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Translation and Linguistic Validation of a Swedish Study-Specific Questionnaire for Use among Norwegian Parents Who Lost a Child to Cancer

Author

Listed:
  • Hilde-Kristin Vegsund

    (Department of Public Health and Nursing, Centre for Health Promotion Research, NTNU Norwegian University of Science and Technology, Trondheim, 7491 NO, Norway
    Department of Psychology, NTNU Norwegian University of Science and Technology, Trondheim, 7491 NO, Norway)

  • Toril Rannestad

    (Department of Public Health and Nursing, Centre for Health Promotion Research, NTNU Norwegian University of Science and Technology, Trondheim, 7491 NO, Norway)

  • Trude Reinfjell

    (Department of Psychology, NTNU Norwegian University of Science and Technology, Trondheim, 7491 NO, Norway)

  • Unni Karin Moksnes

    (Department of Public Health and Nursing, Centre for Health Promotion Research, NTNU Norwegian University of Science and Technology, Trondheim, 7491 NO, Norway)

  • Alexandra Eilegård Wallin

    (School of Education, Health and Society, Dalarna University, 791 88 Falun, Sweden)

  • Mary-Elizabeth Bradley Eilertsen

    (Department of Public Health and Nursing, Centre for Health Promotion Research, NTNU Norwegian University of Science and Technology, Trondheim, 7491 NO, Norway)

Abstract

Background: Research is needed on how to help cancer-bereaved parents, as they are considered to be a vulnerable population and they are at risk of developing ill health following the loss of a child to cancer. The purpose of the present study was to translate and linguistically validate a Swedish study-specific questionnaire that was developed for Swedish cancer-bereaved parents. The translated questionnaire will be used in a nationwide study in Norway. Methods: Forward and backward translations of the Swedish study-specific questionnaire were conducted, followed by linguistic validation based on telephone interviews with six Norwegian cancer-bereaved parents. Result: It was found that several medical terms and conceptual issues were difficult for the Norwegian parents to understand. There were also four issues regarding the response alternatives. Conclusions: Although Sweden and Norway have quite similar cultures and languages, the results off this pilot study show that, to ensure the quality of a translated questionnaire, linguistic validation as well as translation is necessary.

Suggested Citation

  • Hilde-Kristin Vegsund & Toril Rannestad & Trude Reinfjell & Unni Karin Moksnes & Alexandra Eilegård Wallin & Mary-Elizabeth Bradley Eilertsen, 2018. "Translation and Linguistic Validation of a Swedish Study-Specific Questionnaire for Use among Norwegian Parents Who Lost a Child to Cancer," Social Sciences, MDPI, vol. 7(10), pages 1-18, October.
    • Handle: RePEc:gam:jscscx:v:7:y:2018:i:10:p:187-:d:173627
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    References listed on IDEAS

    as
    1. Dyregrov, Kari, 2004. "Bereaved parents' experience of research participation," Social Science & Medicine, Elsevier, vol. 58(2), pages 391-400, January.
    2. Najman, Jake M. & Vance, John C. & Boyle, Fran & Embleton, Gary & Foster, Bill & Thearle, John, 1993. "The impact of a child death on marital adjustment," Social Science & Medicine, Elsevier, vol. 37(8), pages 1005-1010, October.
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