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Setting Patient-Centered Priorities for Cardiovascular Disease in Central Appalachia: Engaging Stakeholder Experts to Develop a Research Agenda

Author

Listed:
  • Dumisa Nyarambi

    (Department of Community and Behavioral Health, College of Public Health, East Tennessee State University, Johnson City, TN 37614, USA)

  • Fenose Osedeme

    (Department of Community and Behavioral Health, College of Public Health, East Tennessee State University, Johnson City, TN 37614, USA)

  • Hadii M. Mamudu

    (Department of Health Services Management and Policy, College of Public Health, East Tennessee State University, Johnson City, TN 37614, USA
    Center for Cardiovascular Risk Research, East Tennessee State University, Johnson City, TN 37614, USA)

  • Mary A. Littleton

    (Department of Community and Behavioral Health, College of Public Health, East Tennessee State University, Johnson City, TN 37614, USA)

  • Amy M. Poole

    (Center for Cardiovascular Risk Research, East Tennessee State University, Johnson City, TN 37614, USA)

  • Cynthia Blair

    (Center for Cardiovascular Risk Research, East Tennessee State University, Johnson City, TN 37614, USA)

  • Carl Voigt

    (Center for Cardiovascular Risk Research, East Tennessee State University, Johnson City, TN 37614, USA)

  • Rob Gregory

    (Karing Hearts Cardiology, Johnson City, TN 37604, USA)

  • David Drozek

    (Heritage College of Osteopathic Medicine, Ohio University, Athens, OH 45701, USA)

  • David W. Stewart

    (Center for Cardiovascular Risk Research, East Tennessee State University, Johnson City, TN 37614, USA
    Department of Pharmacy Practice, Bill Gatton College of Pharmacy, East Tennessee State University, Johnson City, TN 37614, USA)

  • Florence M. Weierbach

    (Center for Cardiovascular Risk Research, East Tennessee State University, Johnson City, TN 37614, USA
    College of Nursing, East Tennessee State University, Johnson City, TN 37614, USA)

  • Timir K. Paul

    (Center for Cardiovascular Risk Research, East Tennessee State University, Johnson City, TN 37614, USA
    College of Medicine, Health Science Center, University of Tennessee-Nashville, Nashville, TN 37203, USA)

  • Emily K. Flores

    (Center for Cardiovascular Risk Research, East Tennessee State University, Johnson City, TN 37614, USA
    Department of Pharmacy Practice, Bill Gatton College of Pharmacy, East Tennessee State University, Johnson City, TN 37614, USA)

  • Holly Wei

    (College of Nursing, East Tennessee State University, Johnson City, TN 37614, USA)

Abstract

The disproportionate burden of cardiovascular diseases (CVD) and associated risk factors continues to exist in the Central Appalachian Region (CAR) of the United States. Previous studies to gather data about patient-centered care for CVD in the region were conducted through focus group discussions. There have not been any studies that used a collaborative framework where patients, providers, and community stakeholders were engaged as panelists. The objective of this study was to identify patient-centered research priorities for CVD in the CAR. We used a modified Delphi approach to administer questionnaires to forty-two stakeholder experts in six states representing the CAR between the fall of 2018 and the summer of 2019. Their responses were analyzed for rankings and derived priorities by research gaps. Six of the fifteen research priorities identified were patient-centered. These patient-centered priorities included shorter wait times for appointments; educating patients at their level; empowering patients to take responsibility for their health; access to quality providers; heart disease specialists for rural areas; and lifestyle changes. The participants’ commitments to identify patient-centered research priorities indicate the potential to engage in community-based collaboration to address the burden of CVD in the CAR.

Suggested Citation

  • Dumisa Nyarambi & Fenose Osedeme & Hadii M. Mamudu & Mary A. Littleton & Amy M. Poole & Cynthia Blair & Carl Voigt & Rob Gregory & David Drozek & David W. Stewart & Florence M. Weierbach & Timir K. Pa, 2023. "Setting Patient-Centered Priorities for Cardiovascular Disease in Central Appalachia: Engaging Stakeholder Experts to Develop a Research Agenda," IJERPH, MDPI, vol. 20(9), pages 1-10, April.
  • Handle: RePEc:gam:jijerp:v:20:y:2023:i:9:p:5660-:d:1134022
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    References listed on IDEAS

    as
    1. Carina A. C. M. Pittens & Janneke E. Elberse & Merel Visse & Tineke A. Abma & Jacqueline E. W. Broerse, 2014. "Research agendas involving patients: Factors that facilitate or impede translation of patients’ perspectives in programming and implementation," Science and Public Policy, Oxford University Press, vol. 41(6), pages 809-820.
    2. Braden O’Neill & Vanessa Aversa & Katherine Rouleau & Kim Lazare & Frank Sullivan & Nav Persaud, 2018. "Identifying top 10 primary care research priorities from international stakeholders using a modified Delphi method," PLOS ONE, Public Library of Science, vol. 13(10), pages 1-10, October.
    3. Wallerstein, N. & Duran, B., 2010. "Community-based participatory research contributions to intervention research: The intersection of science and practice to improve health equity," American Journal of Public Health, American Public Health Association, vol. 100(S1), pages 40-46.
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