., Shiprock, NM 87420, USA)

  • Shelley Frazier

    (Healthy Native Communities Partnership, Inc., Shiprock, NM 87420, USA)

  • Marita Jones

    (Healthy Native Communities Partnership, Inc., Shiprock, NM 87420, USA)

Abstract

The trajectory of participation in health research by community social actors worldwide has been built on a history of community participation from the Ottawa Charter Health Promotion call for community mobilization, to the emancipatory educational philosophy of Paulo Freire, to social movements and organizing for health and social justice. This paper builds on this history to expand our global knowledge about community participation in research through a dialogue between experiences and contexts in two prominent countries in this approach; the United States and Brazil. We first focus on differences in political and scientific contexts, financing, and academic perspectives and then present how, despite these differences, similarities exist in values and collaborative methodologies aimed at engaging community partners in democratizing science and knowledge construction. We present three case studies, one from the U.S. and two from Brazil, which illustrate similar multi-level processes using participatory research tools and Freirian dialogue to contribute to social mobilization, community empowerment, and the transformation of inequitable societal conditions. Despite different processes of evolution, we observed a convergence of participatory health research strategies and values that can transform science in our commitment to reduce health and social inequities and improve community wellbeing.

Suggested Citation

  • Nina Wallerstein & Leandro L. Giatti & Cláudia Maria Bógus & Marco Akerman & Pedro Roberto Jacobi & Renata Ferraz De Toledo & Rosilda Mendes & Sonia Acioli & Margaret Bluehorse-Anderson & Shelley Fraz, 2017. "Shared Participatory Research Principles and Methodologies: Perspectives from the USA and Brazil—45 Years after Paulo Freire’s “Pedagogy of the Oppressed”," Societies, MDPI, vol. 7(2), pages 1-17, April.
  • Handle: RePEc:gam:jsoctx:v:7:y:2017:i:2:p:6-:d:95723
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/2075-4698/7/2/6/pdf
    Download Restriction: no

    File URL: https://www.mdpi.com/2075-4698/7/2/6/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Glasgow, R.E. & Vinson, C. & Chambers, D. & Khoury, M.J. & Kaplan, R.M. & Hunter, C., 2012. "National institutes of health approaches to dissemination and implementation science: Current and future directions," American Journal of Public Health, American Public Health Association, vol. 102(7), pages 1274-1281.
    2. Ahmed, S.M. & Palermo, A.-G.S., 2010. "Community engagement in research: Frameworks for education and peer review," American Journal of Public Health, American Public Health Association, vol. 100(8), pages 1380-1387.
    3. Trickett, E.J., 2011. "Community-based participatory research as worldview or instrumental Strategy: Is it lost in translation(al) research?," American Journal of Public Health, American Public Health Association, vol. 101(8), pages 1353-1355.
    4. Wallerstein, N. & Duran, B., 2010. "Community-based participatory research contributions to intervention research: The intersection of science and practice to improve health equity," American Journal of Public Health, American Public Health Association, vol. 100(S1), pages 40-46.
    5. Jan Nederveen Pieterse, 1998. "My Paradigm or Yours? Alternative Development, Post‐Development, Reflexive Development," Development and Change, International Institute of Social Studies, vol. 29(2), pages 343-373, April.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Nancy Vargas & Jesse L. Clark & Ivan A. Estrada & Cynthia De La Torre & Nili Yosha & Mario Magaña Alvarez & Richard G. Parker & Jonathan Garcia, 2022. "Critical Consciousness for Connectivity: Decoding Social Isolation Experienced by Latinx and LGBTQ+ Youth Using a Multi-Stakeholder Approach to Health Equity," IJERPH, MDPI, vol. 19(17), pages 1-29, September.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Dave, Gaurav & Frerichs, Leah & Jones, Jennifer & Kim, Mimi & Schaal, Jennifer & Vassar, Stefanie & Varma, Deepthi & Striley, Catherine & Ruktanonchai, Corrine & Black, Adina & Hankins, Jennifer & Lov, 2018. "Conceptualizing trust in community-academic research partnerships using concept mapping approach: A multi-CTSA study," Evaluation and Program Planning, Elsevier, vol. 66(C), pages 70-78.
    2. Vaughn, Lisa M. & Jones, Jennifer R. & Booth, Emily & Burke, Jessica G., 2017. "Concept mapping methodology and community-engaged research: A perfect pairing," Evaluation and Program Planning, Elsevier, vol. 60(C), pages 229-237.
    3. Lotte Prevo & Stef Kremers & Maria Jansen, 2020. "Small Successes Make Big Wins: A Retrospective Case Study towards Community Engagement of Low-SES Families," IJERPH, MDPI, vol. 17(2), pages 1-13, January.
    4. Held, Suzanne & Hallett, John & Schure, Mark & Knows His Gun McCormick, Alma & Allen, Sarah & Milne-Price, Shauna & Trottier, Coleen & Bull Shows, Brianna & Other Medicine, Lucille & Inouye, Jillian, 2019. "Improving chronic illness self-management with the Apsáalooke Nation: Development of the Báa nnilah program," Social Science & Medicine, Elsevier, vol. 242(C).
    5. Mayer, Yael & Ilan, Rotem & Slone, Michelle & Lurie, Ido, 2020. "Relations between traumatic life events and mental health of Eritrean asylum-seeking mothers and their children's mental health," Children and Youth Services Review, Elsevier, vol. 116(C).
    6. Katrina G. Claw & Casey R. Dorr & Erica L. Woodahl, 2024. "Implementing community-engaged pharmacogenomics in Indigenous communities," Nature Communications, Nature, vol. 15(1), pages 1-5, December.
    7. Diana Rohlman & Jamie Donatuto & Myk Heidt & Michael Barton & Larry Campbell & Kim A. Anderson & Molly L. Kile, 2019. "A Case Study Describing a Community-Engaged Approach for Evaluating Polycyclic Aromatic Hydrocarbon Exposure in a Native American Community," IJERPH, MDPI, vol. 16(3), pages 1-18, January.
    8. Murat Arsel & Navé Wald, 2015. "Forum 2015," Development and Change, International Institute of Social Studies, vol. 46(4), pages 618-643, July.
    9. Dana H. Z. Williamson & Sheryl Good & Daphne Wilson & Na’Taki Osborne Jelks & Dayna A. Johnson & Kelli A. Komro & Michelle C. Kegler, 2023. "Using the Collaborative Problem-Solving Model: Findings from an Evaluation of U.S. EPA’s Environmental Justice Academy," Sustainability, MDPI, vol. 15(20), pages 1-24, October.
    10. Van Alstine, James & Barkemeyer, Ralf, 2014. "Business and development: Changing discourses in the extractive industries," Resources Policy, Elsevier, vol. 40(C), pages 4-16.
    11. daSilva, Madelyn & Dissanayake, Melanie & Sibbald, Shannon L., 2024. "Beyond implementation: A collective case study exploring the conceptions and facilitators of sustainability in a quality improvement collaborative," Evaluation and Program Planning, Elsevier, vol. 102(C).
    12. Meena Daivadanam & Maia Ingram & Kristi Sidney Annerstedt & Gary Parker & Kirsty Bobrow & Lisa Dolovich & Gillian Gould & Michaela Riddell & Rajesh Vedanthan & Jacqui Webster & Pilvikki Absetz & Helle, 2019. "The role of context in implementation research for non-communicable diseases: Answering the ‘how-to’ dilemma," PLOS ONE, Public Library of Science, vol. 14(4), pages 1-22, April.
    13. Murat Arsel & Aram Ziai, 2015. "Forum 2015," Development and Change, International Institute of Social Studies, vol. 46(4), pages 833-854, July.
    14. Gordon Wilson, 2008. "Our knowledge ourselves: Engineers (re)thinking technology in development," Journal of International Development, John Wiley & Sons, Ltd., vol. 20(6), pages 739-750.
    15. Ullrich-French, Sarah & Cole, Amy N. & Montgomery, Anna K., 2016. "Evaluation development for a physical activity positive youth development program for girls," Evaluation and Program Planning, Elsevier, vol. 55(C), pages 67-76.
    16. James Smith, 2005. "Context-bound knowledge production, capacity building and new product networks," Journal of International Development, John Wiley & Sons, Ltd., vol. 17(5), pages 647-659.
    17. Nader Hamdi & Brenna Ellison & Jennifer McCaffrey & Jessica Jarick Metcalfe & Ashley Hoffman & Pamela Haywood & Melissa Pflugh Prescott, 2020. "Implementation of a Multi-Component School Lunch Environmental Change Intervention to Improve Child Fruit and Vegetable Intake: A Mixed-Methods Study," IJERPH, MDPI, vol. 17(11), pages 1-17, June.
    18. Ebitu, Larmbert & Avery, Helen & Mourad, Khaldoon A. & Enyetu, Joshua, 2021. "Citizen science for sustainable agriculture – A systematic literature review," Land Use Policy, Elsevier, vol. 103(C).
    19. Murat Arsel & Murat Arsel & Anirban Dasgupta, 2015. "Forum 2015," Development and Change, International Institute of Social Studies, vol. 46(4), pages 644-665, July.
    20. Jessica L. Mackelprang & Janessa M. Graves & Halle M. Schulz, 2024. "Using Photovoice to Explore Determinants of Health among Homeless and Unstably Housed Women," IJERPH, MDPI, vol. 21(2), pages 1-13, February.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jsoctx:v:7:y:2017:i:2:p:6-:d:95723. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.