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The Inclusion of the Lived Experience of Disability in Policymaking

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  • Laufey Löve

    (Centre for Disability Studies, Faculty of Social and Human Sciences, University of Iceland, 101 Reykjavik, Iceland)

  • Rannveig Traustadóttir

    (Centre for Disability Studies, Faculty of Social and Human Sciences, University of Iceland, 101 Reykjavik, Iceland)

  • Gerard Quinn

    (Centre for Disability Law & Policy, National University of Ireland, H91 TK33 Galway, Ireland)

  • James Rice

    (Centre for Disability Studies, Faculty of Social and Human Sciences, and Department of Anthropology, University of Iceland, 101 Reykjavik, Iceland)

Abstract

This paper examines the process under way in Iceland to align national law with the UN Convention on the Rights of Persons with Disabilities, focusing on the Convention’s call for the active involvement of disabled people and their representative organizations in policy and decision making on matters that affect them. The paper draws on comments submitted by Icelandic DPOs on draft legislation intended to replace the existing law on services for disabled people, focusing on comments relating to their ability to participate in and affect the policymaking process. Furthermore, it draws on interviews with leaders of representative organizations of disabled people that solicited their views on the issue. The findings indicate that there is a reluctance on behalf of Icelandic authorities to make changes to the established process, which limits the active participation of disabled people and their representative organizations. The draft legislation has neither been revised to include provisions for expanding the participation of DPOs in policy and decision making, nor to ensure that disabled people themselves participate in the process.

Suggested Citation

  • Laufey Löve & Rannveig Traustadóttir & Gerard Quinn & James Rice, 2017. "The Inclusion of the Lived Experience of Disability in Policymaking," Laws, MDPI, vol. 6(4), pages 1-16, December.
  • Handle: RePEc:gam:jlawss:v:6:y:2017:i:4:p:33-:d:123621
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    References listed on IDEAS

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    2. Theresia Degener, 2016. "Disability in a Human Rights Context," Laws, MDPI, vol. 5(3), pages 1-24, August.
    3. Stephen Meyers, 2016. "NGO-Ization and Human Rights Law: The CRPD’s Civil Society Mandate," Laws, MDPI, vol. 5(2), pages 1-14, May.
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    Cited by:

    1. Hanna Björg Sigurjónsdóttir & James Gordon Rice, 2023. "“Alleged Disabilities”: The Evolving Tactics of Child Protection in a Disability Rights Environment," Laws, MDPI, vol. 12(2), pages 1-15, March.
    2. Joanne McVeigh & Malcolm MacLachlan & Delia Ferri & Hasheem Mannan, 2021. "Strengthening the Participation of Organisations of Persons with Disabilities in the Decision-Making of National Government and the United Nations: Further Analyses of the International Disability All," Disabilities, MDPI, vol. 1(3), pages 1-16, August.
    3. Laufey Löve & Rannveig Traustadóttir & James Rice, 2019. "Shifting the Balance of Power: The Strategic Use of the CRPD by Disabled People’s Organizations in Securing ‘a Seat at the Table’," Laws, MDPI, vol. 8(2), pages 1-15, May.

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