IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v19y2022i1p452-d715898.html
   My bibliography  Save this article

The Reactions of Adolescents, Parents and Clinicians to Participating in Qualitative Research Interviews Regarding Adolescents Bereaved by Suicide and Other Traumatic Death

Author

Listed:
  • Karl Andriessen

    (Centre for Mental Health, Melbourne School of Population and Global Health, The University of Melbourne, Parkville, VIC 3010, Australia)

  • Karolina Krysinska

    (Centre for Mental Health, Melbourne School of Population and Global Health, The University of Melbourne, Parkville, VIC 3010, Australia)

  • Debra Rickwood

    (Faculty of Health, University of Canberra, Canberra, ACT 2617, Australia)

  • Jane Pirkis

    (Centre for Mental Health, Melbourne School of Population and Global Health, The University of Melbourne, Parkville, VIC 3010, Australia)

Abstract

There are concerns that involving adolescents bereaved by suicide and other traumatic death in research may cause distress and harm. However, no study has investigated such bereaved adolescents’ research experiences. In addition, no study has looked at the experiences of parents and clinicians as participants in adolescent suicide and traumatic death bereavement research. This study aimed to explore the short-term impact of research participation experienced by adolescents, parents, and clinicians. A total of 61 participants (adolescents, n = 17; parents, n = 12; clinicians, n = 32) filled out a short survey within two weeks of having taken part in a qualitative interview study. Data were analyzed descriptively. Most participants had experienced no distress while participating and no negative effects of participating; rather, participation was experienced as helpful for them and they would highly recommend participating in a study like this to others. A few adolescents and parents reported some distress, related to anxiety about participation and the unpleasantness of grief memories. The study clearly indicates that bereaved adolescents, parents and clinicians can safely participate in research interviews regarding their experiences of grief and help after suicide, generally valuing the opportunity to share their experience. To prevent and mitigate potential distress, training of research staff and implementation of appropriate participant distress protocols are imperative. Future studies could include longitudinal follow-up of participants to assess any longer-term consequences.

Suggested Citation

  • Karl Andriessen & Karolina Krysinska & Debra Rickwood & Jane Pirkis, 2022. "The Reactions of Adolescents, Parents and Clinicians to Participating in Qualitative Research Interviews Regarding Adolescents Bereaved by Suicide and Other Traumatic Death," IJERPH, MDPI, vol. 19(1), pages 1-13, January.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:1:p:452-:d:715898
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/19/1/452/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/1660-4601/19/1/452/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Appollis, T.M. & Lund, C. & De Vries, P.J. & Mathews, C., 2015. "Adolescents' and adults' experiences of being surveyed about violence and abuse: A systematic review of harms, benefits, and regrets," American Journal of Public Health, American Public Health Association, vol. 105(2), pages 31-45.
    2. Dyregrov, Kari, 2004. "Bereaved parents' experience of research participation," Social Science & Medicine, Elsevier, vol. 58(2), pages 391-400, January.
    3. Karl Andriessen & Lennart Reifels & Karolina Krysinska & Jo Robinson & Georgia Dempster & Jane Pirkis, 2019. "Dealing with Ethical Concerns in Suicide Research: A Survey of Australian Researchers," IJERPH, MDPI, vol. 16(7), pages 1-12, March.
    4. Elisabeta Ioana Hiriscau & Nicola Stingelin-Giles & Danuta Wasserman & Stella Reiter-Theil, 2016. "Identifying Ethical Issues in Mental Health Research with Minors Adolescents: Results of a Delphi Study," IJERPH, MDPI, vol. 13(5), pages 1-20, May.
    5. Karl Andriessen & Karolina Krysinska & Debra Rickwood & Jane Pirkis, 2020. "“It Changes Your Orbit”: The Impact of Suicide and Traumatic Death on Adolescents as Experienced by Adolescents and Parents," IJERPH, MDPI, vol. 17(24), pages 1-18, December.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Yossi Levi-Belz & Karolina Krysinska & Karl Andriessen, 2023. "What Do We Know about Suicide Bereavement, and What We Can Do to Help Suicide-Loss Survivors?," IJERPH, MDPI, vol. 20(8), pages 1-5, April.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Ahmad Y. Al‐Sagarat & Ayman M. Hamdan‐Mansour & Faris Al‐Sarayreh & Hani Nawafleh & Lorna Moxham, 2016. "Prevalence of aggressive behaviours among inpatients with psychiatric disorders: A case study analysis from Jordan," Nursing & Health Sciences, John Wiley & Sons, vol. 18(2), pages 172-179, June.
    2. Hilde-Kristin Vegsund & Toril Rannestad & Trude Reinfjell & Unni Karin Moksnes & Alexandra Eilegård Wallin & Mary-Elizabeth Bradley Eilertsen, 2018. "Translation and Linguistic Validation of a Swedish Study-Specific Questionnaire for Use among Norwegian Parents Who Lost a Child to Cancer," Social Sciences, MDPI, vol. 7(10), pages 1-18, October.
    3. Sean G. Dicks & Ian J. Pieper & Holly L. Northam & Frank M. P. van Haren & Douglas P. Boer, 2020. "Why Did You Not Act on Our Suggestion? Regulatory and Growth-Oriented Opportunities During Ethical Review: A Case Study," SAGE Open, , vol. 10(2), pages 21582440209, May.
    4. Myfanwy Maple & Sarah Wayland & Rebecca Sanford & Ailbhe Spillane & Sarah Coker, 2020. "Carers’ Motivations for, and Experiences of, Participating in Suicide Research," IJERPH, MDPI, vol. 17(5), pages 1-15, March.
    5. Trondsen, Marianne & Sandaunet, Anne-Grete, 2009. "The dual role of the action researcher," Evaluation and Program Planning, Elsevier, vol. 32(1), pages 13-20, February.
    6. Lena Axelsson & Birgitta Klang & Carina Lundh Hagelin & Stefan H Jacobson & Sissel Andreassen Gleissman, 2015. "Meanings of being a close relative of a family member treated with haemodialysis approaching end of life," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(3-4), pages 447-456, February.
    7. Ben Mathews, 2022. "Adolescent Capacity to Consent to Participate in Research: A Review and Analysis Informed by Law, Human Rights, Ethics, and Developmental Science," Laws, MDPI, vol. 12(1), pages 1-49, December.
    8. Kate Reed & Laura Towers, 2023. "Almost Confessional: Managing Emotions When Research Breaks Your Heart," Sociological Research Online, , vol. 28(1), pages 261-278, March.
    9. Gouda, H.N. & Kelly-Hanku, A. & Wilson, L. & Maraga, S. & Riley, I.D., 2016. "“Whenever they cry, I cry with them”: Reciprocal relationships and the role of ethics in a verbal autopsy study in Papua New Guinea," Social Science & Medicine, Elsevier, vol. 163(C), pages 1-9.
    10. Julius Sim & Jackie Waterfield, 2019. "Focus group methodology: some ethical challenges," Quality & Quantity: International Journal of Methodology, Springer, vol. 53(6), pages 3003-3022, November.
    11. Alison Clements & Angela Nicholas & Karen E Martin & Susan Young, 2022. "Towards an Evidence-Based Model of Workplace Postvention," IJERPH, MDPI, vol. 20(1), pages 1-17, December.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:19:y:2022:i:1:p:452-:d:715898. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.