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Understanding the Economic Value and Impacts on Informal Carers of People Living with Mental Health Conditions

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  • David McDaid

    (Care Policy and Evaluation Centre, Department of Health Policy, London School of Economics and Political Science, London WC2A 2AE, UK)

  • A-La Park

    (Care Policy and Evaluation Centre, Department of Health Policy, London School of Economics and Political Science, London WC2A 2AE, UK)

Abstract

Informal carers play a vital role in supporting people living with mental health conditions, but comparatively little is known about the economic value of caring. This study undertook an online survey of adult informal carers supporting adults with mental health conditions to better understand the impacts of caring on carer quality of life, levels of loneliness, finances and employment, as well as estimate the economic value of time spent caring. In total, 712 carers participated in the multi-national survey between August 2019 and April 2020. A total of 17% were male, with a mean age of 53, and 68% supported a child living with a mental health condition. A total of 56% of care recipients were male, with a mean age of 37. Adverse impacts on quality of life, loneliness and personal finances were greatest in carers living with care recipients. Overall mean weekly hours of care were 43.42, rising to 65.41 for carers living with care recipients. Mean weekly costs of care per carer ranged from €660 to €2223 depending on living arrangements. Annual costs ranged between €34,960 and €125,412, depending on living arrangements and valuation method. Informal care costs are substantial, and policy makers should consider investing more in carer support, especially for carers living with care recipients.

Suggested Citation

  • David McDaid & A-La Park, 2022. "Understanding the Economic Value and Impacts on Informal Carers of People Living with Mental Health Conditions," IJERPH, MDPI, vol. 19(5), pages 1-15, March.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:5:p:2858-:d:761847
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    References listed on IDEAS

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    1. Josephine C. Jacobs & Courtney H. Van Houtven & Terri Tanielian & Rajeev Ramchand, 2019. "Economic Spillover Effects of Intensive Unpaid Caregiving," PharmacoEconomics, Springer, vol. 37(4), pages 553-562, April.
    2. Siok Swan Tan & Irene N. Fierloos & Xuxi Zhang & Elin Koppelaar & Tamara Alhambra-Borras & Tasos Rentoumis & Greg Williams & Tomislav Rukavina & Rob van Staveren & Jordi Garces-Ferrer & Carmen B. Fran, 2020. "The Association between Loneliness and Health Related Quality of Life (HR-QoL) among Community-Dwelling Older Citizens," IJERPH, MDPI, vol. 17(2), pages 1-12, January.
    3. Bernard van den Berg & Han Bleichrodt & Louis Eeckhoudt, 2005. "The economic value of informal care: a study of informal caregivers' and patients' willingness to pay and willingness to accept for informal care," Health Economics, John Wiley & Sons, Ltd., vol. 14(4), pages 363-376, April.
    4. McDaid, David & Park, A-La, 2021. "Modelling the economic impact of reducing loneliness in community dwelling older people in England," LSE Research Online Documents on Economics 108594, London School of Economics and Political Science, LSE Library.
    5. David McDaid & A-La Park, 2021. "Modelling the Economic Impact of Reducing Loneliness in Community Dwelling Older People in England," IJERPH, MDPI, vol. 18(4), pages 1-16, February.
    6. André Hajek & Benedikt Kretzler & Hans-Helmut König, 2021. "Informal Caregiving, Loneliness and Social Isolation: A Systematic Review," IJERPH, MDPI, vol. 18(22), pages 1-12, November.
    7. Juan Oliva-Moreno & Julio López-Bastida & Rubén Osuna-Guerrero & Angel Montejo-González & Beatriz Duque-González, 2006. "The costs of schizophrenia in Spain," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 7(3), pages 179-184, September.
    8. Chiara Scaratti & Matilde Leonardi & Fabiola Silvaggi & Carolina C. Ávila & Amalia Muñoz-Murillo & Panayiota Stavroussi & Olga Roka & Helena Burger & Klemens Fheodoroff & Beata Tobiasz-Adamczyk & Carl, 2018. "Mapping European Welfare Models: State of the Art of Strategies for Professional Integration and Reintegration of Persons with Chronic Diseases," IJERPH, MDPI, vol. 15(4), pages 1-20, April.
    9. Agata Łaszewska & Johannes Wancata & Rebecca Jahn & Judit Simon, 2020. "The excess economic burden of mental disorders: findings from a cross-sectional prevalence survey in Austria," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 21(7), pages 1075-1089, September.
    10. Laura Alejandra Rico-Uribe & Francisco Félix Caballero & Beatriz Olaya & Beata Tobiasz-Adamczyk & Seppo Koskinen & Matilde Leonardi & Josep Maria Haro & Somnath Chatterji & José Luis Ayuso-Mateos & Ma, 2016. "Loneliness, Social Networks, and Health: A Cross-Sectional Study in Three Countries," PLOS ONE, Public Library of Science, vol. 11(1), pages 1-18, January.
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