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Impact of COVID-19 Pandemic on Caregivers of People with an Intellectual Disability, in Comparison to Carers of Those with Other Disabilities and with Mental Health Issues: A Multicountry Study

Author

Listed:
  • Andrew Wormald

    (Trinity Centre for Ageing and Intellectual Disability, Trinity College Dublin, D02 PN40 Dublin, Ireland
    These authors contributed equally to this work.)

  • Eimear McGlinchey

    (Trinity Centre for Ageing and Intellectual Disability, Trinity College Dublin, D02 PN40 Dublin, Ireland
    The Global Brain Health Institute, Trinity College Dublin, D02 PN40 Dublin, Ireland
    These authors contributed equally to this work.)

  • Maureen D’Eath

    (Trinity Centre for Ageing and Intellectual Disability, Trinity College Dublin, D02 PN40 Dublin, Ireland)

  • Iracema Leroi

    (The Global Brain Health Institute, Trinity College Dublin, D02 PN40 Dublin, Ireland)

  • Brian Lawlor

    (The Global Brain Health Institute, Trinity College Dublin, D02 PN40 Dublin, Ireland)

  • Philip McCallion

    (College of Public Health, Temple University, Philadelphia, PA 19122, USA)

  • Mary McCarron

    (Trinity Centre for Ageing and Intellectual Disability, Trinity College Dublin, D02 PN40 Dublin, Ireland)

  • Roger O’Sullivan

    (Institute of Public Health, D08 NH90 Dublin, Ireland
    The Bamford Centre, Ulster University, Coleraine BT52 1SA, UK)

  • Yaohua Chen

    (The Global Brain Health Institute, Trinity College Dublin, D02 PN40 Dublin, Ireland
    Department of Gerontology, Lille University Hospital, 59000 Lille, France
    INSERM UMR-S 1172, Vascular and Degenerative Cognitive Disorders, University of Lille, 59000 Lille, France)

Abstract

Carers supporting people with an intellectual disability often rely on others to manage the burden of care. This research aims to compare the differences between carer groups and understand the predictors of loneliness changes and burden for carers of people with an intellectual disability. Data from the international CLIC study were analysed. In total, 3930 carers responded from four groups; people who care for those with mental health difficulties ( n = 491), dementia ( n = 1888), physical disabilities ( n = 1147), and Intellectual disabilities ( n = 404). Cross tabulation and the chi-squared test were used to compare group compositions and binary logistic regression to model predictors within the intellectual disability group. A total of 65% of those caring for people with an intellectual disability experienced increased burden, and 35% of carers of people with an intellectual disability and another condition experienced more severe loneliness. Becoming severely lonely was predicted by feeling burdened by caring (AOR, 15.89) and worsening mental health (AOR, 2.13) Feeling burden was predicted by being aged between 35 and 44 (AOR, 4.24), poor mental health (AOR, 3.51), and feelings of severe loneliness prior to the pandemic (AOR, 2.45). These findings demonstrate that those who were already struggling with caring experienced the greatest difficulties during the COVID-19 lockdowns.

Suggested Citation

  • Andrew Wormald & Eimear McGlinchey & Maureen D’Eath & Iracema Leroi & Brian Lawlor & Philip McCallion & Mary McCarron & Roger O’Sullivan & Yaohua Chen, 2023. "Impact of COVID-19 Pandemic on Caregivers of People with an Intellectual Disability, in Comparison to Carers of Those with Other Disabilities and with Mental Health Issues: A Multicountry Study," IJERPH, MDPI, vol. 20(4), pages 1-14, February.
    • Handle: RePEc:gam:jijerp:v:20:y:2023:i:4:p:3256-:d:1066631
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    References listed on IDEAS

    as
    1. André Hajek & Benedikt Kretzler & Hans-Helmut König, 2021. "Informal Caregiving, Loneliness and Social Isolation: A Systematic Review," IJERPH, MDPI, vol. 18(22), pages 1-12, November.
    2. Anna Messina & Rebecca Amati & Emiliano Albanese & Maddalena Fiordelli, 2022. "Help-Seeking in Informal Family Caregivers of People with Dementia: A Qualitative Study with iSupport as a Case in Point," IJERPH, MDPI, vol. 19(12), pages 1-18, June.
    3. Roger O’Sullivan & Annette Burns & Gerard Leavey & Iracema Leroi & Vanessa Burholt & James Lubben & Julianne Holt-Lunstad & Christina Victor & Brian Lawlor & Mireya Vilar-Compte & Carla M. Perissinott, 2021. "Impact of the COVID-19 Pandemic on Loneliness and Social Isolation: A Multi-Country Study," IJERPH, MDPI, vol. 18(19), pages 1-18, September.
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    1. Afolasade Fakolade & Caitlin Stone & Nicole Bobbette, 2023. "Identifying Research Priorities to Promote the Well-Being of Family Caregivers of Canadians with Intellectual and/or Developmental Disabilities: A Pilot Delphi Study," IJERPH, MDPI, vol. 20(22), pages 1-15, November.

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